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Treating MS

secondary ms*

I have Secondary Progressive MS. Haven't been able to walk for several years. My neurologist doesn't want to put me on any medications at this time. She said they're too dangerous, and feels the current injectables will not help. All this is extremely depressing.  It's taking forever!!! Is anyone on anything… Read More

MS meds generics*

hwllo,  I am looking for feedback from people wo have hadmto zwitch to a generic drug since many insurance companies are making people switch  I had been on copaxone for 11 years with no exacerbations. Thanks so much Read More

Tried hemp oil*

Ok so I thought Maria said 1000 mg and I thought I ordered that dosage but I received 2 2500 mg bottles instead and let me tell you I was afraid of ingesting it so I just rubbed it on my spine and my left shoulder and it's like day and night but unfortunately it does wear off after about 5-6 hour's. But what a… Read More

In denial? *

I was diagnosed in 2005, it was all a blur. I had 21 lesions, My vision from right aye was almost gone, got on steroids and got better.  I got on medication right away , but it only lasted 6 months, that shot was doing more harm than good , i hate needles. And that one going into the muscle was worse!   Also… Read More

Secondary progressive MS*

Hello. My mother was diagnosed with MS (relapsing remitting) in 2000. We held steady for awhile but now we are headed downhill VERY fast and are currently in secondary progressive. Her current MS dr who is apparently the best in OKlahoma Has pretty much said there is noting else he can do. Our family feels… Read More


Has anyone taken the ms drug OCREVUS? My neurologist wants me to start it. This would be my first ms drug as I’m recently diagnosed. Currently on nothing right now. Reading the list of side effects and precautions is making me scared to death! Was wondering if anyone has any experience with this drug?  Read More

Disease Modifying Therapies* is not intended to be medical advice but is for info only... I just ran across a new publication by the Consortium of MS Centers which is a non profit in New Jersey.  I thought I would post this link since there are several conversations going on this site about choosing a… Read More


Hi,  My name is Jessica, and I am 31 years old. I was diagnosed with MS in October of 2016. After I had my first son in March of 2016, around June I started waking up with double vision that lasted about a 3-4 days. A few weeks later went to the ER, which prompted an appt. with a neuro, and then was given my… Read More

Issue with Trusting in Doctors....*

Does anyone else have this same issue of trusting a new doctor or doctors in general when speaking about what is wrong or symptoms that you are concerned about?  I seem to always to have this problem, especially with new doctors.  I now am on my 5th neurologist due to re-locations and change of specialty from… Read More


I just started Copaxone injections 2 weeks ago, and have been doing great except for a daily increase in body aches and new pains that weren't there before!  This is not listed as a 'side effect' of the drug, nor have I seen anyone else mention having this problem.  Now I have a very painful right knee (when… Read More

off label med*

Has anyone tried low dose naltrexone? It’s an Off label medication that I guess works wonders for MS or any autoimmune disease? It was recommended to me and I was just wondering if anyone has tried it and had any luck?  Read More


I  stopped Tysabri infusions after one year (JC pos.) doctor suggested Gilenya, but I am contenplatine not doing any thing? Sigh...any one on Gilenya, if so how were the side effects? BkBoo Read More

Copax 40mg*

Hey guys. My partner of 9 years was recently diagnosed with MS. We're both 27 years old and of course a little worried and scared and don't know where to go from here.  Alicia's doctor has prescribed her copax injections. The 40mg 3x a week. I'm curious if anyone has any advice about copax. What was your… Read More

Ampyra and an Ileostomy*

Hi there, Along with your MS, do you also have an ileostomy - maybe due to past Ulcerative Colitis - and have tried or are using Dalfampridine (or its brand name, Ampyra)?   If so, I need your feedback because... That's me!  I started Dalfampridine around the first of the month. The trouble, though, is that 4… Read More