Don’t ignore the rest

When my husband, Khoren — who has secondary-progressive MS — complained of excruciating pain down both arms and something that felt like a toothache, he took some ibuprofen. Just when we started to become familiar with his usual MS-related aches and pains, a new symptom seemed to be coming on to the scene. Great.

I didn’t want to make a big deal of it, but I’d never seen that look of distress on his face before. When he sat up in bed, it gave him some relief, but that strategy soon stopped working. He took a muscle relaxer and another drug for nerve pain that he typically skipped. He decided to head out to the living room so one of us could sleep. I told him I’d turn our noise machine off in the bedroom so I could hear if something went wrong. As it turns out, that was the smartest fluke of a decision I’d ever made in my life.

Because the thing is … something did go wrong. He had a heart attack. I woke up to the sound of low groaning and found him slumped down in the chair. I thought he’d had an allergic reaction to the medication he had taken. He wasn’t breathing. I called 911. Two harrowing days later he awoke from a medically induced coma — weak but 100 percent my husband. We were lucky.

Heart disease runs in Khoren’s family, which we discovered just a tad too late. We were so focused on his MS, that we ignored the rest.

When is the last time you had a full physical and talked about your health beyond MS? There’s no time like the present.

Tags Healthcare, Symptoms      22 Appreciate this
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Kelly

Kelly Nieuwejaar

Kelly Nieuwejaar lives in southern Maine with her husband, Khoren.

