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Treating MS

caroline-peer
Switching from Avonex to Tecfidera *

I've been taking avonex now for 11 years and my insurance company decided they wouldn't cover it anymore and I have so much scar tissue from years of injections  So I've switched to tecfidera recently. I thought I'd be so much happier without the injections but taking pills twice a day with gastro side effects… Read More

dawn87
Copaxone and hot weather.

I'm on my second week with the medication and it really stings just wondering if that is normal? Would applying heat or cold to the area I'm going to inject? If so which one? Also we have really hot weather for the past week or so but it's been really hot today and yesterday and I have noticed my symtoms are… Read More

dawn87
Copaxone and hot weather. *

I'm on my second week with the medication and it really stings just wondering if that is normal? Would applying heat or cold to the area I'm going to inject? If so which one? Also we have really hot weather for the past week or so but it's been really hot today and yesterday and I have noticed my symtoms are… Read More

AbbyR
Aubagio vs Copaxone? *

Hi all, I was diagnosed with MS on June 1, 2020. Fortunately, I don't have any physical symptoms. My diagnosis came from MRI images which show another lesion within 6 months. My doctor wants to start me on a treatment of Copaxone or Aubagio. I've read the side effects for Aubagio which are concerning but… Read More

FuzzyBoots

I've been feeling like my (relatively light) MS symptoms have been ramping back up recently, but the pandemic has made me hesitant to temporarily knock-out my immune system with steroid infusions unless absolutely necessary.  Any insight to share about how long the immunocompromise from steroids tends to last? … Read More

SmartyPants

Getting MS has been one of the best things that happened to me, no really. I was working 16 hrs a day at my life work helping people with disabilities live alone in their own apartments, I was an outreach worker helping them with a myriad of tasks, shopping, banking, advocacy, problem-solving, crisis… Read More

Avatar
Webinar on a new technology to treat MS*

Dear MS Connection members, I would like to inform you about patient >record, a new technology to remotely treat patients with Multiple Sclerosis and Parkinsons's Disease. We will have a webinar about it for medical doctors on 3rd of June. Details and registration is available at this facebook event. As… Read More

ashlieithurburn

If you are between the ages of 18 and 65 years and you have Multiple Sclerosis you may qualify if you: Live near Birmingham, AlabamaCan walk but you have some difficulty, with or without a deviceDo not exercise regularlyHave not had a relapse in the past monthCan commit to train 2 times a week for 16… Read More

feaglesnork
A cap on Biogen's co-pay assisstance?*

I was diagnosed with RRMS on March 10th and have been dealing with symptoms for months, finally reuslting in a hospital stay a couple weeks ago. I'm freaking out about medication costs since I'm currently not working and have low level, healthcare marketplace (still $375 a month) private insurance. My plan… Read More

sh0eicide
Aubagio*

Hi everyone! newly diagnosed MS on May 1st 2020. my doctor has prescribed me 14mg Aubagio. Reading the side effects has me a little scared. I would like to hear anyone experience with this medicine. Good or bad. please and thank you 🙏🏽  Read More

eileennellie
Ocrevus?*

Hi, I am 40 yo female, diagnosed 9 years ago. Hadn't had any relapses since my initial one, been on medications until 3/2017, when I decided to have a baby. Was breastfeeding 2/2020, had to stop to take steroids to help with relapse. So now I am waiting for approval for Ocrevus, but in light of the Corona issue… Read More

izzy222
Helpful vitamins*

Hey everyone, hope everyone is doing well and staying inside. I was wondering if anyone had tips on what kind of vitamins to take to help with MS. I currently only take vitamin D, iron, and a swig of apple cider vinegar everyday. I've heard some good things about CBD oil and was wondering if anyone had tried… Read More

cntryg1rl
Cymbalta for Arm pain, guidance needed*

Has anyone on here taken Cymbalta to help with pain in their arms (or anywhere I guess)?  Did you also have EXTREME exhaustion with it? I was so tired all the time, I could barely function. So, I told my dr that I wanted to get off of it and I am almost there, had to step down slowly, but now I am in a extreme… Read More

danielle83
Hair loss*

Hi everyone, I was diagnosed with RRMS in march of 2017. After starting Tecfidra I started to have excessive hair loss once starting the 240mg dose. I have tried taking biotin and zinc but it has not helped. I see hair loss as a side effect in forums but no real answers. Has anyone found an answer to this… Read More

sdoerffler
Hair Loss and Techfidera *

Been on Techfidera for 4 years now. The hair loss is almost intolerable. I don't need haircuts anymore since my hair doesn't grow. It's so frizzy and weak, I look like I put my finger in a light socket.  Wanted to share this in case anyone else has experienced this. I also still experience flushing every so… Read More

feaglesnork
Steroid treatment timetable? *

I've not been officially diagnosed yet, however, I have active lesions on the brain and spine and visited a neurologist two days ago. As is the case for some, my journey to MS has been a long one (first attack was 18 years ago, second started over a month ago and is still kickin), so I'll spare the intricacies.… Read More