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Treating MS

Ocrevus Side Effects *

Hi, I just received my second treatment of Ocrevus for my MS and so far the treatments which are every six months seem to be working ok. However, after each treatment I get horrible stomach aches and such bad muscle cramps in my calf muscles I can barely walk. Does anyone else experience this or anything… Read More

Retuximab Treatment *

I am looking into taking Retuximab for the treatment of my MS. I was diagnosed with MS 18 years ago. I had a flare last July and did the 3 day steroid treatment. I had always treated my MS with injections (Copaxone and Beteseron). I was told I needed to begin taking a more aggressive drug. My neurologist… Read More

Where should I inject first?*

I'll be starting my injections soon (non brand name copaxone). My doctor wants me to come into her office for training for the first injection. Now I'm trying to decide where I should inject as my first location. I know I'll eventually have to inject everywhere, but I can't think of a place that sounds good… Read More

Immediate post injection reaction*

Yesterday was my shot day. I have been on copaxone 40mg 3/xweek for 1.5 years now. I gave the shot in my right stomach and within seconds, my face was flushed and warm, my chest got tight with heart palpitaions, my lips were itchy, and the whole lower half of my right abdomen was swollen around the injection… Read More

Copaxone - Should it really hurt???

I just started Copaxone this week and it really hurts once it is in my body. I am not talking about the needle.  I am talking about once the medicine is in my body.  After about 30 seconds after the shot, the medicine starts to really hurt once it is inside.  It is almost like a burning, but there is actual… Read More

New medication*

I was diagnosed about 2 months ago. I was put on copaxone shots three times a week. Well that medicine made me nauseous all day, every day for an entire month with it only getting worse. I had that along with extreme fatigue where I would spend the weekends sleeping all day long and still not having any energy.… Read More


I'm starting Copaxone injections soon. Do I need to obtain a sharps container, alcohol wipes, warm compress, etc or will those get sent with the medication? I've seen some pics of shared solutions branded stuff.I want to be prepared for my first injection, but I don't want to buy something I won't need. Read More

Copaxone vs the generics*

Hello everyone, As I am sure with some of you, my insurance is trying to switch me to the generic of copaxone. I have been doing some research and there is Galopa from Novartis and also the one from Mylin that doesn't have an official "trade" name. I've read a few online reviews of the Novartis generic and… Read More


I have started on Glatiramer Acetate 40mg/mL.  I suffer from flu-like symptoms and my head hurts so bad that it feels like a clamp is literally tightening on my brain.  The headache gets better very slowly over the next 24 hours.  By the time I feel completely normal again it’s time for my next shot.   Does… Read More

Best MS Medication??*

I am at a lost which medication to go with.  The one I am taking I have been told by 2 doctors I am not suppose to be having the side effects I am experiencing.   Anyone have suggestions as to which medication allows a person to have a somewhat normal life? Since I started the medication I feel like a shell… Read More

Steroids infusions- has anyone?? *

has anyone done steroid infusion and if so how long do they last for you?  What is the frequency? how many is enough vs 5 or if needed more?  Please help I need some answers.  Also again on the MS hug, has anyone experienced this? Does clothing bother that region while having this sensation.  Thank you… Read More

Tecfidera and JC Virus*

Does anyone have information on Tecfidera and JC Virus/PML. It clearly says on the webiste that PML is a risk on Tecfidera, but doctors seem to not think having a JC Virus test or even testing positive for JC Virus is a big deal. Question: Is it important to go off Tecfidera if you test positive with JC Virus… Read More

Aubagio Drug*

Hi there, was hoping to connect with a few people that might be on this drug for MS.  My doctor has recently recommended switching to this.  Any input would be greatly appreciated. Thanks. Read More

Is it the Tecfidera or no?*

Hello all. I am very recently diagnosed with RRMS & was prescribed Tecfidera by my doc. Ten months ago, my family had planned a 5-day Caribbean Cruise, so I decided to wait an extra 10 days and begin Tecfidera AFTER. I knew I would be battling the heat, and I didn't want to add any other symptoms to me "last… Read More

Steroids *

So I had been prescribed methylprednisone (steroids) for acute flare. I was tapered down over a three week period starting with 16mg (3 a day) for the first week, 8mg (3 a day) for the second week and then 4mg (3 a day) for the third week. I know that there are side effects to steroids but I finished the… Read More

Reaction to Pre-Meds?*

Has anyone experienced a reaction to the pre-meds before starting an infusion? I tried Ocrevus in February and had a reaction each time we tried it (usually not until we increased to 60ML). We switched to Rituxan and yesterday was to be my first infusion but I reacted to the pre-meds before we even started… Read More