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    73 Comments

  • Kathy   Jul 8, 2013 2:46 PM
    Thanks for sharing, Kelly. It's a great reminder. Not only do I get too caught up with my MS - sometimes I find myself thinking that surely I should get a pass on other illnesses - given that I've already dealing with this one. Silly, I know, but it has lulled me into a false sense of security and a lack of vigilance. Thanks for the reminder!
  • Annette   Jul 8, 2013 2:46 PM
    Thank the Good Lord above!!!
  • Karen   Jul 8, 2013 2:51 PM
    I was diagnosed 15 years ago, and now at the age of 50 I have been thinking about that sooo much. I dont even have a primary doctor. Its always he Neurologist or Gyno, i do keep up with yearly mammograms and pap tests. But, do need to think of everything else. I know its necessary, but you are right the focus is always on the MS. Thank you for the reminder to check everything else.
  • Jean Reynolds   Jul 8, 2013 2:51 PM
    Thank you for sharing your story and for this important reminder. I focus so much on managing my symptoms that I forget about everything else, especially when I'm feeling good and have things "under control". Best wishes to you and your husband.
  • Barb Wuerth   Jul 8, 2013 2:52 PM
    It is so easy to blame things on MS, even doctors do it. Never think it is just your MS. Look at other culprits first.
  • Kaitlin   Jul 8, 2013 2:53 PM
    Thank you so much for this post. In February, I had pain in my neck and jaw followed by extreme chest pains and shooting pains down both of my arms. I've had MS for half of my life (diagnosed at age 12) and normally attribute everything unpleasant as just another symptom of an attack or a side effect of my medication. When I talked to my neurologist, he affirmed this idea by telling me that chest pain is a common side effect of a drug that I am on. Someone also suggested that it was a panic attack, however, I've lived with recurrent anxiety for quite a few years and this episode was far worse than anything I've experienced before. I think I will go see my family doctor for a second opinion. I'm so thankful that your husband was able to recover from this and that you were able to share this advice!
  • Lea Weathers   Jul 8, 2013 2:58 PM
    Thank you for reminding us of this very important fact. All the more reason to live as healthy as we can. And see a GP yearly, at least.
    MS doesn't make us immune to other health risks, unfortunately.
  • Mini Bessel   Jul 8, 2013 3:00 PM
    Good luck for you!!
  • Kim Schaefer   Jul 8, 2013 3:02 PM
    Thank you for sharing your story with other people. I have had MS for 22 years and it is easy to "blame" the MS.
    Thanks Again!
  • christine aviles   Jul 8, 2013 3:08 PM
    Wow it sure dose make u think im not as young as I used to be .hope all is good now !
  • Jennifer   Jul 8, 2013 3:08 PM
    Glad it all turned out ok! I have had MS for 20 years now, almost my entire adult life. I tell people this all the time - unless it's obviously MS-related always look for other causes first because you could be overlooking some serious problems.
  • Adele   Jul 8, 2013 3:12 PM
    Thank you do much for sharing. My brother was in the hospital for MS and unfortunately passed away from a blood clot in his lungs. I've had MS for 25 years and my husband is great in recognizing different changes in my mental and physical changes. Thank God your husband is doing better stay strong and blessed😊
  • Frank   Jul 8, 2013 3:17 PM
    As my healthcare and MS medication (Gilenya) is free through universal healthcare, I have full checkups once every 6-12 months and is very well taken care of. If you have the healthcare, use it.
  • Raylene   Jul 8, 2013 3:27 PM
    That is one of the harder facts living with MS. I have heart and artery disease also and copd and it is so hard to keep the symtoms under control and easy to blame the MS or the medications for it. Always good to keep a check with a family doctor along with the neurologist. Glad you husband is ok.
  • Kathleen   Jul 8, 2013 3:32 PM
    Thank you for sharing your story. It is so very easy just to blame our MS on everything that makes us sick. I have had MS since 2001. At least that was when it was Dx. I have had so many aches and pains they always say it is my MS. Well, a week ago I went to my GP. I now have Lymes Disease on top of what I already am dealing with. We never know. Thank you!
  • william Ellis   Jul 8, 2013 3:34 PM
    Hello Kelly and Khoren, i thank you for posting this , because i was diagnosed with RRMS 4 yrs ago since then I've had 3 relapses. About 4 months ago i was working and mypartner and i were taking a break i suddenly felt weak ,i got cold and clammy, and my left arm was hurting, needless to say i had a small heart attack. Im now on blood pressure meds a well as my MS Drugs To. But you can't let the other stuff go. Get regular,check-ups make sure everything is working the way its suppose to. You also have to make sure that you exercise everyday too. Again thank you for posting this.
  • Carolyn   Jul 8, 2013 3:37 PM
    I'd like to follow your blog on MS
  • Michele   Jul 8, 2013 3:59 PM
    I am so glad that your higher power ,guardian angel ect had that monitor be turned on I hope he is doing much better and gives me hope that even though my husband decided he could'nt handle my MS and left that some one will be there my kids or aide if i need one or an angel I have hope GOD BLESS
  • Morris Brown Jr   Jul 8, 2013 4:07 PM
    I have secondary progessive & yes its sometimes very hard tell if its the MS or something else. I always wonder if I am having a stroke or Heart attack or if its the MS. Like many I don't want to run to the emergency room every time so I tell my wife whats going on & to keep an eye on me & to be ready for anything. Scary, yes.
  • Andrew Burrow   Jul 8, 2013 4:20 PM
    I have lived with rrms for many years and have picked many other problems along the way. My biggest challenge is finding a doctor who will look outside the box, whether it be MS, PAD, COPD, or CHF. I almost lost my legs because a doctor thought MS and didn't even look for anything else.
  • ANNE   Jul 8, 2013 4:22 PM
    I have primary progressive MS and many other problems as well.......I go to my neurologist but I also go to my primary care doc....my gastro...my endocrinologist.....I had other very serious illnesses before my MS so I ignore nothing.....but I do know people who've had MS since they were young and they do tend to write of everything as MS......paying attention to your entire body and not attributing everything to MS is excellent advise......
  • Denise   Jul 8, 2013 4:27 PM
    Thank you for this. It's always a chore and like pulling teeth to get my doctor to look at other things besides my MS. So thank you. Maybe a doctor will see your article and realize there's more to look for. Again...thanks, and wishing you the best!
  • Chuck Gehman   Jul 8, 2013 5:36 PM
    Scary but well worth the read. I have secondary-progressive MS, 41 yo male with heart disease in my family. And am going to discuss heart care with my GP very next visit. Thanks for the heads-up and very glad things worked out for you guys. Whew!
  • Roberto   Jul 8, 2013 6:26 PM
    I´m 67 and was diagnosed with MS when I was 39. Being na engineer but also a musician, the worse feeling is the numbness in my hands.
    It is a terrible disease and I consider myself a Lucky one.
    Best regards!
  • Kelly Malucha, RN, MSCN   Jul 8, 2013 6:26 PM
    Great decision on your part Kelly! As an MS nurse myself I see way too many patients that focus solely on their neurological symptoms and issues and don't even HAVE a primary physician. (Or expect us to manage ALL their medical needs). A neurologist can care for the whole patient, but it's a better idea to have a yearly physical and be followed by a primary/internist
    for all other issues.
  • Jorge   Jul 8, 2013 6:42 PM
    My doctor always is telling me the same thing, do not ignore the others illnesses having MS doesn't mean you are impervious to other diseases. I am a little over weight, so I am starting to exercise regularly, also had to quit smoking (oh god, I miss my the smokes after my weekly shot) but the point is not to forget any other illnesses.

