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Treating MS

Mahsa
severe reactions to Copaxone 40 mg *

I have relapsing remitting MS and used Copaxone 20mg since the first day(2013) until I got pregnant and chose to stop the injections. after giving birth I then started using Copaxone 40mg. after a month into injections I had these reactions that started a few minutes after injection with tightening of the chust… Read More

shyla_dejong
Steroids, number of doses? *

my husband in the middle of his 1st MS episode and he has had 5 rounds of IV Steroids and then another MRI showed his lesion had gotten bigger. They then gave him 2 more rounds of IV Steroids and his symptoms finally stopped spreading and he got a little feeling back on his back (numb and tingling from neck… Read More

becca8531
Jcv + and tecfidera*

i have seen a lot of literature and a lot of warnings about these two. I have been on avonex since January 2017. I hate the injections. My legs are permanently bruised. But I had a nasty relapse in October 2017 which left me with permanent weakness in my left leg. Neurologist and I agree it’s a mess fail so I… Read More

cyberpj
Starting then stopping Ampyra

I was on Ampyra for a few months and then had to come off it.  Ampyra helped me to walk faster although not necessarily better --foot drop stayed but energy to lift leg was higher. Anyway, when I came off Ampyra my walking ability was worse than before I started it!  It's been two months off the medication and… Read More

april9517
Lemtrada?*

My neurologist is trying to start a treatment plan that involves Lemtrada and then the years following infusion patients will use copaxone, in which has shown to cut disability and further progression substantially. I have already failed rebif, and another drug. I am just wondering if there are any of you guys… Read More

DR2018
What to Eat?*

I was given a pre diagnosis/ beginning stages diagnosis. They'll be keeping an eye on the foci.  Anyways, I am looking at using diet to treat it until my next appointment.  I don't know which would be best. The Wahls, OMS Diet or if there is another diet? I am a type 2 diabetic. I control it with diet . I'm… Read More

linzg02
Injections of Copaxone*

I have recently started copaxone. I take 40 mg injections three times a weeks. I have plenty of "fleshy" places everywhere that I am supposed to inject except on my hips. If I pinch up insert the needle and release the needle will pull right out. Any suggestions on how to give yourself shots in your hips when… Read More

cantstopwontstop
Aubagio / Tecfidera*

Hey everyone! So with some good news from my neurologist about my lesions and their location, we are hoping this doesnt ever get aggresive God willing, and from a medical stand point. With that being said I have been leaning more towards the treatment of my RRMS with pills before I go right for an inejction… Read More

Cathy1953
baclofen pump

My Dr. has recommended a baclofen pump. I went to hospital for a 3 day test to see if it would work for me. My Dr. thought it was successful and that it would be of benefit to me. I would like to hear from others that have the pump and get their opinions about how it works for them, how difficult or easy it was… Read More

Avatar
Tecfidera*

So I'm kinda freaking out right now. I take two 240mg pills a day. One at 9am and the second 9pm. At around 11:40ish I accidentally took another pill. I had meant to take my other medicine. Has anyone ever done this before? Any did effects? Should I be very concern or am I freaking out over nothing? Read More

cantstopwontstop
Your favorite treatment options?*

I was diagnosed with RRMS in Dec. 2017. I am now approaching the meeting with my neurologist about treatment options, etc. I have a choice of pills and injections. We are all so different so I know two people aren’t alike but I am looking to hear what people like or dislike about either or. All of the side… Read More

LBee
Cytoxan*

I am looking for anyone who has been treated with Cytoxan (chemo). I am scheduled to start it on Feb. 14. I started Rituxan in November and I have had a worsening of symptoms. I'd like to hear about your personal experience with the Cytoxan. Thank you.   Read More

jcpowell08
Copaxone - New Patient*

Hi all, Newly diagnosed with RRMS, and newly started on Copaxone. Each injection I’ve done lately leaves a “knot” whenever I inject. When I first started (about a month - month & a half ago), I wasn’t having this issue. Has this happened to anyone else or does anyone have some insight? All help is appreciated!… Read More

shell_denise
Ocrevus and dandruff*

I just started Ocrevus and have been improving. The only odd thing I noticed is dandruff. Never had this before, at least not like this. Granted, I'll happily exchange my cane for dandruff. ☺ just curious if anyone else has this. Oh and my scalp does not itch. I just have a lot if dandruff. Read More

plaquemom
Copaxone transient chest pain*

hello, I recently stopped copaxone after a year.  I loved the shared solutions program and the drug itself was well tolerated without major side effects EXCEPT about six months after I started I had severe, crushing chest pain.  This happened about once a month and always at night time after lying down.  They… Read More