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Treating MS

anyone else on Tecfidera ?*

hey everyone ! It’s been a while since I’ve been on here.  since being diagnosed back in April things have been pretty up and down. My doctor had me on copaxone however I needed to be taken off due to an allergic reaction. Now I am on Tecfidera and haven’t had many issues except one of the issues is a rash. Two… Read More

Ocrevus Side Effects *

Hi, I just received my second treatment of Ocrevus for my MS and so far the treatments which are every six months seem to be working ok. However, after each treatment I get horrible stomach aches and such bad muscle cramps in my calf muscles I can barely walk. Does anyone else experience this or anything… Read More


I’ve been hearing a lot recently about stopping medication for MS patients.  I’m only looking for personal opinions and would never do anything without Physician recommendation.  What I’d like to know is if anyone has completely stopped all MS medication, how long it’s been, and how you’re doing?  Also curious… Read More

Retuximab Treatment *

I am looking into taking Retuximab for the treatment of my MS. I was diagnosed with MS 18 years ago. I had a flare last July and did the 3 day steroid treatment. I had always treated my MS with injections (Copaxone and Beteseron). I was told I needed to begin taking a more aggressive drug. My neurologist… Read More

Where should I inject first?*

I'll be starting my injections soon (non brand name copaxone). My doctor wants me to come into her office for training for the first injection. Now I'm trying to decide where I should inject as my first location. I know I'll eventually have to inject everywhere, but I can't think of a place that sounds good… Read More

Immediate post injection reaction*

Yesterday was my shot day. I have been on copaxone 40mg 3/xweek for 1.5 years now. I gave the shot in my right stomach and within seconds, my face was flushed and warm, my chest got tight with heart palpitaions, my lips were itchy, and the whole lower half of my right abdomen was swollen around the injection… Read More

CBD oil *

I was wondering if anyone has decided to trade in the DMD for CBD oil? I have tried almost every treatment and was now put on Ocrevus. Was on Tysabri for 9 years until I developed an allergic reaction. Had no new activity for those 9 years. I don’t want to continue on Ocrevus because of potential side effects… Read More

Copaxone - Should it really hurt???

I just started Copaxone this week and it really hurts once it is in my body. I am not talking about the needle.  I am talking about once the medicine is in my body.  After about 30 seconds after the shot, the medicine starts to really hurt once it is inside.  It is almost like a burning, but there is actual… Read More

Ocrevus. Would anyone know *

if someone had melanoma cancer, no treatment prescribed just removal of the cancer. Still haven’t been 5 years cancer free, actually still doing CT scans on lungs and  pancreas. Haven’t completed the 4 month test to see if spots grew. Would I be required to have a whole body scan to make sure I’m completely… Read More

Gilenya & Low Lymphocyte Count*

I was diagnosed with MS this past February. I started taking Gilenya in April. After about 2 months on Gilenya I had labs done and my doctors noticed a drop in my lymphocyte count which is what they were expecting. Fast-forward to about 6 months on Gilenya. I just had labs done again and my lymphocyte count… Read More

Tysabri and JC Virus *

So I am entering into my fourth year of being on Tysabri as my treatment and it is really helping me, but from what I remember my doctor telling me I will eventually have to probably be put on another treatment, because eventually I will go from JC negative to positive and I wont be able to be on Tysabri… Read More


OK. So I do not normally contribute to blogs, discussion, conversations etc. as I fall firmly into the "lurker" category. However, I do check out this site often and have appreciated everyone else's contributions. So why contribute now?  The reason I am typing now is in about 4hrs I am going for my first… Read More

PPMS and alternative treatments*

I am curious to know if anyone with PPMS has used the drug Ibudilast (Ibudilast, AV-411, MN-166, Ketas, Pinatos, Eyevinal)    off label as a treatment for PPMS.  I thought surely in one of these groups a simple search would turn up at least a few people mentioning this drug, as trials and studies seem to be… Read More

New medication*

I was diagnosed about 2 months ago. I was put on copaxone shots three times a week. Well that medicine made me nauseous all day, every day for an entire month with it only getting worse. I had that along with extreme fatigue where I would spend the weekends sleeping all day long and still not having any energy.… Read More


I'm starting Copaxone injections soon. Do I need to obtain a sharps container, alcohol wipes, warm compress, etc or will those get sent with the medication? I've seen some pics of shared solutions branded stuff.I want to be prepared for my first injection, but I don't want to buy something I won't need. Read More