    Good to know your husband is fine, hope he gets a lot better soon. I know you might've heard this before, but marijuana does help, and in two different ways, humor and muscle relaxation and don't need to be smoked can be eaten or made into tea.

    Roberto I know the feeling, I am also an engineer and a musician, I know the feeling of a numb finger trying to the right key or the string.
  • Cecilia Rich   Jul 8, 2013 6:48 PM
    Thanks for sharing that reminder!
  • Mike R.   Jul 8, 2013 7:48 PM
    Definitely sound advice. About 5 years ago, my wife (who has secondary progressive MS) hadn't been feeling right for a couple of weeks. Finally, she began having tachycardia w/o an signs of an infection with a cold feeling on her neck. After blacking out briefly, she began complaining of chest pains. I called 911 and the hospital found that she had two large blood clots in her lungs. Anything out of the "ordinary" MS symptoms should be checked...
  • renee lachapelle   Jul 8, 2013 7:52 PM
    This is not uncommon to hear from a MSer. We tend to ignore warning signs that something is wrong and attribute everything to MS.
    I do see my primary md at least 2x per year and do all the lab work needed, other specialists as needed.
    I have MS over 30 years, and know from experience, that not all unexplained symptoms are actually from MS.
    Great that your husband survived his heart attack and that you found his before it was too late.
  • shay   Jul 8, 2013 8:08 PM
    People forget that MS is an "autoimmune disease" yes neurological symptoms but many other problems because our immune system is compromised. We have to be very very aware of our bodies. I have had 5 surgeries due to infections. My inner organs get zapped and my body gets sick so easy.
  • Lynnea   Jul 8, 2013 8:43 PM
    "Don't ignore the rest" is so true! I just wish all of my doctors would agree with that. MS seems like an easy cop-out answer for doctors instead of actually trying to figure out what else could be wrong. I am so glad you got your husband help in time!
  • Kimberly Sealey   Jul 8, 2013 9:00 PM
    I am glad your husband is doing better and all worked out for you!!
    I have so many aches and pains from my MS, I don't even consider that
    There could be other causes for my pain! Thank you for opening my eyes
    To other possibilities!
    Sincerely,
    Kimberly
  • Pat   Jul 8, 2013 10:49 PM
    THANKS!!! BE!!! TO!!! GOD!!!, YOU'RE!!! STILL!!! HERE!!!.TAKE!!! CARE!!!& GOD!!! BLESS!!! Y'ALL!!!. A!M!E!N!!!
  • Leanne Cynowa   Jul 9, 2013 1:40 AM
    This article is SPOT ON .. everything that goes wrong with my body my primary says "well that's ms" NO DUMB DUMB other things CAN be happening... I am SO warmed that you were able to hear him, and that in the end he is ok... GOD BLESS
  • jkaetzel  Jul 9, 2013 5:52 AM
    So glad you got to him in time! Sometimes it's really hard to judge if you really need to make that call to the doctor. (And sometimes, you're just sick of seeing him/her so much!) I just got yelled at by an Urgent Care doctor because I put off going in when I was sick. (My regular doc quit, and I've been a little lazy in looking for a new one.) Turns out I had asthmatic bronchitis for the last month. Thought I had it under control...
    Prayers for 100% recovery!
  • Marce   Jul 9, 2013 6:32 AM
    We do tend to let MS over shadow our general health issues
  • Nora Frotten   Jul 9, 2013 7:50 AM
    so very glad things worked out well. We too often blame the MS for everything.
  • Selma van Wyk   Jul 9, 2013 7:56 AM
    Can any one please inform me if they have any neurological symptoms of pain like "fire burning" in your legs? Somedays my fingers are *****eling as well and I had a few light seizures in the past, but they are still doing tests on me....
  • Selma van Wyk   Jul 9, 2013 7:56 AM
    Can any one please inform me if they have any neurological symptoms of pain like "fire burning" in your legs? Somedays my fingers are *****eling as well and I had a few light seizures in the past, but they are still doing tests on me....
  • Kendall ann   Jul 9, 2013 8:00 AM
    Wow! We do blame the MS. I'm guilty of that. I have an appt. for a physical in 2 weeks. I'm glad things worked out for your husband.
  • richard moles   Jul 9, 2013 8:51 AM
    thank you jesus!!! our brother is still in the game.stay strong.ms is a part of this journey called life,so go as far as you can,do as much as you can,with what you have to work with.
