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Treating MS

kmstewart5
Plasma Exchange*

I’m newly diagnosed, symptoms began a few month ago. Was on solu- medrol for 3 days last month with no response. I’m now beginning plasma exchange, anyone else have this procedure? Did it help?  Read More

GoldAu741
Leaving Tysabri for Tecfidera?*

Hi! I was curious of who is out there that switched from Tysabri to Tecfidera, or even from Tysabri to a different MS Therapy? I had a flukey JC Virus test the ended up being negative but got me thinking about switching medicines to "hopefully" prevent JCV and PML. I would love any thoughts/advice… Read More

mercedes35
Newly diagnosed .... Tysabri question *

Good evening all, I was diagnosed with RRMS 3 weeks ago. After discussing multiple treatment options with my doctor, I decided IV infusion of Tysabri might be the best choice for me. Main reason why I decided to go with this treatment is because its given once a month and it'll work well with my busy schedule.… Read More

sinnergirl
COPAXONE*

I have been on Copaxone since diagnosed in 1999. For the past year I have noticed I am losing a lot of hair!!! Also gained some weight without changing eating habits. Last week had a very very severe reaction to the 40mg shot in the midriff. An elephant sitting on my chest, difficulty breathing, vomiting and… Read More

didnot
SF Bay Area specialist*

I've just changed health care insurance after 10 years with Kaiser, and need to quickly find a new neurologist through Aetna, preferably someone with MS special experience/focus who will follow through on annual MRIs and who has a good bedside/patient manner.  I am clinically stable, but my mom had RRMS that… Read More

achill
Vertigo and newly diagnosed with MS *

Hey everyone, I'm new to this so please bear with me. I'm currently in the hospital I've had vertigo for 10 days and have been diagnosed with MS a few days ago. I just really want to know if the vertigo will go away I'm ready to be back home and back to normal. Has anybody had any experience with this? I'm… Read More

caroline-peer
Anyone use provigil for fatigue ?*

i was just given provigil by my dr for fatigue. Anyone have any tips on the best way to use this? I tried 1/2 pill in morning but it didn’t help me through the whole day and I’ve tried a whole pill in the morning and it made me jittery and shaky. I’m still jittery almost 24 hours later. Maybe I’ll try 1/2 in… Read More

rblackman

Hello, I was diagnosed this past monday with MS. and I'm supposed to be starting treatment. My doctor gave me some information about Tecfidera and Copaxone. Any ideas on which is better? I've been reading up on them but I would like to know how others feel about it. I'm new at this and would like some feedback.… Read More

RQManchester
Vitamin D*

I went to the dermatologist today for an appraisal of my skin, since I sit outside in the sun about 4 times a week for 15 minutes and wanted to see if all was well.  By the time I left, I felt like I would be diagnosed with skin cancer in the next 15 minutes.  The doctor STRONGLY recommended that I get all my… Read More

maria1
Hemp Oil*

Anyone using hemp oil?  ​You who are using pot, have you noticed a consistent benefit or varying? Are you using a single strain or varying the type of pot you are using? ​For six months now I have been on hemp oil and have noticed an improvement in the use of my hands and arms, so much so that  the other dayI… Read More

mamawals
Should I be Starting Treatment?*

I was diagnosed with MS this week.  I’ve been having symptoms off and on for years (numbness, vertigo) and the MRI confirmed multiple lesions in multiple parts of the brain.  They scheduled me for a contrast MRI in two weeks.  However, I’ve been having left face and arm numbness, memory problems, and vision… Read More

katikin
Scared of starting treatment*

Hello everyone, I'm newish-ly diagnosed with MS and going to be starting treatment in a few months. When I received my diagnosis in 2016 my husband and I discovered we were also pregnant so we held off on starting any treatments. Unfortunately, we lost that baby around 20 weeks. A few months later, we became… Read More

BethC
Diagnosed Last Week-IV Steriods*

Good Evening. I was diagnosed with RRMS last thursday. Had IV Steriods on Friday, had again Today, Tomorrow and Wednesday. Wondering how long it may take to get some feeling back, ir if i may not get it back at all. Left torso is numb (for 7 weeks now) with MS Hug (about 5 weeks now), left leg weakness and… Read More