MS Connection

Hi - I have been on ReBiff for many years and it may have become ineffective so the Dr. suggested Aubiago.  I seeking comments anyone who may have good or bad experience with Aubiago.  How bad were the side affects and did the medication seem to work? Thanks, Lisa Read More

Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

I just learned that I probably have MS. The neurologist wants me to start Copaxone once she feels really confident about the diagnosis. Do you have tips on avoiding Lipoatrophy? Also, I’m worried about injection rotation because I fear my stomach is unusable due to all my stretch marks, and I won’t have… Read More

can anyone share what MS drugs they are on. Looking for the best one with the least side effects that’s going to keep my relapses down.  Read More

I have developed optic nerve disfunction...probable optic neuritis.  Saw optic neuro yesterday due to increased problems with left eye for 4 days.  Started with SEVERE headache on friday, it was debilitating so I slept most of the day and night after getting done with work.  Over the weekend stayed positive and… Read More

I was wondering if someone was suffering from muscle atrophy in their legs or arms would anabolic steroid therapy help at all?  Or would it not help because someone with MS would process the steroid differently? I'm already on Androgel for low testosterone that comes and goes... it's been at 200 at times and… Read More

I'm about to start treatment for my MS and will be taking a medication called Mavenclad. So far I haven't met anyone else who has been or is taking the drug, even though it's been around in other countries for over fifty years. As far as I know I will be one of the first in the US to take the medication because… Read More

I was wondering if anyone has decided to trade in the DMD for CBD oil? I have tried almost every treatment and was now put on Ocrevus. Was on Tysabri for 9 years until I developed an allergic reaction. Had no new activity for those 9 years. I don’t want to continue on Ocrevus because of potential side effects… Read More

I've recently been diagnosed with ms. This last week has been unbearable. My left arm is in so much pain that it feels as if all my joints in my fingers and elbow are broken. It burns and itches so much. I can't sleep because the pain is so extreme. Heat and cold things agitate it. I'm usually fine with most… Read More

My brother is wheelchair-bound and was initially diagnosed as having ADEM, and now 15 years later as MS. His new doctor wants an MRI to see how it compares to the one he initially had so long ago.  Unfortunately he cannot lie flat on his back because his legs can't stretch out straight and they constantly spasm… Read More

I am curious to know if anyone with PPMS has used the drug Ibudilast (Ibudilast, AV-411, MN-166, Ketas, Pinatos, Eyevinal)    off label as a treatment for PPMS.  I thought surely in one of these groups a simple search would turn up at least a few people mentioning this drug, as trials and studies seem to be… Read More

We've made up our minds to do HSCT no matter what. If he gets rejected for the Chicago trials then we are headed to India. It's worth the risk. Kicking MS to the curb. Read More

Anybody ever had or used one of these?  The possibilities are so exciting. What is taking them so long to bring them to market for the masses and why in the world are they so expensive (geesh...for $150K US you could buy a house )????   Imagine being able to go up and down stairs again or walk on uneven… Read More

I am currently trying to find someone who successfully received stem cell treatment! I am interested in getting them sell myself. So... * where did you get it done and through who? * when did you have it done and how well has it worked for you? * whatever information I can get, I am very, very, very… Read More

Hello My mother is 62, had MS since mid 20's, and has relapsing MS. She was on copaxone for years, did good, then stopped taking it saying she didn't need it anymore, then it relapsed. She started it again, but unsure if she was taking it long enough or consistant. Her neurologist wants her to try Ocrevus.  In… Read More

Have any of you heard of the new fda warning about risk of gilenya causing severe disability after stopping the medication?  This makes choosing a treatment so much more difficult considering all the terrible side effects that all these DMDs have.  Read More

Whenever I google ms i  keep reading a alphabet of supplements people take and I’ve got no idea where to start I take a vitamin d oral spray once a day and that’s pretty much it can you guys list out what you take daily and discuss any benefits etc  Cheers  Read More

my mom really needs tendon release surgery in both legs to avoid possible am*****tion the doctors by me in Orange County Ny won't do it does anyone know who would do this for her? Can travel to nyc TIA Read More

Hello, I am curious if anyone here has been actively using medical marijuana to help with their symptoms of MS? I have been having lots of muscle spams and was thinking about trying out medical marijuana whether it is the THC side or the CBD side. Just wanted to get some feedback from others.  Thanks :) Read More

Hi everyone, this is so hard for me. I hate the new change in my entire life that recently happened 2 months ago. I all the sudden had right facial numbess, right arm/hand numbness and writing difficulty, and a hard time expressing things as quicking as I wanted to verbally. So, I went to my primary and I… Read More