Good News

I think it was sometime in September of 2012 that I initially went to see a doctor about my weak leg, which led to my diagnosis of multiple sclerosis, which led to lots of specialists, lots of scans, and lots of follow ups. Suffice it to say: I’ve had a lot of appointments in the past 20 months. And in general, the news has not been good. I always put a positive face on it, but at this stage it’s hard to go in expecting the best.

So I was happily caught off guard when my last scan came back BETTER than the last. Finally! It’s what I’ve been waiting for since the whole damn thing started. There’s no new inflammation and the spots in my brain are smaller than they were last time. My neurologist uses bigger words to explain all this, but summed it up with the colorful stickers that she attached to my results.

I’m still waiting for the mystical appointment when I’ll find out that a) this has all been a big mistake and I actually don’t have MS, or b) they’ve cured MS. But in the meantime, this is what you want: stability. I still have symptoms, but if I could stay just as I am for as long as possible, that would be such a blessing.

I’m grateful for my amazing neurologist, for the support of my friends and my family, and also for good luck. Because I know that there are plenty of people who’ve done everything I’ve done, tried everything that I’ve tried, and are still waiting for the appointment that I just had. If you’re among them, courage. Be brave, be strong. Things are changing all the time. Hopefully more and more good news is on the way.

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    26 Comments

  • Meagan1  Jun 10, 2014 12:57 PM
    You go! That is amazing news! Keep fighting!
  • Maryellen South   Jun 10, 2014 1:03 PM
    What medication regiment are you on.
  • Claudia   Jun 10, 2014 1:34 PM
    Pregnancy made me feel better. At 40.
  • sireen   Jun 10, 2014 1:53 PM
    I'm so happy for you.. your news made me hopful.. did you take any kind of medicine like betaferone?!
  • LizPont  Jun 10, 2014 3:27 PM
    I know the magical kind of thinking you talk about, where you hope that all the tests are wrong and that you really don't have MS -- it's just a big misunderstanding! Haha, just kidding, you don't have to do your therapies anymore and so very sorry, but you can get on with your regularly scheduled life. I've thought that so many times in the 5 1/2 years since I was diagnosed, like, "Maybe the last 7 MRIs have been wrong. Maybe those unmistakable signs aren't what they seem..." Then I realize that it's just wishful thinking. One day, maybe, all of us will get to know (b) on your list!
  • capitolcarol  Jun 10, 2014 3:40 PM
    That is good news. I think since you don't have new lesions that your condition is stable, so that's hopeful. What drug therapy program are you on? Indeed, we alll pray that one day they will finally come up with a cure.
  • Bindol61  Jun 10, 2014 4:54 PM
    I have thought both a) and b) many times in the three years since my diagnosis.I'm going in tomorrow for my 6-month review with the neurologist. Your post made me hopeful that last week's MRI will show continued stability and NO progression!
  • AJ   Jun 10, 2014 6:24 PM
    I was just diagnosed with CIS, Clinically Isolated syndrome and currently take MS medicine injections. Even thought it has been 4 months I still have symptoms. Is this normal? I have constant numbness in limbs, fatigue, neck pressure, depression and cognitive issues. Do people still work with these conditions? I have a high pressure/stress job. I don’t know what is my new normal now.
  • lindadownes  Jun 10, 2014 7:57 PM
    I was diagnosed in January 2009 with RRMS. I have been very lucky and have had only one major episode which has made me think many, many times "Do I really have MS?" Unfortunately the MRI's don't lie BUT I can say that my last 3 annual MRI's have shown little or no progression so I am very hopeful that the meds are working and soon enough, there will be a cure. Btw, I have been on Rebif, Tysabri and am now on Tecfidera.
  • Maria Fernanda Wilmurt   Jun 10, 2014 11:24 PM
    I am happy for you and thank you for sharing this. You made my day!! Yes courage is all I need. Keeping positive for next mri coming up in August.
    Best wishes! Keep strong!!
  • Sue Edwards   Jun 10, 2014 11:58 PM
    My husband was diagnosed with MS 33 years ago and can still walk around using one stick. Two remissions have been treated with high doses of steroids. I am enquiring for a friend .... are you taking any disease modifying drugs and if so which one and for how long?
  • Kelly   Jun 11, 2014 3:51 AM
    Wow that is great news. I want to share I went off statin medicine and I feel better than I have felt in 6 years! It causes inflammation. I urge anyone who is taking that medicine and has lingering pain to stop for a week and see how they feel!
  • Jeffrey   Jun 11, 2014 6:03 AM
    That's phenomenal news!!! Thank you for sharing! I am also curious to know what your medications consist of and what kind of MS are you diagnosed with?

