MS Connection Blog

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Fighting MS with Everything You Have

Blog Summary

MS saved my life. It helped me find balance. It helped me find my calling. When I was diagnosed in 2014 with relapsing-remitting MS, I experienced double vision, vertigo, and bone-crushing fatigue while my arm had a mind of its own...

Just Keep Going

Blog Summary

I grew up playing sports, but running was never my “thing.” ​ What I loved was the competition that came with athletics. During the summer, my friends and I would play football until dark when our parents yelled down the street “come home!” As I got older, I would play racquetball for hours, engrossed in the sheer intensity of the game...

Nutrition and MS

Blog Summary

When it comes to managing MS, one of the biggest things to keep in mind is nutrition. Everyone’s experience with MS is different—what works for me may not work for you. But as a CNS with a specialization in fitness nutrition and someone who lives with MS, I get a lot of questions about nutrition! Sometimes it’s tricky to know what foods to eat—and avoid. I can offer some insight on general tips and what’s helped me manage my MS symptoms. Because MS is an autoimmune disease, and inflammation comes with the package, a goal you should always keep in mind is keeping inflammation as low as possible...

How to MS Like a Boss

Blog Summary

How do you MS like a boss?! How do you “own it?” How do you feel more self-empowered with MS?   I was super inspired by the recent actions of ultimate-MS-boss Selma Blair beautifully displaying herself on the red carpet at the vanity fair Oscar party for the first time since her multiple sclerosis diagnosis...

Walking the Walk

Blog Summary

A few months ago, I was sitting in my car in a parking lot, and I saw a car pull into a disabled parking place. No one hung a disability placard on the rearview mirror, and I saw a young man jump out and head for the store.   “Hey, that’s a disabled parking place,” I yelled at him...  

Made Strong by Dance

Blog Summary

I will never forget the day I knew something was seriously wrong. I was in a funk dance fitness class dancing. It was a fast paced, heart pumping, dance fitness class. I started out fine, following the warm up routine as usual. As I was learning the choreography, the right side of my body, specifically my legs, suddenly felt very heavy and weren’t moving. My head felt light...

Twice as Many

Blog Summary

As an invisible illness, it’s often difficult to know if someone lives with MS. So, it comes as no surprise that many of us have a connection to MS we may be unaware of.And the odds of our connection have just increased...

MS Transparency: How Open Should I Be?

Blog Summary

Do I walk over and explain to the dude in the garage—the one who’s been giving me the stink eye ever since I pulled into a disabled parking spot—that, while I appear to be healthy, I actually have MS?   Do I tell my students what’s going on when I’m pressing my icy drink against my neck to cool me off while I’m teaching inside an overheated classroom, fretting about whether my MS heat sensitivity will flare up?...  

Precision Medicine in MS – What Will it Take?

Blog Summary

I’ve just come back from an exciting meeting in Dallas hosted by ACTRIMS (Americas Committee for the Treatment and Research in MS).  The focus was precision medicine. It’s the idea of using a person’s genetic background, environment, lifestyle and other factors to develop a customized approach to treat MS.   More than 1200 clinicians, young investigators and seasoned researchers gathered to consider what precision medicine would look like for people with MS, and the challenges and opportunities in getting closer to precision medicine. If you’re interested, you can browse the summaries of the presentations here...

How My Mom Being Diagnosed With MS Made Me a Better Person

Blog Summary

Writing this blog post has been so hard for me. Trying to think of all the positives of taking care of someone with MS when you’re 17 is not an easy feat. So I won't lie to you: It's not easy. It's not easy at all. It's not easy going from child to caretaker, it's not. Having to constantly take care of someone takes a huge toll on you. Now, I'm not the most experienced at being a caretaker or even at life, but I wanted to share with you some of the best tips that I have in being a caretaker and how to avoid not letting yourself have a life...

A Loss of Taste

Blog Summary

Somewhere along the way, my ability to savor certain foods has waned. Actually, it’s done more than waned. In some cases, it has warped into a bizarro situation where items I’ve long loved now suddenly taste of bitter disappointment.   What food now tastes terrible to me? My beloved morning coffee (with the exception of peppermint-flavored java), several red wines I used to adore, some marinara sauces, toasted everything bagels, and even the heartiest of sandwiches, unless they’re slathered with this spicy chipotle mayo I found...