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Treating MS

stephanieschmitt1991
Copax 40mg*

Hey guys. My partner of 9 years was recently diagnosed with MS. We're both 27 years old and of course a little worried and scared and don't know where to go from here.  Alicia's doctor has prescribed her copax injections. The 40mg 3x a week. I'm curious if anyone has any advice about copax. What was your… Read More

l-rand
Ampyra and an Ileostomy*

Hi there, Along with your MS, do you also have an ileostomy - maybe due to past Ulcerative Colitis - and have tried or are using Dalfampridine (or its brand name, Ampyra)?   If so, I need your feedback because... That's me!  I started Dalfampridine around the first of the month. The trouble, though, is that 4… Read More

bryanca4

So I was diagnosed with MS back in February after having a limp in my walk and really bad slurred speech. I was given IV steroids for 3 days and oral steroids for two days. Since then, both my walk and my speech returned to "normal". For all of March, I felt good. Then around the beginning of April, I had what… Read More

LAMchops2019
Terrified...*

Ok, so it's 11pm where I'm at and I cannot sleep. I was just diagnosed with RMS in February this year and after some careful thought, I chose to start with aggressive treatments to better my chances of slowing the disease progression. I start Ocrevus this Friday the 19th but keep thinking about all the possible… Read More

moneyp

Hi, I've had the worst five days and today my Ms has taken on new heights.  Please, if anyone has these symptoms I outline below, and knows how to treat them or calm them down, please email me or post back.   I was diagnosed Jan 2016 w Ms, I had a large lesion on my left brain which knocked out my motor skills… Read More

loved32
New to Copaxone injections *

Hi, I am brand new to all of this, i have been put on copaxone daily injections and I will be doing my 4th injection tonight. I have so far been ok with it other than the horrible burning and itching however, the thing I'm most worried about is the fatigue and whole body soreness the next day. Is this normal… Read More

boobahka
Aubagio*

I just started Aubagio March 1, 2019 and am a little freaked out by the hair I am losing already from it.  I feel very very tired and agitated.  It could be MS fatigue, numb and tingling in my hands, nausea, etc.  I have to do a blood test to check my liver in a week, and then six months after.  I was wondering… Read More

g-buda
my second stem cell therapy*

Today is the day! My second stem cell therapy will be done at 12:30 pm. I really cannot wait to see what comes of this one. I am stoked and have incredible vibes on all the good I will see collaborate from the old one and tomorrows therapy put together as one. There are so many good signs pointed at positives… Read More

sharon-peer
DMT treatment decision*

There are several different discussion threads on this topic so I have started a new one to share this info.  For those of you trying to come to a decision on disease modifying drugs, I just read a good article from the United Spinal Association outlining the most current thinking in the medical community.  I… Read More

began1031
Help with decision*

I need help I was recently diagnosed with ms and got a second opinion to confirm which it did.  My problem now is one dr wants to wait to start treatment and one wants to start me on copaxone right away.  Little history I had heat stroke and passed out and that's how I ended up getting first MRI.  1st dr wasn't… Read More

Rasha-Fetouh
Cortisone side effects on MS*

When I was first diagnosed with MS the doctor recommended Solumedrol 1g injections for five days then reducing it gradually with Solupred, but then the attacks became many and comes stronger and much more than before like numbness in my joints, legs, shoulders and neck, and other attacks and symptoms like sever… Read More

lm_lionheart
Gilenya to Rituximab*

Hello everyone, In the spirit of other peoples post I am posting about my experience with Rituximab since I couldn't find much about it prior to switching.  I was on Gilenya for the last year, which worked fine as well.  Didn't have any side effects that I could tell and no new brain lesions at 1 year.  My… Read More

lm_lionheart
Gilenya to Rituximab*

Hello everyone, In the spirit of other peoples post I am posting about my experience with Rituximab since I couldn't find much about it prior to switching.  I was on Gilenya for the last year, which worked fine as well.  Didn't have any side effects that I could tell and no new brain lesions at 1 year.  My… Read More

began1031
Surgery and ms*

Has anyone had surgery for something unrealated to ms I've got to have surgery on my arm and was just wondering if there are any concerns I am going to talk with surgeon about it but got diagnosed after last visit and this is all new  Read More

tberger4
Just diagnosed *

Hi everyone!  Was just diagnosed last week.  This might be kinda convoluted....but heard from the gp that my multiple MRIs were being diagnosed as MS, after talking to my neurologist, who I'm not going to see for another week...grrr. To be clear,  my gp talked to my neurologist...I only talked to a nurse in his… Read More