MS Connection Blog

Share

MS, Climate Change and Kiribati

Blog Summary

The date was October 24, 2007. It was my second year at the University of Pittsburg’s Anthropology Ph.D. program when MS hit. Within minutes of arriving at the school’s Halloween festival, I lost my vision, ability to talk and walk. Rushed to the hospital, I was diagnosed with MS and placed on a disease-modifying therapy, Avonex, within hours.​..

Life as We Know It

Blog Summary

I recently walked our two boys to town to get pizza, and I ran into another mother from the neighborhood. She was alone and bringing pizza home for her kids because she and her husband were going out for a much-needed date night.     "It's so important to make time to do that, you know?" she said to me, looking for relatability as I tried to wrestle a handful of napkins from my three-year-old before he tore them into confetti in the restaurant...

How a Shirt Can Make All the Difference

Blog Summary

So, this is one of those blogs you may or may not completely agree with.   Now, don’t get me wrong—I know a shirt or pair of sneakers won’t exactly cure your MS, but it can certainly make a difference...

When Fatherhood Meets MS

Blog Summary

It bothers me. I want to do more. Be part of more. See more. And I think, for any father, the “more” is what truly matters. It’s being there for them and, as a result, your children knowing that you are there for them… always...

Is This MS?

Blog Summary

There was one thing to always look forward to on sick days when I was a child, other than staying home from school. It was watching The Price is Right. A box of Kleenex, some cough medicine, plain toast and that beloved game show were sick day staples. I’m not even sure why I enjoyed the show so much as a kid—I had no real sense of money and the numbers that the contestants shouted out just seemed arbitrary. I’d still play along, though...

You Are Not Alone: MS and Incontinence

Blog Summary

Because MS affects the central nervous system, it’s difficult to predict what symptoms each person will have. MS can cause complications with vision, muscle control, balance and other basic functions. One of the most common, and to be honest, often embarrassing symptoms is incontinence...

“Because She’s Sick”

Blog Summary

Have you ever experienced someone else’s ignorance or intolerance about your MS? Have you ever had someone make you feel different or isolated from the rest of the world? Well you are not! You have MS but MS does not have you; never let someone feel like less than you are. This is my wake-up call and message to those who feel this disease defines who we are:...

MS & Movement

Blog Summary

One of the things I love about attending the Annual Meeting of the Consortium of MS Centers is how many studies focus on pinpointing problems in the daily lives of people with MS and how to find solutions. This is the point of rehabilitation–to restore or maintain function as much as possible. One problem that is being investigated is sedentary behavior, also called “sitting time.” Researchers from the University of Alabama at Birmingham and colleagues around the country administered a physical activity questionnaire to more than 6,000 people with MS...

This Side of Hope

Blog Summary

My mom has lived with MS since her 20s. She was diagnosed before I was born, so MS has always been something that is a “normal” part of my life. Through the years, MS has thrown her some curveballs, but my mom has always found a way to adapt. She’d put on a smile and learn a new way of doing something she loved and wasn’t willing to give up. She is strong and resilient, and this has impacted me in the most extraordinary way.

Mom Duty: Fatigue Edition

Blog Summary

The story is always the same.   Mom goes away for the weekend—either for a getaway with friends, or maybe to attend a conference. The trip itself is great. Mom comes home and all is well. She is just fine, thanks. Even rejuvenated...

Bringing Us Closer

Blog Summary

Living with MS can sometimes feel like you’re stranded on an island by yourself. People who don’t have MS might not fully understand what you’re going through, and others living with MS may have symptoms and experiences entirely different from yours. To make the MS world smaller, this year’s World MS Day (May 30) theme is “bringing us closer.” It’s about building connections and sharing stories to unify us in our collective stand against MS. Connect with the researchers, students and nurses who are at the forefront of finding a cure to bring us closer to a world free of MS. Meet two of our researchers and learn how their work is #BringingUsCloser to a cure...