  • Janie Reid   Jul 10, 2013 9:45 AM
    Kelly, so glad your husband is better. I have been going to both my neurologist and a primary care doctor for the past 10 years, even with both sometimes it takes new eyes to see all the problems. I went to see another neurologist also after hearing about her and how she pays much attention to vitamin levels and how your body is able to use them. She ran blood test and got all my levels and started me on large doses of D3, a complex of all the B vitamins plus extra amounts of B-12, a daily multiple plus iron (I was low on iron). All is being watched and changed as needed to keep just right for me as she explained that too much is as bad as too little. The results so far are fantastic! I have had constant burning pain in my feet for the last 10 years, burning non stop 24-7 sense my MS began. Less than one week on the vitamin supplements and the pain is gone. My sleep has improved greatly, my balance is much better, headaches with jaw pain, havent had any for two and a half months now (they were weekly before). I am now starting my 3rd month of treatment and will have another blood test to check and a-just levels if needed but just wanted to let others out there know about how much this has helped. I have been on and continue to take BetaSeron injections but all the improvement in how I feel has come after starting the vitamins.
  • Anierae Molnar   Jul 10, 2013 10:29 AM
    My Dr. Says that everything wrong is just my m.s. I don't think so. I'm going downhill fast I am only 38 I should not be this ill. Please someone help me I don't want to die like this I know it's not just my ms but no one believes me so I get ignored by all cus I'm just crazy. Please I don't want to die like this can anyone help me?????? God bless
  • Katherine   Jul 10, 2013 12:38 PM
    Thank you Kelly for the reminder that too many of us attribute all of our health issues to MS. Thank God your husband is doing all right. God Bless you for your being a wonderful wife & caregiver.
  • Joanne kowalski   Jul 10, 2013 4:16 PM
    I get checked all the time every 6 months by my cardio and quite offen by my internists....sorry u went thru so much...but to a fellow mser I hope u keep instride with fighting ms...take care.
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    Quaker  Jul 12, 2013 1:09 PM
    I think allot of us only look at "MS".
    I went to my fam-doc for a physical . He then sent me to several specialist who did cancer surgery of my prostrate.
    Who would have guessed I had a invasive type of prostrate cancer?...Not my MS specialist.......It is good to look at other things....
  • Bud Figel   Jul 17, 2013 4:10 PM
    I've been diagnosed for over 40 years. Do Yoga ans swim twice /wk. I'm still mobile at 82.
  • Avatar
    THERESAF  Jul 17, 2013 6:56 PM
    This heat wave is the last thing we need
  • Kay Pasquini   Jul 19, 2013 8:45 AM
    Thanks Kelly for sharing, sometimes I also am afraid to say something to anybody even my husband. I am in fear they will just attribute it to my MS or think I am a complainer. So glad your husband made it. God Bless and continue to be his guardian angel.
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    Bobo  Jul 20, 2013 7:15 AM
    Good reminder, to take family health/medical history into account. Sometimes we think the MS is rearing its ugly head in a new way, and it's not the MS at all. Cheers.
  • Gail   Jul 20, 2013 3:04 PM
    So glad he is alright. Thank you this is a good reminder to us all
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    MonicaS  Jul 21, 2013 10:50 AM
    Your story is very helpful...you just don't know how much. Thank you
  • ldylv7  Jul 24, 2013 3:09 AM
    Thank you so much for this much needed warning about focusing on Just MS at the expense of what else could be lurking under the surface. I pray that you and Khoren continue to live, love, and be a guiding light to as many as possible :)
  • Ronald Nelson, Ph.D.   Jul 24, 2013 4:18 AM
    I was 24 years old with my first ms event. I have worked in rehabilitation settings, hospitals and consultations with private cliniics. A neurologist once told me that having MS won't immunize me fromall the other problems we experience in life. I am now 72 years old and aging issues, hypertension,memory issues, etc and another factors are all present. This may or may not be due to MS.

