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Treating MS

Cathy1953
baclofen pump

My Dr. has recommended a baclofen pump. I went to hospital for a 3 day test to see if it would work for me. My Dr. thought it was successful and that it would be of benefit to me. I would like to hear from others that have the pump and get their opinions about how it works for them, how difficult or easy it was… Read More

infinitybetty
Cannabis Oil*

Hi everyone... my twin sister was diagnosed with the progressive form of MS and I was wondering if anyone has used or heard of "cannabis oil" as a side treatment along with tecfledura and amantadine? Are there any contra-indications using these medicines along with the cannabis oil?  I would so appreciate an… Read More

Avatar
Tecfidera*

So I'm kinda freaking out right now. I take two 240mg pills a day. One at 9am and the second 9pm. At around 11:40ish I accidentally took another pill. I had meant to take my other medicine. Has anyone ever done this before? Any did effects? Should I be very concern or am I freaking out over nothing? Read More

cantstopwontstop
Your favorite treatment options?*

I was diagnosed with RRMS in Dec. 2017. I am now approaching the meeting with my neurologist about treatment options, etc. I have a choice of pills and injections. We are all so different so I know two people aren’t alike but I am looking to hear what people like or dislike about either or. All of the side… Read More

LBee
Cytoxan*

I am looking for anyone who has been treated with Cytoxan (chemo). I am scheduled to start it on Feb. 14. I started Rituxan in November and I have had a worsening of symptoms. I'd like to hear about your personal experience with the Cytoxan. Thank you.   Read More

g-buda
my second stem cell therapy*

Today is the day! My second stem cell therapy will be done at 12:30 pm. I really cannot wait to see what comes of this one. I am stoked and have incredible vibes on all the good I will see collaborate from the old one and tomorrows therapy put together as one. There are so many good signs pointed at positives… Read More

jcpowell08
Copaxone - New Patient*

Hi all, Newly diagnosed with RRMS, and newly started on Copaxone. Each injection I’ve done lately leaves a “knot” whenever I inject. When I first started (about a month - month & a half ago), I wasn’t having this issue. Has this happened to anyone else or does anyone have some insight? All help is appreciated!… Read More

ginger1998
Aubagio*

New symptoms have had my doctor recommend new treatment of aubagio Can anyone share their experiences with this MS med whether good or bad. The effects I read about this medicine are frightening to me Looking for personal experiences before starting this med Read More

shell_denise
Ocrevus and dandruff*

I just started Ocrevus and have been improving. The only odd thing I noticed is dandruff. Never had this before, at least not like this. Granted, I'll happily exchange my cane for dandruff. ☺ just curious if anyone else has this. Oh and my scalp does not itch. I just have a lot if dandruff. Read More

plaquemom
Copaxone transient chest pain*

hello, I recently stopped copaxone after a year.  I loved the shared solutions program and the drug itself was well tolerated without major side effects EXCEPT about six months after I started I had severe, crushing chest pain.  This happened about once a month and always at night time after lying down.  They… Read More

schnejm
CBD and THC oil?*

Has anyone found the use of cannabis THC concentrate oil or CBD concentrate oil helpful for MS or spasticity? When I say oil I'm referring to the type made by Rick Simpson. This oil is 95% THC and is black and relatively like toothpaste. Also with the advent of CBD oils becoming legal in all 50 states, they… Read More

NancyS727
Glatopa, Extavia or Tecfidera*

I'm new to all this, have had one episode and an MRI and spinal tap with MS indications.  My neurologist offered Glatopa, Extavia or Tecfidera.  I'm more inclined to take an oral medication rather than an injectable, but was wondering if anyone had experience with these?  I've read the information here on the… Read More

shannarin
JVC positive - which drug to take???*

Posting for my 24 year old son who was diagnosed about 2 yrs ago with MS.  He has been on Gylenya but on his visit to neuro this friday was told JVC positive.  Looking for an effective drug that doesn't cause a lot of side effects.  Neuro isn't really recommending any particular drug. Thought was to go to… Read More

onefintwofin

It’s Ritilin.   This has been a wonder drug for me. It gets me off the couch, the 1000lb elephant off my back...I’m able to get stuff done...able to read and remember what I read...it even increased my libido big time.   I’m a fan of it.  I’m not sure why they put kids on it? But for us with hardcore MS… Read More

willnick
RX for Ocrevus..excited for potential*

I have had MS for 21 years and have been going through the most significant relapse in my entire history... With many different symptoms including walking and vision issues, brain fog and severe fatigue. My neurologist recommended Ocrevus for me because of the length of time I've had MS and the fact that other… Read More

Dlbr
Ocrevus and/or Marijuana*

I have Primary Progressive MS and am struggling with the decision to begin taking the new drug Ocrevus. Has anyone taken it and what were your results/feelings/reactions to it? I am 64. Please tell me your age as I hear that may make a difference in side effects. Also, if anyone has input on the use of Medical… Read More