    Thanks a ton for the info!!
  • Jeffrey   Jun 11, 2014 6:03 AM
    That's phenomenal news!!! Thank you for sharing! I am also curious to know what your medications consist of and what kind of MS are you diagnosed with?

    Thanks a ton for the info!!
  • SincerelyWicked   Jun 11, 2014 7:39 AM
    I feel the same way. All the MRIs, Spinal Fluid analysis and my symptoms - still it must be wrong. I can't really have MS!

    I'm curious as well what medications you take/have taken.
  • kat   Jun 11, 2014 7:47 AM
    Congrats for the stability! At AJ's comments. I think I'm still in the same boat. I've had one episode. No medications other than Propanolol have been given to me n My MRI's are normal. My neurologist says that the longer my MRIs go being normal the less likely it's MS. (This was good news) It was about 10 months after my episode that I really started feeling like myself again. This was also 3 months after I chose to go Gluten free. I still have very mild "unexplainable symptoms and uti's) but I'll take it. I continue to be Gluten free because I feel better. So even though I'm not diagnosed and may not ever be. ?. I do think it is normal to have residual symptoms fire a while. I've read what you have after six months is what you're stuck with, don't give up fit me it was 10. I also had my tremors out of the blue the other day. Do your best to reduce stress and try to do what you can to reduce inflammation.
  • kelly   Jun 11, 2014 9:09 AM
    I too have been dealing with M.S symptoms for years. Diagnosis 2008. It took a long time for a diagnosis. Thankfully I can still work but just recently had my first relapse. The fight continues for all of us with M.S. Never give up Never give in
  • karen creed   Jun 11, 2014 11:35 AM
    Good news
  • Janice Cain   Jun 11, 2014 1:56 PM
    That's wonderful news!
  • Janice Cain   Jun 11, 2014 1:56 PM
    That's wonderful news!
  • Avatar
    refusetoquit  Jun 12, 2014 6:04 PM
    AJ, a high stressful job, in my opinion, only creates more inflamation..........and eventually more symptoms Thought I could handle it, and I guess I did, but now that I'm not working , legs stopped lifting, I realize maybe I could have changed my lifestyle SOONER to prevent it from revving up. For 2yrs. of liestyle and nutrition change, my symptom's have improved greatly. Can't walk but feel normal otherwse with slight weakness but wonder IF, IF ONLY I respected my health sooner.......

    fOR THIS BLOGER, Congrats on a good, better MRI.
  • Corinne kohler   Jun 12, 2014 8:26 PM
    My 11 year old grandson was diagnosed with childhood MS earlier this year. It's been hard on him because of the symptoms he has had. Support for emotional problems dealing with this for both he and his mother.
  • Jeanette   Jun 17, 2014 1:35 PM
    Damage to the CNS continues whether you have overt relapses or not. I was dx in 89. Keep on movn'!
  • capitolcarol  Jul 15, 2014 2:40 PM
    That is such good news. Congrats! It is wonderful that someone has received positive news that one of us is getting better! Maybe there is hope for the rest of us. I pray that that might be so.
  • jsgasser  Apr 20, 2016 2:03 PM
    Searching earnestly to talk with someone that is currently using aubagio. Not doing anything at the moment but neurologist suggested copaxone or aubagio. Have until April 25 to decide. Hate injections yet very concerned about side effects of aubagio. Need someone to be upfront because I don't appreciate surprises.
  • DB.   Aug 25, 2016 7:07 AM
    Great news for you,glad to hear that,my issues with the disease have been ongoing and progression seems to just keep going in the wrong direction,BUT I still have a positive attitude,I do what I can,I do NOT quit,stay positive my friends,I know it can be hard many times,but it is possible to find positive in all situations,you just need to look,listen,seek it and grab onto it.