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Treating MS

LAMchops2019
Ocrevus or Tysabri?*

Hello all you MS Warriors! Just a quick question, has anyone out there been on both Tysabri and Ocrevus? Which one worked better for you? I'm hesitant to try Tysabri due to the risk of PML, but it seems to have fewer side effects and has been out for a while now. On the flip side, Ocrevus seems to have more… Read More

jmulvihill7
Copaxone and Stretch Marks*

Hello Everyone, I did a quick search on this site to look for similar discussions and didn't see any. If this has already been discussed, then I apologize for the redundance... I have stretch marks. Good 'ol Prednisone made me blow up at least 40 pounds in a couple of months. As a result, my entire mid… Read More

bethanyrc
Probiotics: Visbiome*

I've heard a lot of buzz recently about probiotics and good gut health having a role in MS. Does anyone take a high potency probiotic like visbiome? I'm trying to decide if its something I want to pursue. Read More

LAMchops2019
Help...*

I was recently, February 19th of this year, diagnosed with RRMS. I'm still in a type of shock considering that I am, otherwise, fairly healthy. But I have to decide what course of DMT to be on. Any suggestions for a newbie? My neurologist, that specializes specifically in MS, has suggested starting out on the… Read More

ashleyn97
MS Treatment Satisfaction

Hello everyone,I'm a student at the University of Florida conducting research on the treatment of neurological diseases. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5 minutes to complete and can be previewed… Read More

smferggie
Treatment *

Well I have been diagnoste with MS after 4 MRI's and a spinal tap. the doctor has sent me the names of 4 different drugs and has asked that I research them before we sit down and determine the best procedure to follow for my situation. Tables:  Gilenya,  Tecfidera Infusions:  Ocrevus,  Tysabri Any experience… Read More

AmyHoover
Copaxone *

Hello-  I don’t know if anyone will see this or respond to it, I’m unsure of how this site works.  My name is Amy, I was diagnosed with MS two years ago but am only now able to start treatment related to multiple pregnancies. My doctor has prescribed low dose Copaxone injections 3x/week. He said this was a… Read More

msyorkie
Ocrevus*

OK. So I do not normally contribute to blogs, discussion, conversations etc. as I fall firmly into the "lurker" category. However, I do check out this site often and have appreciated everyone else's contributions. So why contribute now?  The reason I am typing now is in about 4hrs I am going for my first… Read More

dcyrdomiko1
Ocrevus. Would anyone know *

if someone had melanoma cancer, no treatment prescribed just removal of the cancer. Still haven’t been 5 years cancer free, actually still doing CT scans on lungs and  pancreas. Haven’t completed the 4 month test to see if spots grew. Would I be required to have a whole body scan to make sure I’m completely… Read More

wmargo
New to the area*

I've just moved to Lindon, UT and am needing to get established with a new MS Specialist in the Salt Lake City area. Would appreciate suggestions on who to see. Who is your favorite MS doctor? Thank you!   Read More

livinglifejoy

I've been taking Copxone since late November so I know it hurts, but last night was b-a-d. The past 2 injections (including last night) were leg days. The first one, I used the autoject for and it was more painful, and bled a bit more than my normal. Then last night, I injected the other leg manually thinking… Read More

rblackman
For anyone not on medication

Hello all! So I was diagnosed on April 30, 2018 and was put on medication in Mid-June. Since then I have started my now 3rd medication due to being allergic to the first two. I now fell I may be allergic to this one but may not know yet until next week when I do my first full injection. So here it is; I just… Read More

bethanyrc
Newly Diagnosed: Ocrevus or Tysabri?*

I was recently diagnosed and because of the amount of lesions in my cervical spine, my doctor is recommending an aggressive treatment. She told me her top two choices are ocrevus and tysabri. I've done a decent amount of research and am leaning towards tysabri. However, I just talked to a friend who has had MS… Read More

megan
Side effect?*

Hi, I got my rituxin infusion on December 27th I noticed a few days after I have a bruise on my inner ankle and it hurts when I push in the bone. It also has been swelling. I went to the doctor and they ruled out things they think it could be. I’m at a lose and am not sure if this is a side effect of rituxin… Read More

waltzing_matilda

I saw my neurologist today.  We have been discussing switching me from Gilenya (which doesn't seem to be doing anything for me) to Ocrevus.  I almost pulled the trigger on the switch today (at least the preiminary parts) but I chickened out.  I am terrified at the idea of stopping Gilenya because some people… Read More

lizzybell
Gilyena*

Failed Avonex, caused depression. I started Copaxone in January and was doing fine until my liver enzymes came back way to high. Now doc wants to start Gilyena ..... Thoughts anyone? It seems to have a lot of side effects........ Ready go!!!! Read More