MS Connection

i've taken 76 injections of tysabri, recently jc virus showed positive about 4.08. can i know the next step? Read More

https://www.mscare.org/page/DMTThis is not intended to be medical advice but is for info only... I just ran across a new publication by the Consortium of MS Centers which is a non profit in New Jersey.  I thought I would post this link since there are several conversations going on this site about choosing a… Read More

Hi,  My name is Jessica, and I am 31 years old. I was diagnosed with MS in October of 2016. After I had my first son in March of 2016, around June I started waking up with double vision that lasted about a 3-4 days. A few weeks later went to the ER, which prompted an appt. with a neuro, and then was given my… Read More

Does anyone else have this same issue of trusting a new doctor or doctors in general when speaking about what is wrong or symptoms that you are concerned about?  I seem to always to have this problem, especially with new doctors.  I now am on my 5th neurologist due to re-locations and change of specialty from… Read More

anyone have any luck fighting MS  the natural way through diet and supplements and without DMD??  Just would like to know if there is anyway I can fight this without the MS drugs? Read More

Has anyone tried the Wahls protocol diet and did it work?? She basically cured her MS, which she was in a wheelchair, just with diet? Has anyone read her book and tried her approach? Read More

can anyone share what MS drugs they are on. Looking for the best one with the least side effects that’s going to keep my relapses down.  Read More

I just started Copaxone injections 2 weeks ago, and have been doing great except for a daily increase in body aches and new pains that weren't there before!  This is not listed as a 'side effect' of the drug, nor have I seen anyone else mention having this problem.  Now I have a very painful right knee (when… Read More

I was just wondering if anyone else has tried using Plexus instead of the traditional medicines that the doctors want to give. I have always been a holistic kind of person and have had a hard time accepting that I would have to take medicine for the rest of my life since my diagnosis. I started taking the… Read More

Dear all, I have been recently diagnosed with PPMS and during the past months I have been trying to get used to the worsening symptoms, trying to learn how to live with the disease. I have also been looking for some information on possible future treatments, on stem cell therapies in particular. I run into a… Read More

Has anyone tried low dose naltrexone? It’s an Off label medication that I guess works wonders for MS or any autoimmune disease? It was recommended to me and I was just wondering if anyone has tried it and had any luck?  Read More

I've been on Gilenya for a few years and have experienced weight gain - especially in the stomach and hips. I increased expercise and decreased calorie intake to no avail. Has anyone else experienced similar side effects? Read More

I just created an ocrevus group, please join if you're currently on ocrevus! I'd love to hear how your experience has been so far. Read More

I  stopped Tysabri infusions after one year (JC pos.) ...my doctor suggested Gilenya, but I am contenplatine not doing any thing? Sigh...any one on Gilenya, if so how were the side effects? BkBoo Read More

Hey guys. My partner of 9 years was recently diagnosed with MS. We're both 27 years old and of course a little worried and scared and don't know where to go from here.  Alicia's doctor has prescribed her copax injections. The 40mg 3x a week. I'm curious if anyone has any advice about copax. What was your… Read More

Hi there, Along with your MS, do you also have an ileostomy - maybe due to past Ulcerative Colitis - and have tried or are using Dalfampridine (or its brand name, Ampyra)?   If so, I need your feedback because... That's me!  I started Dalfampridine around the first of the month. The trouble, though, is that 4… Read More

?s, I do check with drs, Splists,on meds but I would appreciate MSers opinions. 1. On rituximab (3rd infusion) 6mos 8mos 10mos (felt 8mos should be limit) Anyone else on rituximab, how long and whats next? Anyone taking LDN and rituximab? 2) blood test showed no longer immune to Hep A or B (and liver… Read More

So I was diagnosed with MS back in February after having a limp in my walk and really bad slurred speech. I was given IV steroids for 3 days and oral steroids for two days. Since then, both my walk and my speech returned to "normal". For all of March, I felt good. Then around the beginning of April, I had what… Read More

Ok, so it's 11pm where I'm at and I cannot sleep. I was just diagnosed with RMS in February this year and after some careful thought, I chose to start with aggressive treatments to better my chances of slowing the disease progression. I start Ocrevus this Friday the 19th but keep thinking about all the possible… Read More

https://www.youtube.com/watch?time_continue=297&v=I4L4bJGcShII had the privilege to attend a lecture of Cornell West this last Friday in Eugene Oregon's Univerity of Oregon. He was a mighty force, As he spreads his unique ways to become more human, to become more loving of each other.This is a video of him… Read More