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Treating MS

Hair Loss and Techfidera *

Been on Techfidera for 4 years now. The hair loss is almost intolerable. I don't need haircuts anymore since my hair doesn't grow. It's so frizzy and weak, I look like I put my finger in a light socket.  Wanted to share this in case anyone else has experienced this. I also still experience flushing every so… Read More


Copaxone injection sites.....they are itching me to insanity!  the backs of my arms are the worse, followed by a very close second on my thighs.....knots and itching....eek!  And by the time it finally goes away, i've made it back to that area in rotation.  anyone have suggestions for the itching?  is there… Read More

Help choosing dmd*

Very confused and overwhelmed my 15 y/o son has just been diagnosed and we have to choose a dmd I've been reading on copaxone, it's a older drug are there better i like the idea of a pill looking at tecfidea also any thoughts Read More

Side Effects......*

This is my first post and its mostly just to rant some of my anxiety/stress with treatment. I was diagnosed in August and feel very fortunate that my symptoms have been mostly managable. I have had tingling and numbness. My worst symptom is fatigue which changes daily.Myfirst treatment was Copaxone. I had… Read More

Copaxone *

Hi all  have had a recent Mri which showed my brain lesions are still the same, my lesions on c1-4 have some resolution but I have a new leison on c5, so they want me to start copaxone 3x per week.  Has as anyone had any experiences of this drug please?. I have been drug free for 15 yrs but in the last 2 yrs… Read More


Some years ago Unitedhealthcare bought optimum mail order drugs and tried to put local independent pharmacies out of the competition by offering cheaper scripts through their mail order. Many of us complained to our state senators and got that situation corrected.  ​Now CVS is buying Aetna Insurance and Amazon… Read More

Tysabri and JC Virus *

So I am entering into my fourth year of being on Tysabri as my treatment and it is really helping me, but from what I remember my doctor telling me I will eventually have to probably be put on another treatment, because eventually I will go from JC negative to positive and I wont be able to be on Tysabri… Read More

Bemer Therapy*

Hi! I am surprised that when I search "Bemer" on this entire site, nothing comes up! I have heard about this for a long while, and the benefits for MS patients. I am a little skeptical but there is a lot of excellent studies and some are on PUBMED, a very re*****ble source.  I am trying it out and plan to buy… Read More


Hi! My husband was given the infusions of Ocrevuz last month and I was wondering if anyone else has started them. I would love to hear others thoughts on the drug and keep in touch about any results. Read More

Betaseron to start*

I was diagnosed almost two years ago. Only recently am I doing anything about it I was in denial. So my Problems as I think they relate:   Nerve Pain, Neuropathy, Central neuropathic pain  Allodynia Migraines   Chronic Pain     Muscular Skelton Problems   Ataxia     Numbness, Loss of Sensation… Read More


Hey, is anyone else currently on Lemtrada? It's very frustrating as very few hospitals are REMS certified to be able to administer it. It's very dangerous also. Once I receive it the Dr says that I'll have zero resistance to anything as it will wipe out my immune system by killing all the "b" & "T" cells. It's… Read More


Hey all, I struggle with fatigue, like most of us do. What other medications are out there that you've used? Nuvigil is not my friend. Makes me feel sick. I'm planning on asking my doctor, but I'd like to get a better idea of what's out there first. Thanks, Jess Read More

New medication *

My mom was diagnosed with Progressive MS in the late 80's. I was there with her through all of the stages. She has been in a wheelchair and can't walk for the past 20 years! So I'm writing this post to get some advice from all of you out there..... She just got her first dose of the drug named there… Read More

First time optic neuritis--how urgent is it?

I was diagnosed with MS 3 years ago. This is the first time I'm having symptoms that seem like they might be optic neuritis. -Dull pain in right eye, especially when I move the eye, for the last 2 days. -I have poor vision already, but it's been a bit worse in that eye for the last 2 days. The discrepancy… Read More

Has anyone tried Acthar??*

I'm waiting to get approved for Acthar, as I cannot use steroid Solumedrol. Has anyone here ever used it and what was your experience on it. I'm also currently on Rebif and the fatigue I get from that is pretty bad, has Acthar added to your fatigue as well?  Read More