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Treating MS

Thoughts on Gilenya *

I was diagnosed with MS in October 2015 and have been on Copaxone since. I had a MRI about a month ago that showed I had two new lesions. My doctor has recommended that I start taking Gilenya or Tecfadera. Between the two, I would prefer to take Gilenya. Has anyone taken or is taking Gilenya? How has it worked… Read More

Copaxone Complications*

Hey guys!  I've been taking Copaxone, 3 times a week injections for the past 4 months. While taking them is bearable, I always get site injection reactions post injection. My symptoms include small hives, intense burning/stinging that lasts for 30+ minutes, and itchiness that lasts up to a week. Anyone else… Read More


I was diagnosed in August 2015 with RRMS.  Since then I have been on Gilenya which I had an allergic reaction to and I am currently on Copaxone.  I have had to relapse since being on Copaxone and my neurologist is now suggesting I should be on Tysabri since the Copaxone is not being aggressive enough.  HELP!  I… Read More


Hi everyone! Just joined this page! Just have to ask everyone who is taking gilenya! I'm three days in and I feel chest pains and throw up! Anyone have these problems and are they normal! Read More

Diet and MS Symptoms - by Janet_S *

This is my first contribution, so please excuse me if I make any protocol errors.  I just felt compelled to write.  Let me give a little history.  I was diagnosed with MS in 2008 and have delt with symptoms since.  I have relapsing, remitting MS.  Through the years I have lost vision in one eye temporarily and… Read More

Solu medrol IV one dose*

hi i am traveling out of state and am having a flare up of fatigue, numb left face and some vision/ dizziness issues. i went to ER and after 6 hours received one IV treatment. has anyone had success with having just one treatment? I'm torn whether to go back to ER again or just wait it out a little longer… Read More


Hey, fellow crusaders! My neuro told me at my last appointment that as soon as Tecfidera (aka BG-12) is approved, he'll put me on it. Well, the time has come!  With the FDA approval being finalized on Wednesday, we have started the process.  Is anyone else making the switch?  Or is anyone already on it (i.e… Read More

Choosing a Medication *

I was officially diagnosed with MS on June 14, 2017. I am trying to pick which medicine to start on, I was given a choice of five medicines but it has now been narrowed down to four since I am not a candidate for Tysabri. Any input on the remaining four medicines would be much appreciated. They are: Tecfidera … Read More

Tecfidera vs. Ocrevus*

Hello, I was diagnosed with RRMS last fall, and have not been on any medication yet. I also have Psoriasis and Psoriatic Arthritis for which I was on Methotrexate and Otezla for.  My Neurologist gave the option to either try Tecfidera or Ocrevus, thinking that they would also help me with my preexisting… Read More

Aubagio was my decision *

I had my follow up today and went with Aubagio. I'm nervous about all medications but the Gilenya with the whole slow down the heart rate was not my idea of fun. I have asthma and I just get scared about anything that deals with my heart and breathing but I just hope this is a good decision. We figured that my… Read More

Secondary progressive MS*

Hello. My mother was diagnosed with MS (relapsing remitting) in 2000. We held steady for awhile but now we are headed downhill VERY fast and are currently in secondary progressive. Her current MS dr who is apparently the best in OKlahoma Has pretty much said there is noting else he can do. Our family feels… Read More


My dad was diagnosed with relapsing-remitting MS around 2002. Since then he has been seeing the same doctor. His doctor hasn't recommended an MRI in three years. Recently, he has taken a turn for the worst- perhaps a flare. Severe cognitive changes and mobility changes. Doctor prescribed steroids and said… Read More

Steroid treatment*

Does anybody know what window of time you have to initiate steroid treatment after start of relapse for steroid to be effective. I read on internet 2 weeks. Is there anybody who took steroid after a month of start relapse where it helped them.i recently had to switch to neurologist in same office and new dr… Read More

Choosing a treatment, confused and scared*

Hi everyone, I am really confused on choosing my next medication was hoping someone could provide some feedback on their experiences. I was diagnosed in April and started on copaxone, I had no issues with it at first but this month I started to have really bad side effects (full body rashes, chest pain, heart… Read More