Is This MS?

There was one thing to always look forward to on sick days when I was a child, other than staying home from school. It was watching The Price is Right. A box of Kleenex, some cough medicine, plain toast and that beloved game show were sick day staples.

I’m not even sure why I enjoyed the show so much as a kid—I had no real sense of money and the numbers that the contestants shouted out just seemed arbitrary. I’d still play along, though.

But now, as an adult, I find myself as an involuntary contestant on a completely different kind of risk-it-all game show called ”Is This MS?”

You know the game. It’s the one that many people living with MS play any time our bodies decide to do anything even remotely out of the ordinary. We know the scope of MS is broad, and so many things can be a potential symptom.

My finger is itchy. Maybe it’s a bug bite. Dry skin? Or eczema. Maybe the skin has touched an irritant. Or... is it MS?

There’s a stabbing pain in my chest. Maybe I pulled a muscle. Maybe I’m having a heart attack. Or is it MS?

My muscles ache. Maybe it’s the flu. Or I worked too hard at the gym. Perhaps I slept funny. Or maybe it’s MS.
Do I have a common cold? Do I need to be worried because my immune defenses are down due to my medication?
And on and on it goes.
This aspect of MS can be confusing, overwhelming and disheartening.
The frustration is further perpetuated by even more questions.
Is this a symptom of MS, or is this a side effect of my treatment? Or is it indicative of something even more serious? Is this a relapse? Is my disease progressing? Do I need to report this to my doctor? Should I notify my family?
To a non-MSer, this familiar-to-us struggle may seem pretty cut and dry. A relapse is identified by experiencing a new symptom for more than 24 hours, yet many of us may still have a difficult time differentiating between an exacerbation vs. a flare-up vs. a relapse. And I think this comes from not fully understanding the vocabulary used (exacerbation, pseudo-exacerbation, relapse, attack, flare-up, episode, etc.) and also grasping that MS has the potential to leave no stone unturned.
One thing I’ve learned since being diagnosed with MS is the importance of self-advocacy and remaining vigilant and responsible when it comes to listening to my body. One way I stay on top of my symptoms is by keeping a journal or making notes on a calendar. That way, if something doesn’t seem quite right and the time comes for me to check in with my doctor, I can give him an accurate record of how I’ve been feeling and for how long. I also check in with my husband from time to time and compare notes. He tends to pick up on small changes that I may brush off or not notice at all. It’s helpful to hear his feedback and have that extra voice at the doctor’s office.
However you choose to stay on top of your symptoms, just be sure to keep your doctor informed. That way, together, you can devise a plan to make sure fewer days are spent calling in sick and playing the dreaded “Is This MS?”
Tags Healthcare, Symptoms      6 Appreciate this
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Cat Stappas

Cat was diagnosed with multiple sclerosis in 2013 and writes about her experiences in her blog, It's Only A Bruise. She hopes to make the dark corners of the internet a little bit less scary for both the newly and the long-time diagnosed with some honesty, positivity and — sometimes — some tongue-in-cheek humor. You can read her blog here and follow her on FacebookTwitter, Instagram and YouTube.

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  • Milly  Jun 14, 2018 10:46 AM
    You always post something during a time that I need it most! I'm glad I was wearing my sunglasses on the train this morning when I first read it bc I started to cry out of nowhere. For the past week, I've been playing "the game" and it has been super unnerving. I really appreciate your posts Cat. Until next time-cheers to my fellow MS Warrior.
  • Dave Maskalick   Jun 14, 2018 4:28 PM
    Cat, I was diagnosed in 1987 just three years after receiving my PhD and seven years after marrying my love and best friend Kathy. Kathy has always been, and continues to be, there for me each day helping me and my physicians and neurologist to understand how the MS progression is affecting me.
  • Avatar
    anywhereoutofthisworld  Jun 19, 2018 12:37 AM
    Great article. All of us with this MS thing are warriors I believe. I also left a comment on one of your blog posts, my name on there is xstarfiresx.
  • Karen Coutrier   Jun 22, 2018 7:03 AM
    Thank you for sharing your story .... It help me understand my daughter's journey....