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Treating MS

Joani
Ampyra*

Why should I take Ampyra is my balance and coordinaiton are already very unstable?  Two of the side effects are dizziness and impaired balance.  When I asked my specialist what could help with wlking, he suggested Ampyra knowing I have extreme balance and coordination issues.  We also talked about an AFO for… Read More

lucci6
Gilenya - weight gain*

I've been on Gilenya for a few years and have experienced weight gain - especially in the stomach and hips. I increased expercise and decreased calorie intake to no avail. Has anyone else experienced similar side effects? Read More

CoCoJes
Alternatives to Tecfidera*

Hi, my Nuerologist has prescribed Tecfidera  for me for the last few years. I recently had a baby and haven't taken MS medicine since I found out I was pregnant but will soon go back to him once I have stopped breast feeding. Tecfidera costs $7000 a month and forces my husband to carry the most expensive… Read More

lui81089
Tecfidera *

Hello. I am hoping to start this treatment pretty soon. It will be around the same time I start a new job. What symptoms should I be aware of? If I'm not mistaken you ake one pill in the morning and one at night. How long before symptoms subside? Read More

katcal16
PPMS and alternative treatments*

I am curious to know if anyone with PPMS has used the drug Ibudilast (Ibudilast, AV-411, MN-166, Ketas, Pinatos, Eyevinal)    off label as a treatment for PPMS.  I thought surely in one of these groups a simple search would turn up at least a few people mentioning this drug, as trials and studies seem to be… Read More

echobird
Doctor says meds can cause cancer*

Hi I recently asked my neurologists about changing meds because of getting worse. And she told me she didn't want to because the other meds can cause cancer. My problem is that my symptoms have gotten worse. I keep having falls lose feeling or from spasisty in my legs. Generally I start semi ok after doing some… Read More

DeeDee
Autoimmune Diet*

Hi! My hormone doctor (not my MS doctor) has insisted that I follow the very restrictive AIP diet, (autoimmune diet). She swears that most foods are attacking my gut and making my MS worse. It is crazy restrictive and eliminates all dairy, grains, nuts, seeds, nightshades, sugars of any kind, eggs, etc. The… Read More

jenlric
Drugs or no drugs *

Hey Everyone    So this is my first post on any website forum about MS but I figured it might be the best place for suggestions or answers. I visited my neurologist recently and he said as my MRI concerns him that I should consider taking medication for my MS to stop future attacks. Now I'm more of a person… Read More

ashlilavois
Ocrevus vs. Tecfidera *

Hello,  I was diagnosed with MS in February 2019. I began taking Gilenya in May but it was not a good fit. Gilenya was causing anxiety on things that I would do on a daily basis. I stopped taking it about a month ago. My MS doctor gave me two options - ocrevus or tecfidera.  Has anyone else taken either… Read More

dals92
MAYZENT*

I was diagnosed a month ago at 26. The 2 drugs we decided on was either Gilenya or Mayzent which is the new drug that came out in March/April 2019. I think they’d prefer me use Mayzent because it supposedly works the same as Gilenya, but less side effects. I’m very skeptical about medications in general due to… Read More

rweiss789
Gilenya & Low Lymphocyte Count*

I was diagnosed with MS this past February. I started taking Gilenya in April. After about 2 months on Gilenya I had labs done and my doctors noticed a drop in my lymphocyte count which is what they were expecting. Fast-forward to about 6 months on Gilenya. I just had labs done again and my lymphocyte count… Read More

Colorado
Hopeful MS cure

I recently just got back from NY where I joined a study being done by Dr. Raymond Damadian (original inventor of the MRI) and Dr. Scott Rosa.  Dr.Damadian thinks he has identified the cause of MS.  He feels it is the result  of damage done as a result of head or neck trauma causing blockage of the flow of CSF… Read More

LFish

Good evening, everyone. I'm newly diagnosed and new to this chat room. Thank you in advance for your input and support. You all understand, and I'm grateful. I started self-injecting glatiramer acetate (a generic form of Copaxone) about 6 weeks ago. The first few weeks I experienced no bad side effects, but for… Read More

boisenberry73
Buspar for anxiety*

Hi,  I think I have had anxiety/ADHD my entire  life  but currently it is unbearable. I may be going through a relapse which I’ll ask about in another thread but is anyone taking Buspar for anxiety which my dr prescribed? My thoughts are racing, cant think clearly, heart racing, lump in throat, can’t get… Read More

cynburris
MY Anxiety Remedy :)*

No doubt, anxiety and emotions have been a big hurdle.  That said, what works for me is diamond painting.  That might sound random, but it's true.  The act of being so focused on something that anxiety fades without my even noticing.  I highly recommend giving it a try.  It's cheap, and it helps.   Example… Read More

sentientbeing
Anyone Taking Mavenclad? *

I'm about to start treatment for my MS and will be taking a medication called Mavenclad. So far I haven't met anyone else who has been or is taking the drug, even though it's been around in other countries for over fifty years. As far as I know I will be one of the first in the US to take the medication because… Read More