I am curious to know if anyone with PPMS has used the drug Ibudilast (Ibudilast, AV-411, MN-166, Ketas, Pinatos, Eyevinal) off label as a treatment for PPMS. I thought surely in one of these groups a simple search would turn up at least a few people mentioning this drug, as trials and studies seem to be favorable as a treatment for PPMS. Alas, I found only one lonely topic asking if anyone else had heard of/used the drug. Please if anyone has personal experience with this as a PPMS treatment, I would love to hear your story.
Nice to hear from another person withPPMS. Sorry, I've not used anything in my 25+ years with MS. However I'm excited to see what my neurologist will say about the new FDA drug Orcevus.
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