    But on what it offers. I have 9 grandchildren,graduated college and have traveled. There are may positive things to see and experience and to focus on them makes live worth living even with MS.
  • ruth vanharen   Jul 24, 2013 9:53 PM
    Hi All: I myself have lupus but my daughter has had ms for about 3 years. My sister has ms also. My daughter is going through a divorce and is worried about insurance. She still works 20 hours a week but is over whelmed by what lies a head. How much longer she will be able to work and no insurance. She has moved in with me. Does anyone know if there is help out there for her with the cost of medication and doctor appointments. Please if anyone has information please contact me with my e mail address. Thank you so much. Ruth
  • angiehrn  Jul 25, 2013 1:45 PM
    I am a disabled RN with fibro or some neuromuscular aches & limits. I believe we are overwhelmed with chemicals , too much artificials. Have been using cat's claw as anti-inflammatory 500mg 2x/day even helped burning pain after 3rd dose. Several good choices natural antiinflamm. Residue of artificials become another focus of inflammation. Hope this makes sense. Also using natural antidepressant turns out superfood, Has helped dementia, tremors addicts & skin problems. http://mylifepharm.com/aabsten Blessings for you & yours. I want to help anyway I can.
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    lucillemar  Jul 26, 2013 2:13 AM
    Thank you for sharing this experience. I often wonder how in the world will I know I have something I shouldn't ignore or just chalk it up to the MS. I guess all I can do is PAY ATTENTION to get to KNOW my MS and then know when something needs more medical examination?
  • Avatar
    mser-avonex  Jul 26, 2013 5:57 PM
    I have found this today I find this upsetting when I have three daughter that had this shot done......http://www.couriermail.com.au/entertainment
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    Nina-Ann  Jul 29, 2013 8:59 PM
    Thank you for that tidbit. My husband also has MS, just recently diagnosed. His father has had 2 heart attacks, 2 or 3 open heart surgeries...so this makes me add ONE MORE THING to "get that checked" list. Thank you and best wishes and God bless you and your husband.
  • bobbie   Jul 30, 2013 12:25 PM
    I would just hope that this next ache or pain was just normal and not MS. It always seems when I finally get MS back in its place in my brain, there it is again. thanks for sharing, I will be a bit more ok with " it just your MS nothing else!"
  • Barbara Holske   Jul 30, 2013 12:31 PM
    Have spms and have been a patient for 30+ years. Two years ago I went to a new PC doc. that sent me to: ENT, GI, GYN, Pulmonary, Bone Density, Cardio and of course complete blood work.... At first I thought he was TOO thorough, but now I have to say I am grateful. After reading your note Kelly, I am really grateful. Stay well all.
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    zacherydellis  Jul 30, 2013 6:51 PM
    I was diagnosed with ms at the age of 8 now 16 and in high school cant what.
  • Bob Overturf   Aug 3, 2013 6:54 PM
    I just want to wish the best to Khoren. I also deal with heart difficulties along with my ms.
    Bob
  • Belva Hill   Aug 5, 2013 11:59 AM
    I am so glad your husband was able to get the help he needed! You guys are very fortunate! Yes, that is the reason we all need to have yearly physicals, and we need to talk to a doctor instead of trying ti self-diagnose!
  • Joy   Aug 9, 2013 10:12 AM
    Thank goodness for your relationship. You both did things that night that were considerate of the other, and look what it did. It saved Khoren's life! God bless the both of you!
  • Avatar
    sarahcheverie  Aug 9, 2013 12:21 PM
    Kelly,

    That's frightening. For both of you. Thank goodness you were able to hear him. I wish you and your husband the best, and thank you for sharing this, It helps me realize that MS can trigger many symptoms, but sometimes certain symptoms may be related to something else. I guess I should stop pretending that everything is related to MS and be more cautious. Good luck, everything will be okay :)

