MS Connection Blog

Share

Memories and the Name Game

Blog Summary

When my three kids were little, we often whiled away long car rides by playing something called The Name Game. It worked like this: Someone would say the first and last name of either a real person or a fictional character everyone in the car knew, which meant we had a lot of Star Wars and Harry Potter references.

Faking It

Blog Summary

Ugh.   I’m doing it again...

A Love Triangle: Him, Her and MS

Blog Summary

Building a successful relationship is hard work. Throw MS into the equation, and it can be even more challenging. We talked to Kate and Frank, married for over 10 years, to discuss how MS affects their relationship and family life...

MS and Dating

Blog Summary

I never had to worry about MS and dating because I was already in a relationship where it was out in the open. I was set. Until that relationship ended...

My A-Ha Moment

Blog Summary

Born in December 1976, I am a child of the 80s. One of the most quintessential songs of that era was “Take On Me” by the band A-Ha...

Career vs. MS

Blog Summary

I had huge plans for when I left university. I was going to start my new career as an illustrator! I had big dreams of everyone owning something with one of my designs on it. I managed to find an agent to represent me at major trade shows, and I even had a book deal while I was still at university! I was so excited. All I needed to do was to finish university.   But life never quite goes as you expect it to go, does it?...

Gaining It All Back

Blog Summary

Processed food came on the scene when I was in grade school. My mother was working full time when I was in fourth grade, plus another part time job when I was in high school. I had three sisters and a brother. I remember spending a lot of time home with my sisters and brother, but I don’t really remember my mom being there, so she must have been working many hours. I remember sitting down for dinners and picking numbers (small numbers on yellow pieces of paper that were thrown into a hat), to allow you to pick the leftover of your choice. This was a great game. Would it be left over hamburger helper, casserole, mac and cheese? I remember the big gallon jugs of milk and cheese we always had and the bread we ate. Food was our gathering spot, where my brother and I got tested for spelling, where we fought over the leftovers from previous nights...

Be Free

Blog Summary

Hey multiple sclerosis family,   My name is Liz Walters, and I’m a little new to this tribe. But honestly, I’m changed for the better because of it. I’m a senior in college at a big southern state school, my major is psychology, I love to paint, and of course I have relapsing remitting multiple sclerosis. I grew up in South Carolina, low-country sailing and spending every moment I could on the boat or in the water...

The Bittersweet World of Viewing Your MRI Scans

Blog Summary

MRIs are a crucial and taxing part of having MS – as the patient, it is our right to be able to obtain and view our scans once they are complete. But what if viewing them ourselves is not entirely the best idea? I had a scan done in July 2019 – I received my results from my neurologist over the phone; they weren’t pretty. I was curious to know more and to understand better why things were progressing and when this all began to occur. What I got was a document to turn into the hospital to obtain July’s scan, but that was it. I had nothing to compare it to, but at least I had a jumping point...

Mindfully Tuning out the Tyranny of the Active

Blog Summary

Have you ever seen social media accounts of people who are super-busy, who seem to be moving, networking and taking pics of every glorious moment of every day? As I scroll through Instagram, Facebook and Twitter, I often wonder when our culture decided that being perpetually on-the-go and always clutching a long to-do list are quintessentially American values. It doesn’t seem to matter what form this flurry of activity takes. It can be anything from a gym workout, a 20-mile bike ride on a lovely trail, a hiking or kayaking excursion amid vivid scenery, images taken from the stands at a children’s event or game, attending a Pinterest-perfect party, or visiting the new, artisanal, farm-to-table restaurant during its opening week. The pressure is on to keep yourself busy, busy, busy...

What to Do If Follow-Up MRIs Show New Lesions

Blog Summary

You’ve been diagnosed with MS and started on a disease-modifying therapy. At a follow-up visit, your neurologist asks that you do another series of central nervous system MRIs. You ask, “Why? Is it really necessary? What would you do if there were new lesions?” These questions are excellent and reasonable. The answers however, are not straightforward. There is no cure for MS at this time. That said, starting a disease-modifying therapy is most important. Responses to disease-modifying therapies vary greatly. In some individuals, the response is excellent, with no evidence of recurring disease. In others, new lesions and even attacks may occur despite treatment. Not every new lesion is associated with an attack, and new lesions can gradually accumulate silently with no immediate change in course. However, increasing tissue damage may result in increasing disability over time. Thus, monitoring your central nervous system with MRIs after starting a disease-modifying therapy is essential to determine your response to treatment...