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Treating MS

MS Treatment Satisfaction

Hello everyone,I'm a student at the University of Florida conducting research on the treatment of neurological diseases. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5 minutes to complete and can be previewed… Read More


New to Nuedexta I have just been put on Nuedexta, for MS of course but not really sure what is being targeted Neuro said it will supress spontaneous laughing and crying, which I do not have. Also will help with depression and cognitive problems, which I also think I do not have too much problem with. To add… Read More

Treatment *

Well I have been diagnoste with MS after 4 MRI's and a spinal tap. the doctor has sent me the names of 4 different drugs and has asked that I research them before we sit down and determine the best procedure to follow for my situation. Tables:  Gilenya,  Tecfidera Infusions:  Ocrevus,  Tysabri Any experience… Read More

Rebif, newly diagnosed

I am currently on week 6 of Rebif therapy. I tolerated the titration pack ok, but since starting the 44mcg, I have experienced low grade fevers, body aches, chills, and worsening headaches. I have tried giving myself motrin before my doses, and taking my doses at bedtime, but it does not seem to help. I am… Read More

Copaxone *

Hello-  I don’t know if anyone will see this or respond to it, I’m unsure of how this site works.  My name is Amy, I was diagnosed with MS two years ago but am only now able to start treatment related to multiple pregnancies. My doctor has prescribed low dose Copaxone injections 3x/week. He said this was a… Read More


OK. So I do not normally contribute to blogs, discussion, conversations etc. as I fall firmly into the "lurker" category. However, I do check out this site often and have appreciated everyone else's contributions. So why contribute now?  The reason I am typing now is in about 4hrs I am going for my first… Read More

Ocrevus. Would anyone know *

if someone had melanoma cancer, no treatment prescribed just removal of the cancer. Still haven’t been 5 years cancer free, actually still doing CT scans on lungs and  pancreas. Haven’t completed the 4 month test to see if spots grew. Would I be required to have a whole body scan to make sure I’m completely… Read More

New to the area*

I've just moved to Lindon, UT and am needing to get established with a new MS Specialist in the Salt Lake City area. Would appreciate suggestions on who to see. Who is your favorite MS doctor? Thank you!   Read More


I've been taking Copxone since late November so I know it hurts, but last night was b-a-d. The past 2 injections (including last night) were leg days. The first one, I used the autoject for and it was more painful, and bled a bit more than my normal. Then last night, I injected the other leg manually thinking… Read More

For anyone not on medication

Hello all! So I was diagnosed on April 30, 2018 and was put on medication in Mid-June. Since then I have started my now 3rd medication due to being allergic to the first two. I now fell I may be allergic to this one but may not know yet until next week when I do my first full injection. So here it is; I just… Read More

Newly Diagnosed: Ocrevus or Tysabri?*

I was recently diagnosed and because of the amount of lesions in my cervical spine, my doctor is recommending an aggressive treatment. She told me her top two choices are ocrevus and tysabri. I've done a decent amount of research and am leaning towards tysabri. However, I just talked to a friend who has had MS… Read More

Side effect?*

Hi, I got my rituxin infusion on December 27th I noticed a few days after I have a bruise on my inner ankle and it hurts when I push in the bone. It also has been swelling. I went to the doctor and they ruled out things they think it could be. I’m at a lose and am not sure if this is a side effect of rituxin… Read More


If so what do you take? My neurologist doesn't believe in pain medicine.  I'm seriously thinking of going to another doctor.  I was really hurting all over Friday it was the first time I felt that bad. My hands and back and all over was just aching. I laid down and finally went to sleep. But all I have is… Read More

migraine and nerve pain

We can't get any pain relief from my daughter's migraine and shooting nerve pain all over her body. Narcotics only knock her out, they dont give her pain relief. she cries all night long. We need help and direction!!! she has 2 large lesions on her brain, there use to be 4. Anyone try acupuncture? Read More


I saw my neurologist today.  We have been discussing switching me from Gilenya (which doesn't seem to be doing anything for me) to Ocrevus.  I almost pulled the trigger on the switch today (at least the preiminary parts) but I chickened out.  I am terrified at the idea of stopping Gilenya because some people… Read More


Why should I take Ampyra is my balance and coordinaiton are already very unstable?  Two of the side effects are dizziness and impaired balance.  When I asked my specialist what could help with wlking, he suggested Ampyra knowing I have extreme balance and coordination issues.  We also talked about an AFO for… Read More


Failed Avonex, caused depression. I started Copaxone in January and was doing fine until my liver enzymes came back way to high. Now doc wants to start Gilyena ..... Thoughts anyone? It seems to have a lot of side effects........ Ready go!!!! Read More