    -Sarah C
  • zenmick  Aug 10, 2013 8:31 AM
    Great reminder Kelly. From my first CIS when I was told by a well-meaning doctor, "There is no treatment, no cure" and "avoid stress," I've combined Eastern & Western medicine to manage my MS and my overall health. People may label me a 'hypochondriac,' but I've faithfully gone to my wellness exam every year, get all recommended health screenings for my age (colonoscopy isn't too many years away). Jon Kabat-Zinn's books were inspirational and led me to meditation, Buddhism, and yoga. Thank you for contributing your wisdom to the MS community. Blessings to you and Khoren.
  • Hi Kelly   Aug 10, 2013 12:15 PM
    My sun has Primary Progressive MS and suffer of a lot of pain in his toes, rigth hand and leg, but I cannot get him to chear up. So often when I hear soemthing dropping and am sceared he felt out of bed or in the bathroom. Also since he does to clinical trials, he believes they keep an eye on the rest of his health. I believe that is not the case. Nor has he seen the head of the neurology department has'nt spoken or seen him for a year and a half. Good to hear your husband overcame his heart attack!!
  • kimf  Aug 12, 2013 9:43 AM
    Thanks Very much for sharing Khoren and your story Kelly. I was diagnosed with MS seven years ago and three years after that had to have five heart bypasses at the age of 49. I too had heart disease that ran in my family and was born with a heart defect that I along with my cardiologist at the time overcame. My brother died at age 30 of a heart attack when I was 20. But I never ever went to the doctor for my heart and I was a working paramedic/nurse/fire fighter. One day I in April I'd been working on getting our vegetable garden ready to plant. Came in around 3 p.m. started a pay-per-view movie that Lisa my life partner of 13 years didn't want to watch and fell asleep in my lounge chair. She came home from work and I had fallen asleep but when I woke up my chest hurt a bit, no problem I figured it was just muscle even though in the back of my head I knew it wasn't. Then my left jaw started to hurt just a tiny bit, then both my arms but just a tiny bit. After two hours of Lisa cajoling me, being sweet to me, then flat out angry I told her I'd go to the ER. Thirty six hours later I was in surgery. I could have been Khoren. I was a walking dead person. I had three 90 percent occluded arteries, one 80 percent and then what is called the "widow maker".
    I applaud you sharing yours and Khoren's story because with MS and all the pain I have from it I forget about everything else sometimes and so does all of us I think until some one is courageous enough to share! Kudo's and good wishes!!!!
  • lidia   Aug 14, 2013 12:31 AM
    Thank you for sharing it sounds like what I go through . I have those pains from my secondary progressive ms and a month ago things felt really bad and I felt extra weak I told my husband something was not right I went to the er and I had a blood clot in my right arm and now on blood thinners. Im glad I did not wait. I use to be in Medical Assistant and I enjoyed it and learned allot in school but my MS has me at home. I'm glad all is okay and your right about going to the doctor but sometimes they have to understand its not always ms and you have to let them know
    GOd bless thanks for sharing
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    MS-OpenMic  Aug 19, 2013 8:32 PM
    I'm so glad you were there for him and he recovered. I love my husband very much and would be devastated if something happened to him. Your blog post addresses a problem that I often have. I tend to blame everything on my MS. I'm slowly changing and realizing that I will unfortunately have to deal with other things as well. I think MS'ers should be exempt from all other things, especially menopause.
    "When you've got a hammer, everything becomes a nail."
  • Jan Adair   Aug 20, 2013 5:48 PM
    I totally agree about keeping a close eye on your overall health. It gets confusing at times wondering if a new symptom is related to MS. Recently I was diagnosed with a thyroid problem and found many of my symptoms were related to that rather than the MS. It was so refreshing to know something could be done to make me feel better. It certainly is a challenge... Is it age (I'm 57), is it working night shift, is it MS, is it depression, is it all in my mind and Im beginning to be somatically focused? That seems to be my biggest irritation with this disease. Good luck to you both!!!
  • LORRIE MAUERSBERG   Jan 14, 2017 2:24 PM
    hello
    I am going to start some evaluations for MS. I see a specialty Neurogist this upcoming Friday. In 2012 I had 7 months of non stop pain. It travelled around my body starting in the elbows and forearms. The finger joints. Then the knees. Then the ankles and toes. It felt like the limbs were being ripped off at the joints in waves of pain. Then my bladder. 17 days of non stop night urination every hour. Then a non functioning lower rib in the right which has never functioned since. I was shuffled from doctor to doctor. Meanwhile I started with and still have ringing in my ears constantly. Burning like a match from inside my ear down my neck and down into my chest with the slightest rash After months I became so distraught. I started searching for answers every where. I found my symptoms mirrored internal shingles. I started an oral antiviral with prednisone. At the end of the treatment I felt some better. 6 weeks later it started all over. Another round of antiviral oral meds. I learned later internal shingles has to have IV Therapy over weeks to combat it. Oral meds Took all symptoms to a dull roar. Now I am left with ringing in my ears, five hemangiomas of the spine, cervical and spinal dessication. And nearly four years of fatigue so severe at times I feel I could drop where I stand. Pain all over my body some days. An altered gait when I walk I slap my feet. I feel I am falling left. Poor balance. My hands and arms have sensation disturbance. Numb. Does any of this match symptoms of MS that anyone on this forum has? Can anyone give me advice on questions to ask this neurologist? What do you do to get answers?