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Treating MS

arlawgirl
Tecfidera

Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

SmartyPants
Embrace your Evolution*

Food for thought by Jennifer HoffmanEach situation in your life exists for your spiritual growth and evolution and when you are ready to acknowledge the wisdom with which you organize the scenarios of your life, you will learn to love each situation. Then you can become aware of its lessons, know and learn them… Read More

Summer1
Glatopa*

Hello everyone, are any of you on Glatopa? Insurance is making me switch to a generic. Can you share with me your experience with this med please and thank you:) Read More

LFish
Awful side effects of glatiramer acetate*

Hi all. I’m wondering if anyone had experienced severe body aches/chills/chattering teeth from glatiramer acetate or copaxone. I’ve been on the medication about 6 months and have recently begun having extreme reactions to the medicine. My doctor has not offered me any helpful suggestions on how to prevent… Read More

ashlilavois
Ocrevus vs. Tecfidera *

Hello,  I was diagnosed with MS in February 2019. I began taking Gilenya in May but it was not a good fit. Gilenya was causing anxiety on things that I would do on a daily basis. I stopped taking it about a month ago. My MS doctor gave me two options - ocrevus or tecfidera.  Has anyone else taken either… Read More

schnejm
CBD and THC oil?*

Has anyone found the use of cannabis THC concentrate oil or CBD concentrate oil helpful for MS or spasticity? When I say oil I'm referring to the type made by Rick Simpson. This oil is 95% THC and is black and relatively like toothpaste. Also with the advent of CBD oils becoming legal in all 50 states, they… Read More

mds02
Diets*

Hi guys, I'm a high school student researching about MS for an anatomy school project. Recently, I've read and heard from some MS patients about how certain diets can be really helpful with treating MS. I've read about the Best Bet Diet, created by Matt Embry, and it basically describes to stay away from all… Read More

krista32418
MS medication and sperm count *

Hi ..  So my husband was diagnosed with MS in October 2017. Although we know that MS does not prevent a women getting pregnant or prevent a man from being able to reproduce, I am trying to find out if medication will lower sperm count making it hard to get pregnant. My husband is on gilenya and we were told… Read More

kdalderman
Solumedrol Treatment*

This is the second time I've had to get IV treatment for symptoms. I always get 3 days of treatment using Solumedrol. The first time I got treatment back in October I had little to no symptoms afterwards - only a metallic taste in my mouth and fatigue. This time I have been having extreme hot flashes, burning… Read More

lillivonshtupp
Ampyra causing pain*

Hello I’m new here but have had MS for 10 years. I had 3 spots for most of that time. 1 spot was in the pain & sentivity part of course, so I have Shingle type pain on most of my body. My left side is mimicking the pain on the right so I’m hypersensitive to touch. Cold is extra hellish & if you ever want… Read More

jenlric
Drugs or no drugs *

Hey Everyone    So this is my first post on any website forum about MS but I figured it might be the best place for suggestions or answers. I visited my neurologist recently and he said as my MRI concerns him that I should consider taking medication for my MS to stop future attacks. Now I'm more of a person… Read More

stevebos2000
injection of Brabio pain*

I injected Brabio using the applicator pen into right thigh ( had done this twice before - no symptoms) and immediately had extreme pain shoot down my right outside of thigh. Has continued for a week now, feels like a very sharp - pulling pain extremely painful. GP believes I have injected into nerve. Anyone… Read More

echobird
Doctor says meds can cause cancer*

Hi I recently asked my neurologists about changing meds because of getting worse. And she told me she didn't want to because the other meds can cause cancer. My problem is that my symptoms have gotten worse. I keep having falls lose feeling or from spasisty in my legs. Generally I start semi ok after doing some… Read More

johni619
Long term medication (Rituxan)*

This is new to me and very surreal. I was first diagnosed in 2017 but shortly after became pregnant so my symptoms never were life changing. Recently I had two episodes which hospitalized me for weeks at time and realized that this was something serious. When I was first diagnosed they prescribed me tecfidera… Read More

PrincessD
Hey it’s me again lol*

Well i Am finally home now ! i have completed my Plasmapheresis treatments & i do feel like they helped a lot with my lesions. The only thing that has been getting me down is my left arm. It's still very weak & with little to no coordination. It's not my dominant arm but it still a challenge getting it back to… Read More

PrincessD
update on how things are going .*

I appreciate all the kind words i've been receiving ❤️ ! This is still just so unreal to me , it's crazy. Well Today october 28th will be my last day in the hospital hopefully for a long time.  i've admitted 3 separate times this month all related to MS. This time i've been here going through that… Read More

CoCoJes
Alternatives to Tecfidera*

Hi, my Nuerologist has prescribed Tecfidera  for me for the last few years. I recently had a baby and haven't taken MS medicine since I found out I was pregnant but will soon go back to him once I have stopped breast feeding. Tecfidera costs $7000 a month and forces my husband to carry the most expensive… Read More

Joani
Ampyra*

Why should I take Ampyra is my balance and coordinaiton are already very unstable?  Two of the side effects are dizziness and impaired balance.  When I asked my specialist what could help with wlking, he suggested Ampyra knowing I have extreme balance and coordination issues.  We also talked about an AFO for… Read More