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Treating MS

sharon-peer
Disease Modifying Therapies*

https://www.mscare.org/page/DMTThis is not intended to be medical advice but is for info only... I just ran across a new publication by the Consortium of MS Centers which is a non profit in New Jersey.  I thought I would post this link since there are several conversations going on this site about choosing a… Read More

qbansponge

Hi,  My name is Jessica, and I am 31 years old. I was diagnosed with MS in October of 2016. After I had my first son in March of 2016, around June I started waking up with double vision that lasted about a 3-4 days. A few weeks later went to the ER, which prompted an appt. with a neuro, and then was given my… Read More

bdonato112
Issue with Trusting in Doctors....*

Does anyone else have this same issue of trusting a new doctor or doctors in general when speaking about what is wrong or symptoms that you are concerned about?  I seem to always to have this problem, especially with new doctors.  I now am on my 5th neurologist due to re-locations and change of specialty from… Read More

j5796
Wahls diet

Has anyone tried the Wahls protocol diet and did it work?? She basically cured her MS, which she was in a wheelchair, just with diet? Has anyone read her book and tried her approach? Read More

kittymomma

I just started Copaxone injections 2 weeks ago, and have been doing great except for a daily increase in body aches and new pains that weren't there before!  This is not listed as a 'side effect' of the drug, nor have I seen anyone else mention having this problem.  Now I have a very painful right knee (when… Read More

gammy32123330
Plexus *

I was just wondering if anyone else has tried using Plexus instead of the traditional medicines that the doctors want to give. I have always been a holistic kind of person and have had a hard time accepting that I would have to take medicine for the rest of my life since my diagnosis. I started taking the… Read More

j5796
off label med*

Has anyone tried low dose naltrexone? It’s an Off label medication that I guess works wonders for MS or any autoimmune disease? It was recommended to me and I was just wondering if anyone has tried it and had any luck?  Read More

lucci6
Gilenya - weight gain*

I've been on Gilenya for a few years and have experienced weight gain - especially in the stomach and hips. I increased expercise and decreased calorie intake to no avail. Has anyone else experienced similar side effects? Read More

Bkboo
Gilenya?

I  stopped Tysabri infusions after one year (JC pos.) ...my doctor suggested Gilenya, but I am contenplatine not doing any thing? Sigh...any one on Gilenya, if so how were the side effects? BkBoo Read More

stephanieschmitt1991
Copax 40mg*

Hey guys. My partner of 9 years was recently diagnosed with MS. We're both 27 years old and of course a little worried and scared and don't know where to go from here.  Alicia's doctor has prescribed her copax injections. The 40mg 3x a week. I'm curious if anyone has any advice about copax. What was your… Read More

l-rand
Ampyra and an Ileostomy*

Hi there, Along with your MS, do you also have an ileostomy - maybe due to past Ulcerative Colitis - and have tried or are using Dalfampridine (or its brand name, Ampyra)?   If so, I need your feedback because... That's me!  I started Dalfampridine around the first of the month. The trouble, though, is that 4… Read More

bryanca4

So I was diagnosed with MS back in February after having a limp in my walk and really bad slurred speech. I was given IV steroids for 3 days and oral steroids for two days. Since then, both my walk and my speech returned to "normal". For all of March, I felt good. Then around the beginning of April, I had what… Read More

LAMchops2019
Terrified...*

Ok, so it's 11pm where I'm at and I cannot sleep. I was just diagnosed with RMS in February this year and after some careful thought, I chose to start with aggressive treatments to better my chances of slowing the disease progression. I start Ocrevus this Friday the 19th but keep thinking about all the possible… Read More