MS Connection

My neurologist wants me to start Aubagio. Anyone with any experience with Aubagio? Side effects? How lomng do they last? Read More

Hello everyone,I'm a student at the University of Florida conducting research on the treatment of neurological diseases. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5 minutes to complete and can be previewed… Read More

New to Nuedexta I have just been put on Nuedexta, for MS of course but not really sure what is being targeted Neuro said it will supress spontaneous laughing and crying, which I do not have. Also will help with depression and cognitive problems, which I also think I do not have too much problem with. To add… Read More

I recently had to go to the ER again on April 25th because I could not get my pain under control and my neurologist told me to go there to get the pain under control because obviously I was having a flare up and we had already tried the steroids.  Again, yeah again, I was told by 2 different ER doctors that MS… Read More

My husband was diagnosed with MS in 1999. He was originally diagnosed with Relapsing Remitting but now they call it Secondary Progressive. Over the years we have had some of the very best neurologists but one moved to another city and the other just retired. The office my husband was going to no longer… Read More

I recently received a diagnosis of Ms but neurologist wants to wait 6 months do another MRI before starting treatment.  A little background I have a few lesions on my brain, positive spinal tap and smaller lesions on thoracic MRI ( neck area) can't really say I had a relapse for sure cause I suffered heat… Read More

I am a neuly diagnosed MS, but my MS is apparently several years old. My biggest problem is optic neuritis. I need to select a treatment ASAP and would appreciate the experience of those who suffer from optic neuritis. Which treatment(s) have you tried? Read More

Well I have been diagnoste with MS after 4 MRI's and a spinal tap. the doctor has sent me the names of 4 different drugs and has asked that I research them before we sit down and determine the best procedure to follow for my situation. Tables:  Gilenya,  Tecfidera Infusions:  Ocrevus,  Tysabri Any experience… Read More

Has anyone had surgery for something unrealated to ms I've got to have surgery on my arm and was just wondering if there are any concerns I am going to talk with surgeon about it but got diagnosed after last visit and this is all new  Read More

I am currently on week 6 of Rebif therapy. I tolerated the titration pack ok, but since starting the 44mcg, I have experienced low grade fevers, body aches, chills, and worsening headaches. I have tried giving myself motrin before my doses, and taking my doses at bedtime, but it does not seem to help. I am… Read More

Hello-  I don’t know if anyone will see this or respond to it, I’m unsure of how this site works.  My name is Amy, I was diagnosed with MS two years ago but am only now able to start treatment related to multiple pregnancies. My doctor has prescribed low dose Copaxone injections 3x/week. He said this was a… Read More

OK. So I do not normally contribute to blogs, discussion, conversations etc. as I fall firmly into the "lurker" category. However, I do check out this site often and have appreciated everyone else's contributions. So why contribute now?  The reason I am typing now is in about 4hrs I am going for my first… Read More

if someone had melanoma cancer, no treatment prescribed just removal of the cancer. Still haven’t been 5 years cancer free, actually still doing CT scans on lungs and  pancreas. Haven’t completed the 4 month test to see if spots grew. Would I be required to have a whole body scan to make sure I’m completely… Read More

I've just moved to Lindon, UT and am needing to get established with a new MS Specialist in the Salt Lake City area. Would appreciate suggestions on who to see. Who is your favorite MS doctor? Thank you!   Read More

I've been taking Copxone since late November so I know it hurts, but last night was b-a-d. The past 2 injections (including last night) were leg days. The first one, I used the autoject for and it was more painful, and bled a bit more than my normal. Then last night, I injected the other leg manually thinking… Read More

my mom really needs tendon release surgery in both legs to avoid possible am*****tion the doctors by me in Orange County Ny won't do it does anyone know who would do this for her? Can travel to nyc TIA Read More

Hello all! So I was diagnosed on April 30, 2018 and was put on medication in Mid-June. Since then I have started my now 3rd medication due to being allergic to the first two. I now fell I may be allergic to this one but may not know yet until next week when I do my first full injection. So here it is; I just… Read More

I was recently diagnosed and because of the amount of lesions in my cervical spine, my doctor is recommending an aggressive treatment. She told me her top two choices are ocrevus and tysabri. I've done a decent amount of research and am leaning towards tysabri. However, I just talked to a friend who has had MS… Read More

Hi, I got my rituxin infusion on December 27th I noticed a few days after I have a bruise on my inner ankle and it hurts when I push in the bone. It also has been swelling. I went to the doctor and they ruled out things they think it could be. I’m at a lose and am not sure if this is a side effect of rituxin… Read More

If so what do you take? My neurologist doesn't believe in pain medicine.  I'm seriously thinking of going to another doctor.  I was really hurting all over Friday it was the first time I felt that bad. My hands and back and all over was just aching. I laid down and finally went to sleep. But all I have is… Read More