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Treating MS

TD1234
Best MS Medication??*

I am at a lost which medication to go with.  The one I am taking I have been told by 2 doctors I am not suppose to be having the side effects I am experiencing.   Anyone have suggestions as to which medication allows a person to have a somewhat normal life? Since I started the medication I feel like a shell… Read More

dcyrdomiko1
Steroids infusions- has anyone?? *

has anyone done steroid infusion and if so how long do they last for you?  What is the frequency? how many is enough vs 5 or if needed more?  Please help I need some answers.  Also again on the MS hug, has anyone experienced this? Does clothing bother that region while having this sensation.  Thank you… Read More

aprilday
Tecfidera and JC Virus*

Does anyone have information on Tecfidera and JC Virus/PML. It clearly says on the webiste that PML is a risk on Tecfidera, but doctors seem to not think having a JC Virus test or even testing positive for JC Virus is a big deal. Question: Is it important to go off Tecfidera if you test positive with JC Virus… Read More

Farmlife
ReBiff vs Aubiago*

Hi - I have been on ReBiff for many years and it may have become ineffective so the Dr. suggested Aubiago.  I seeking comments anyone who may have good or bad experience with Aubiago.  How bad were the side affects and did the medication seem to work? Thanks, Lisa Read More

Lis
Aubagio Drug*

Hi there, was hoping to connect with a few people that might be on this drug for MS.  My doctor has recently recommended switching to this.  Any input would be greatly appreciated. Thanks. Read More

NutMeg
Is it the Tecfidera or no?*

Hello all. I am very recently diagnosed with RRMS & was prescribed Tecfidera by my doc. Ten months ago, my family had planned a 5-day Caribbean Cruise, so I decided to wait an extra 10 days and begin Tecfidera AFTER. I knew I would be battling the heat, and I didn't want to add any other symptoms to me "last… Read More

kristynayers1205
Steroids *

So I had been prescribed methylprednisone (steroids) for acute flare. I was tapered down over a three week period starting with 16mg (3 a day) for the first week, 8mg (3 a day) for the second week and then 4mg (3 a day) for the third week. I know that there are side effects to steroids but I finished the… Read More

apascoe3
Reaction to Pre-Meds?*

Has anyone experienced a reaction to the pre-meds before starting an infusion? I tried Ocrevus in February and had a reaction each time we tried it (usually not until we increased to 60ML). We switched to Rituxan and yesterday was to be my first infusion but I reacted to the pre-meds before we even started… Read More

ktwolf426
Ocrevus*

Hi! My husband was given the infusions of Ocrevuz last month and I was wondering if anyone else has started them. I would love to hear others thoughts on the drug and keep in touch about any results. Read More

MommaLaughs

I'm on my 3 neurologist in less than 2 years since being diagnosed. My first doctor was nice enough and seemed knowledgeable, but getting an appointment or time to speak with her was impossible. So I try another...  The second really knew her way around the disease and the history of MS. She wanted my MRI's… Read More

rblackman
symptoms of medications*

Hello everyone ! So just an update; I finally started my treatment which I don't think I've ever been so happy to actually take medicine a day in my life. But now that I have started it, I need to ask a question. I take Copaxone 40 mg 3x a week injections, if anyone else has ever taken it or is currently taking… Read More

graciebye64
gilenya*

Hi, My name is Gracie.  Recently my lesions have multiplied.  My doctor is taking me off Copaxone and putting me on Gilenya.  I would like to know if anyone is on it and what they think of it.  I appreciate any feedback!   Have a great day! Read More

KitElise
New (last four months), Help?*

I'm 31, and in May of this year (my birthday actually, cute right?) I was diagnosed with MS. Now looking back I think I've had it for years, and my doctors disregarded my symptoms, which has caused me permanent damage (including loss of feeling in toes and fingers). Since being diagnosed I've had three flare-up… Read More

kbaker120
LDN *

I noticed on one of the threads someone had asked about Low Dose Naltraxone, but no one responded. I've always been curious about it. Is that something you can easily get a doctor to prescribe? I've also heard it's not very expense. Has anyone tried it and, if so, does it work well for you?  Read More

fuzzys
Betaseron*

Hi everyone. I am new here and newly diagnosed wuth MS. My Neurologist wants to start me on Betaseron. He explained it was one of the safest MS Medicines since it has been around a long while. However, researching on my own, there seems to be some pretty rough side effects associated with it. Anyone who has… Read More

dhendricks2424
I Love Cryotherapy*

Has anybody out there had good results with Cryotherapy.  The type I do is in a chamber that gets to -250 degrees farenheight for 3 minutes.  It helps my pain and my energy and my sleep.  I really feel like it engages my "fight or flight" response by stimulating the parasympathetic/sympathetic type adrenaline… Read More

teekybird
So confused about Fish Oil/ Omega-3 *

Those of you who have researched Fish Oil/Omega-3 intake, I really appreciate your response: I hae been trying to investigate good fish oil/omega 3 to take, and quantity but an finding it really overwhelming.This is what I understand: 1. Omega 3 is really what we want to be taking for MS. (The other… Read More