MS Connection

Getting MS has been one of the best things that happened to me, no really. I was working 16 hrs a day at my life work helping people with disabilities live alone in their own apartments, I was an outreach worker helping them with a myriad of tasks, shopping, banking, advocacy, problem-solving, crisis… Read More

Dear MS Connection members, I would like to inform you about patient >record, a new technology to remotely treat patients with Multiple Sclerosis and Parkinsons's Disease. We will have a webinar about it for medical doctors on 3rd of June. Details and registration is available at this facebook event. As… Read More

Anyone hear of or try the Taopatch to help with balance? Read More

If you are between the ages of 18 and 65 years and you have Multiple Sclerosis you may qualify if you: Live near Birmingham, AlabamaCan walk but you have some difficulty, with or without a deviceDo not exercise regularlyHave not had a relapse in the past monthCan commit to train 2 times a week for 16… Read More

I was diagnosed with RRMS on March 10th and have been dealing with symptoms for months, finally reuslting in a hospital stay a couple weeks ago. I'm freaking out about medication costs since I'm currently not working and have low level, healthcare marketplace (still $375 a month) private insurance. My plan… Read More

Anyone know of a great MS Specialist in Illinois for new patients? Read More

Hi everyone! newly diagnosed MS on May 1st 2020. my doctor has prescribed me 14mg Aubagio. Reading the side effects has me a little scared. I would like to hear anyone experience with this medicine. Good or bad. please and thank you 🙏🏽  Read More

Hello all! I'm new here and searching for recommmendations for a Neurologist or MS specialist in Dallas that you recommmend. Please share! Thanks in advance everyone! :) Read More

Hi, I am 40 yo female, diagnosed 9 years ago. Hadn't had any relapses since my initial one, been on medications until 3/2017, when I decided to have a baby. Was breastfeeding 2/2020, had to stop to take steroids to help with relapse. So now I am waiting for approval for Ocrevus, but in light of the Corona issue… Read More

I never had fatigue as a symptom for my MS. Is it a Coincidence that I'm two weeks into starting Vumerity and having extreme fatigue?  Read More

Hey everyone, hope everyone is doing well and staying inside. I was wondering if anyone had tips on what kind of vitamins to take to help with MS. I currently only take vitamin D, iron, and a swig of apple cider vinegar everyday. I've heard some good things about CBD oil and was wondering if anyone had tried… Read More

Has anyone on here taken Cymbalta to help with pain in their arms (or anywhere I guess)?  Did you also have EXTREME exhaustion with it? I was so tired all the time, I could barely function. So, I told my dr that I wanted to get off of it and I am almost there, had to step down slowly, but now I am in a extreme… Read More

Hi everyone, I was diagnosed with RRMS in march of 2017. After starting Tecfidra I started to have excessive hair loss once starting the 240mg dose. I have tried taking biotin and zinc but it has not helped. I see hair loss as a side effect in forums but no real answers. Has anyone found an answer to this… Read More

Been on Techfidera for 4 years now. The hair loss is almost intolerable. I don't need haircuts anymore since my hair doesn't grow. It's so frizzy and weak, I look like I put my finger in a light socket.  Wanted to share this in case anyone else has experienced this. I also still experience flushing every so… Read More

I've not been officially diagnosed yet, however, I have active lesions on the brain and spine and visited a neurologist two days ago. As is the case for some, my journey to MS has been a long one (first attack was 18 years ago, second started over a month ago and is still kickin), so I'll spare the intricacies.… Read More

I was on Copaxone for over 10 years and my insurance will no longer pay for it. I have been switched to the generic form. I have developed a churning stomach at about the same time I went to the generic. I have had cat scan, endoscopy and nothing is showing up. Is it possible that it is the generic form causing… Read More

Hi friends, I see this has been addressed before but several years ago so I wanted to start a new thread. I was diagnosed with MS last week and have been experiencing extreme pressure in the head, behind eyes, nose and ears for months as well as dizzyness that doesn't let up! My neuro and GP are away and I'm… Read More

Sometimes when i walk over apprx 1km,i lose strenth on the right Leg, i sometimes limpis there vitamins i should be taking ?Magnisium doesn't work . Thanks Chris Read More

I've been on rebif for about 2 years now , ever since I've never gotten any other symptom except for fatigue ..I know I should be happy but I find myself just scared and waiting for my next relapse ... are there times where you don't get any symptoms for years? Read More

Hello everyone, Copaxone and the generics has been my first and only DMD I have tried since the beginning of my diagnosis. When I was on Copaxone I had no problems at all. Then switched to generics and get REALLY bad side effects. It happens seconds after I inject I get heart pounding rapidly and flushing. I've… Read More