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Treating MS

lillivonshtupp
Ampyra causing pain*

Hello I’m new here but have had MS for 10 years. I had 3 spots for most of that time. 1 spot was in the pain & sentivity part of course, so I have Shingle type pain on most of my body. My left side is mimicking the pain on the right so I’m hypersensitive to touch. Cold is extra hellish & if you ever want… Read More

stevebos2000
injection of Brabio pain*

I injected Brabio using the applicator pen into right thigh ( had done this twice before - no symptoms) and immediately had extreme pain shoot down my right outside of thigh. Has continued for a week now, feels like a very sharp - pulling pain extremely painful. GP believes I have injected into nerve. Anyone… Read More

jenlric
Drugs or no drugs *

Hey Everyone    So this is my first post on any website forum about MS but I figured it might be the best place for suggestions or answers. I visited my neurologist recently and he said as my MRI concerns him that I should consider taking medication for my MS to stop future attacks. Now I'm more of a person… Read More

schnejm
CBD and THC oil?*

Has anyone found the use of cannabis THC concentrate oil or CBD concentrate oil helpful for MS or spasticity? When I say oil I'm referring to the type made by Rick Simpson. This oil is 95% THC and is black and relatively like toothpaste. Also with the advent of CBD oils becoming legal in all 50 states, they… Read More

jenngarri
Gilenya *

Hi Guys, I am new to this MS thing!! I was diagnosed in mid Sept and have been on Gilenya for 29 days. I honestly feel worse now before I was on meds. The new thing is lower back pain. It is like a stinging sensation that goes down my left leg. And I am also having neck soreness. Also sensory issues in both… Read More

t_Berry
food that's good for MS*

I was disgnosed in 1997 with MS.  I'm looking for a good diet.  I want to know if anyone have a good idea for a better eating habit.  I want to know what's the best food that's good for people living with MS.  I don't drink a lot of sodas, I do love sweets and salty food.  Neither one is good.  I'm just… Read More

lui81089
Tecfidera *

Hello. I am hoping to start this treatment pretty soon. It will be around the same time I start a new job. What symptoms should I be aware of? If I'm not mistaken you ake one pill in the morning and one at night. How long before symptoms subside? Read More

j5796
Wahls diet *

Has anyone tried the Wahls protocol diet and did it work?? She basically cured her MS, which she was in a wheelchair, just with diet? Has anyone read her book and tried her approach? Read More

echobird
Doctor says meds can cause cancer*

Hi I recently asked my neurologists about changing meds because of getting worse. And she told me she didn't want to because the other meds can cause cancer. My problem is that my symptoms have gotten worse. I keep having falls lose feeling or from spasisty in my legs. Generally I start semi ok after doing some… Read More

meme5150
looking for a GOOD dr. who can help*

I live near the west palm beach area of Florida and have not been able to find a doctor who is willing to look into my symptoms.  I have had a few neurosurgeons who treat me for a herniation tell me my symptoms are unrelated to the herniation but it sounds like MS.  I have an mri that shows a lesion but have… Read More

johni619
Long term medication (Rituxan)*

This is new to me and very surreal. I was first diagnosed in 2017 but shortly after became pregnant so my symptoms never were life changing. Recently I had two episodes which hospitalized me for weeks at time and realized that this was something serious. When I was first diagnosed they prescribed me tecfidera… Read More

PrincessD
Hey it’s me again lol*

Well i Am finally home now ! i have completed my Plasmapheresis treatments & i do feel like they helped a lot with my lesions. The only thing that has been getting me down is my left arm. It's still very weak & with little to no coordination. It's not my dominant arm but it still a challenge getting it back to… Read More

PrincessD
update on how things are going .*

I appreciate all the kind words i've been receiving ❤️ ! This is still just so unreal to me , it's crazy. Well Today october 28th will be my last day in the hospital hopefully for a long time.  i've admitted 3 separate times this month all related to MS. This time i've been here going through that… Read More

CoCoJes
Alternatives to Tecfidera*

Hi, my Nuerologist has prescribed Tecfidera  for me for the last few years. I recently had a baby and haven't taken MS medicine since I found out I was pregnant but will soon go back to him once I have stopped breast feeding. Tecfidera costs $7000 a month and forces my husband to carry the most expensive… Read More

Joani
Ampyra*

Why should I take Ampyra is my balance and coordinaiton are already very unstable?  Two of the side effects are dizziness and impaired balance.  When I asked my specialist what could help with wlking, he suggested Ampyra knowing I have extreme balance and coordination issues.  We also talked about an AFO for… Read More

lucci6
Gilenya - weight gain*

I've been on Gilenya for a few years and have experienced weight gain - especially in the stomach and hips. I increased expercise and decreased calorie intake to no avail. Has anyone else experienced similar side effects? Read More

DeeDee
Autoimmune Diet*

Hi! My hormone doctor (not my MS doctor) has insisted that I follow the very restrictive AIP diet, (autoimmune diet). She swears that most foods are attacking my gut and making my MS worse. It is crazy restrictive and eliminates all dairy, grains, nuts, seeds, nightshades, sugars of any kind, eggs, etc. The… Read More