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Treating MS

michd2006

I have developed optic nerve disfunction...probable optic neuritis.  Saw optic neuro yesterday due to increased problems with left eye for 4 days.  Started with SEVERE headache on friday, it was debilitating so I slept most of the day and night after getting done with work.  Over the weekend stayed positive and… Read More

nnhood

I was wondering if someone was suffering from muscle atrophy in their legs or arms would anabolic steroid therapy help at all?  Or would it not help because someone with MS would process the steroid differently? I'm already on Androgel for low testosterone that comes and goes... it's been at 200 at times and… Read More

sentientbeing
Anyone Taking Mavenclad? *

I'm about to start treatment for my MS and will be taking a medication called Mavenclad. So far I haven't met anyone else who has been or is taking the drug, even though it's been around in other countries for over fifty years. As far as I know I will be one of the first in the US to take the medication because… Read More

elizabeth-gerber
CBD oil *

I was wondering if anyone has decided to trade in the DMD for CBD oil? I have tried almost every treatment and was now put on Ocrevus. Was on Tysabri for 9 years until I developed an allergic reaction. Had no new activity for those 9 years. I don’t want to continue on Ocrevus because of potential side effects… Read More

4intruders
what helps your MS pain. please help

I've recently been diagnosed with ms. This last week has been unbearable. My left arm is in so much pain that it feels as if all my joints in my fingers and elbow are broken. It burns and itches so much. I can't sleep because the pain is so extreme. Heat and cold things agitate it. I'm usually fine with most… Read More

johnsolo65

My brother is wheelchair-bound and was initially diagnosed as having ADEM, and now 15 years later as MS. His new doctor wants an MRI to see how it compares to the one he initially had so long ago.  Unfortunately he cannot lie flat on his back because his legs can't stretch out straight and they constantly spasm… Read More

katcal16
PPMS and alternative treatments*

I am curious to know if anyone with PPMS has used the drug Ibudilast (Ibudilast, AV-411, MN-166, Ketas, Pinatos, Eyevinal)    off label as a treatment for PPMS.  I thought surely in one of these groups a simple search would turn up at least a few people mentioning this drug, as trials and studies seem to be… Read More

Rich1007
Robotic exoskeletons - so cool

Anybody ever had or used one of these?  The possibilities are so exciting. What is taking them so long to bring them to market for the masses and why in the world are they so expensive (geesh...for $150K US you could buy a house )????   Imagine being able to go up and down stairs again or walk on uneven… Read More

Charity
Stem Cell*

I am currently trying to find someone who successfully received stem cell treatment! I am interested in getting them sell myself. So... * where did you get it done and through who? * when did you have it done and how well has it worked for you? * whatever information I can get, I am very, very, very… Read More

skyking0423
Need feedback and advice on Ocrevus*

Hello My mother is 62, had MS since mid 20's, and has relapsing MS. She was on copaxone for years, did good, then stopped taking it saying she didn't need it anymore, then it relapsed. She started it again, but unsure if she was taking it long enough or consistant. Her neurologist wants her to try Ocrevus.  In… Read More

justdiagnosed
Hi folks I’m on tysabri *

Whenever I google ms i  keep reading a alphabet of supplements people take and I’ve got no idea where to start I take a vitamin d oral spray once a day and that’s pretty much it can you guys list out what you take daily and discuss any benefits etc  Cheers  Read More

nisaeln
Medical Marijuana*

Hello, I am curious if anyone here has been actively using medical marijuana to help with their symptoms of MS? I have been having lots of muscle spams and was thinking about trying out medical marijuana whether it is the THC side or the CBD side. Just wanted to get some feedback from others.  Thanks :) Read More

kwhalen88
This sucks*

Hi everyone, this is so hard for me. I hate the new change in my entire life that recently happened 2 months ago. I all the sudden had right facial numbess, right arm/hand numbness and writing difficulty, and a hard time expressing things as quicking as I wanted to verbally. So, I went to my primary and I… Read More

sailing12
secondary ms*

I have Secondary Progressive MS. Haven't been able to walk for several years. My neurologist doesn't want to put me on any medications at this time. She said they're too dangerous, and feels the current injectables will not help. All this is extremely depressing.  It's taking forever!!! Is anyone on anything… Read More

linda-blessed525
MS meds generics*

hwllo,  I am looking for feedback from people wo have hadmto zwitch to a generic drug since many insurance companies are making people switch  I had been on copaxone for 11 years with no exacerbations. Thanks so much Read More