MS Connection

Hello everyone, Copaxone and the generics has been my first and only DMD I have tried since the beginning of my diagnosis. When I was on Copaxone I had no problems at all. Then switched to generics and get REALLY bad side effects. It happens seconds after I inject I get heart pounding rapidly and flushing. I've… Read More

Hello, I've been on Copaxone for almost 20 years. Had a hiccup about 10 years ago where I had to go on rebif -but it didn't agree with me. After being on rebif for 7 months, my liver enzymes went up, so I went off it, felt better and have been on Copaxone now for 10 years. Recently I have been experiencing an… Read More

Hi there! I'm new here. 35 year old F, currently diagnosed with Benign MS. The last time I was severely affected was when I could barley walk and my entire left side was completely numb. That was back in 2011. Fast forward to today. I've never been on any medications for my MS. I manage my symptoms the best I… Read More

I'm about to start treatment for my MS and will be taking a medication called Mavenclad. So far I haven't met anyone else who has been or is taking the drug, even though it's been around in other countries for over fifty years. As far as I know I will be one of the first in the US to take the medication because… Read More

hi, has anyone of the group switched the injectable medication to the oral med?? I’m on rebif for more than 14 years and i want to switch to the oral one , what do you advise me ?  Read More

I've been on rebif for about 2 years now , ever since I've never gotten any other symptom except for fatigue ..I know I should be happy but I find myself just scared and waiting for my next relapse ... are there times where you don't get any symptoms for years? Read More

Diagnosed 6 months ago. Looking for others that are taking Tysabri and can share their experience.....daily side effects, when did you begin seeing improvements and help with exacerbation vs relapse.  I have paraesthesia in my hands & spasticity in my forearms with altered sensation in random areas of my body.… Read More

I was diagnosed a month ago at 26. The 2 drugs we decided on was either Gilenya or Mayzent which is the new drug that came out in March/April 2019. I think they’d prefer me use Mayzent because it supposedly works the same as Gilenya, but less side effects. I’m very skeptical about medications in general due to… Read More

Are there people out there that are on Rebif?  All the posts are old on Rebif, so I am curious if most people have left this drug for the newer drugs.  I have been on Rebif for 16 yrs. Read More

ooops, just saw all of mispells on the prior post I placed asking about the generic MS drugs. Sorry.  (never did take typing:)) Read More

Today i having been crying for an hour. I am not sure what to do I am realy scared about the pml risk of the medication and thinking I may not do any treatment. My doc is not realy hearing me out and I am so scared. I have not been test for the jc virus I feel.like I need to before I do any treatment. I am at… Read More

New symptoms have had my doctor recommend new treatment of aubagio Can anyone share their experiences with this MS med whether good or bad. The effects I read about this medicine are frightening to me Looking for personal experiences before starting this med Read More

I was diagnosed on 1/2/20. I did three days in the hospital on steroid iv to calm down my flare up. I met the nuerimmungle today and was told I have mild case for now and they caught it early. I did not need a lumbar puncture done. I am worried about the oral medication and the side effects and possibly getting… Read More

Just wondering as I can't see new posts regarding this but I would love to hear how you are doing on Tecfidera all of the old posts all seem negative Thanks Mel Read More

Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

Food for thought by Jennifer HoffmanEach situation in your life exists for your spiritual growth and evolution and when you are ready to acknowledge the wisdom with which you organize the scenarios of your life, you will learn to love each situation. Then you can become aware of its lessons, know and learn them… Read More

Hello everyone, are any of you on Glatopa? Insurance is making me switch to a generic. Can you share with me your experience with this med please and thank you:) Read More

Hi all. I’m wondering if anyone had experienced severe body aches/chills/chattering teeth from glatiramer acetate or copaxone. I’ve been on the medication about 6 months and have recently begun having extreme reactions to the medicine. My doctor has not offered me any helpful suggestions on how to prevent… Read More

Hi friends, I see this has been addressed before but several years ago so I wanted to start a new thread. I was diagnosed with MS last week and have been experiencing extreme pressure in the head, behind eyes, nose and ears for months as well as dizzyness that doesn't let up! My neuro and GP are away and I'm… Read More

Is it ok to take my Betaseron injection if I am already felling like $.02? :) I caught a cold from my three children. I feel terrible. Read More