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Working for Veterans

Blog Summary

On March 6, 2019, the National MS Society entered into a four-year Memorandum of Agreement with the Veterans Administration. This partnership will provide veterans living with MS comprehensive and coordinated care and services. Society president and CEO Cyndi Zagieboylo, a proud daughter of a veteran, reflects on what this means:...

Putting the Frosting on a Diagnosis

Blog Summary

When I was diagnosed with MS, I had four children under the age of six. Yep, 4 under the age of 6.    When I began experiencing numbness and tingling in my limbs, I was convinced I had a pinched nerve. I only went to the doctor because my HMO required a referral to see a specialist...

When are You Expecting to Expect?

Blog Summary

“So, when are you expecting to expect?” Literally the first question people asked me when I got married last year...

Life on MS Treatment

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Starting treatment for multiple sclerosis can be scary and life-changing on many levels.   It’s not just the inconvenience of having to fit a new medication into your schedule. It’s also the fear of side effects—not to mention the fear that comes when you find out your disease is progressing.

Always Looking Ahead

Blog Summary

There was a moment in my life when I just paused. I paused because of the uncertainly that was hidden right before my very own eyes. That uncertainty was delivered in four very short words in March of 2008, “You have multiple sclerosis.” Like many of us who have had to hear that same phrase, we have no idea what MS looks like from the outside because for some individuals, you will never even know… but we know what havoc it’s wrecking on the inside. At just 18 years old, I had to “power up” and accept the fact that I was now going to live with a disease I knew nothing to little about, except for what the dreaded search engine was telling me: no cure, disability, wheelchair bound and a lot of big medical terms...

Perspective… and Biscuits

Blog Summary

Here are a few facts: MS takes up a bigger piece of our lives than we would like. It has given us a different perspective. But it will not take our sense of humor. Recently, my husband and I got yet another denial letter from our insurance saying they won’t cover the sleep medication that is finally working for my husband. I know he is not alone in the battle for sleep; the tossing and turning, the burning, the pain, the inability to stay asleep, and then, weighing all of that against the feeling of being hung over the next morning with every other sleep aid he’s tried...

Fighting MS with Everything You Have

Blog Summary

MS saved my life. It helped me find balance. It helped me find my calling. When I was diagnosed in 2014 with relapsing-remitting MS, I experienced double vision, vertigo, and bone-crushing fatigue while my arm had a mind of its own...

Just Keep Going

Blog Summary

I grew up playing sports, but running was never my “thing.” ​ What I loved was the competition that came with athletics. During the summer, my friends and I would play football until dark when our parents yelled down the street “come home!” As I got older, I would play racquetball for hours, engrossed in the sheer intensity of the game...

Nutrition and MS

Blog Summary

When it comes to managing MS, one of the biggest things to keep in mind is nutrition. Everyone’s experience with MS is different—what works for me may not work for you. But as a CNS with a specialization in fitness nutrition and someone who lives with MS, I get a lot of questions about nutrition! Sometimes it’s tricky to know what foods to eat—and avoid. I can offer some insight on general tips and what’s helped me manage my MS symptoms. Because MS is an autoimmune disease, and inflammation comes with the package, a goal you should always keep in mind is keeping inflammation as low as possible...

How to MS Like a Boss

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How do you MS like a boss?! How do you “own it?” How do you feel more self-empowered with MS?   I was super inspired by the recent actions of ultimate-MS-boss Selma Blair beautifully displaying herself on the red carpet at the vanity fair Oscar party for the first time since her multiple sclerosis diagnosis...

Walking the Walk

Blog Summary

A few months ago, I was sitting in my car in a parking lot, and I saw a car pull into a disabled parking place. No one hung a disability placard on the rearview mirror, and I saw a young man jump out and head for the store.   “Hey, that’s a disabled parking place,” I yelled at him...