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Treating MS

echobird
Doctor says meds can cause cancer*

Hi I recently asked my neurologists about changing meds because of getting worse. And she told me she didn't want to because the other meds can cause cancer. My problem is that my symptoms have gotten worse. I keep having falls lose feeling or from spasisty in my legs. Generally I start semi ok after doing some… Read More

johni619
Long term medication (Rituxan)*

This is new to me and very surreal. I was first diagnosed in 2017 but shortly after became pregnant so my symptoms never were life changing. Recently I had two episodes which hospitalized me for weeks at time and realized that this was something serious. When I was first diagnosed they prescribed me tecfidera… Read More

PrincessD
Hey it’s me again lol*

Well i Am finally home now ! i have completed my Plasmapheresis treatments & i do feel like they helped a lot with my lesions. The only thing that has been getting me down is my left arm. It's still very weak & with little to no coordination. It's not my dominant arm but it still a challenge getting it back to… Read More

PrincessD
update on how things are going .*

I appreciate all the kind words i've been receiving ❤️ ! This is still just so unreal to me , it's crazy. Well Today october 28th will be my last day in the hospital hopefully for a long time.  i've admitted 3 separate times this month all related to MS. This time i've been here going through that… Read More

CoCoJes
Alternatives to Tecfidera*

Hi, my Nuerologist has prescribed Tecfidera  for me for the last few years. I recently had a baby and haven't taken MS medicine since I found out I was pregnant but will soon go back to him once I have stopped breast feeding. Tecfidera costs $7000 a month and forces my husband to carry the most expensive… Read More

Joani
Ampyra*

Why should I take Ampyra is my balance and coordinaiton are already very unstable?  Two of the side effects are dizziness and impaired balance.  When I asked my specialist what could help with wlking, he suggested Ampyra knowing I have extreme balance and coordination issues.  We also talked about an AFO for… Read More

lucci6
Gilenya - weight gain*

I've been on Gilenya for a few years and have experienced weight gain - especially in the stomach and hips. I increased expercise and decreased calorie intake to no avail. Has anyone else experienced similar side effects? Read More

DeeDee
Autoimmune Diet*

Hi! My hormone doctor (not my MS doctor) has insisted that I follow the very restrictive AIP diet, (autoimmune diet). She swears that most foods are attacking my gut and making my MS worse. It is crazy restrictive and eliminates all dairy, grains, nuts, seeds, nightshades, sugars of any kind, eggs, etc. The… Read More

dals92
MAYZENT*

I was diagnosed a month ago at 26. The 2 drugs we decided on was either Gilenya or Mayzent which is the new drug that came out in March/April 2019. I think they’d prefer me use Mayzent because it supposedly works the same as Gilenya, but less side effects. I’m very skeptical about medications in general due to… Read More

Colorado
Hopeful MS cure

I recently just got back from NY where I joined a study being done by Dr. Raymond Damadian (original inventor of the MRI) and Dr. Scott Rosa.  Dr.Damadian thinks he has identified the cause of MS.  He feels it is the result  of damage done as a result of head or neck trauma causing blockage of the flow of CSF… Read More

LFish

Good evening, everyone. I'm newly diagnosed and new to this chat room. Thank you in advance for your input and support. You all understand, and I'm grateful. I started self-injecting glatiramer acetate (a generic form of Copaxone) about 6 weeks ago. The first few weeks I experienced no bad side effects, but for… Read More

boisenberry73
Buspar for anxiety*

Hi,  I think I have had anxiety/ADHD my entire  life  but currently it is unbearable. I may be going through a relapse which I’ll ask about in another thread but is anyone taking Buspar for anxiety which my dr prescribed? My thoughts are racing, cant think clearly, heart racing, lump in throat, can’t get… Read More

cynburris
MY Anxiety Remedy :)*

No doubt, anxiety and emotions have been a big hurdle.  That said, what works for me is diamond painting.  That might sound random, but it's true.  The act of being so focused on something that anxiety fades without my even noticing.  I highly recommend giving it a try.  It's cheap, and it helps.   Example… Read More

sentientbeing
Anyone Taking Mavenclad? *

I'm about to start treatment for my MS and will be taking a medication called Mavenclad. So far I haven't met anyone else who has been or is taking the drug, even though it's been around in other countries for over fifty years. As far as I know I will be one of the first in the US to take the medication because… Read More

echobird
Tens unit anyone have *

Ok so it's been years since I've used a tens unit. I get these muscle spasms that leaves me screaming in pain at times or wanting to. So I just got a cheap one for about $10.  I don't expect a lot out of it but maybe a little relief would be nice. Anyone have much luck any advice?  Read More

jimt2
Bladder *

I was diagnosed with MS about 22 years ago, but the last 2 years have been tough due to bladder burning issues.  I’ve recently changed neurologist and urologist and now go to a teaching hospital where the neuro specializes with patients with MS.  I’ve been on Ditropan, Trospium (which made it so I couldn’t tell… Read More