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  • Cathy1953
    My Dr. has recommended a baclofen pump. I went to hospital for a 3 day test to see if it would work for me. My Dr. thought it was successful and that it would be of benefit to me. I would like to hear from others that have the pump and get their opinions about how it works for them, how difficult or easy it was to get programmed. Also, was the surgery easy to heal from? Thanks to any that can help me with my decision.
  • MS_Navigator_Robin
    Hi Cathy1953,

    It sounds like you're looking to hear what other people have experienced who have tried this treatment option, so I've moved your post to the Treating MS discussion board.  I hope you get some good feedback that will help you make a balanced choice about your treatment options!

    You'll find information about baclofen pump implantation and use on our website; we also have a brochure Controlling Spasticity in MS that may be of interest..  I know that reading this isn't the same as hearing from others, but they do some information different ways to manage spasticity and what to expect from intrathecal baclofen therapy.

    I hope everything goes well, whatever you decide!

    Robin
  • Mizrob

    My name is also Robin but am not the navigator lady!! :)
    just got the pump last year - it has really helped with my spasticity - all gone? no but a LOT LOT less than it sed to be..
    surgery in and of itself is not difficult, yes you';ll need to heal and get used to what essentially is a hockey puck (about that size) in your stomach or whereever you put it area.

    If youve been walking then chances are you will be ok, will need physical therapy to rebuild muscle strength

    programming the pump is easy, cool the way they do it, your doc's nurse may be the one who will follow up with you on that, every 6 mos or less the pump has to be refilled, they do that via needle - just had that done and it's not bad to do.  Will probably go thru adjustment period to find right dosage...

  • grady

    hi Robin,

    I know it has been nearly 2 years since you posted your experience with the Baclofen pump.  My doctor is recommending it for me so I would be interested in how it is working for you now.  Problems?  Benefits?

  • vyrtual
    Hi Robin

    I know it's an old topic, but I've just got my pump and would like to know if you have been able to walk again.

    Fred

    Mizrob wrote:

    My name is also Robin but am not the navigator lady!! :)
    just got the pump last year - it has really helped with my spasticity - all gone? no but a LOT LOT less than it sed to be..
    surgery in and of itself is not difficult, yes you';ll need to heal and get used to what essentially is a hockey puck (about that size) in your stomach or whereever you put it area.

    If youve been walking then chances are you will be ok, will need physical therapy to rebuild muscle strength

    programming the pump is easy, cool the way they do it, your doc's nurse may be the one who will follow up with you on that, every 6 mos or less the pump has to be refilled, they do that via needle - just had that done and it's not bad to do.  Will probably go thru adjustment period to find right dosage...