Yesterday was my shot day. I have been on copaxone 40mg 3/xweek for 1.5 years now. I gave the shot in my right stomach and within seconds, my face was flushed and warm, my chest got tight with heart palpitaions, my lips were itchy, and the whole lower half of my right abdomen was swollen around the injection site. I almost called 911 but I remembered hearing about this reaction with my inital copaxone teaching. I still almost called because I was by myself but then the symptoms started resolving. I called the on call copaxone nurse and she told me to try to relax and that this is something that can happen randomly but I should still call my doctor and hold any injections until he clears me to. I am really nervous because I don't want to switch medications since its workign so well for me, but that was a scary reaction and I'm still tired event today from it. Has anyone ever experienced this? What do you think causes this? I have an appt to see my doc on friday so we'll see whathe says.
Hi Woodsy715, I'm sorry to read about the reaction you had to your Copaxone injection! I'm glad that you contacted the Copaxone nurse, as that was going to be my suggestion. I do agree that calling your doctor about this new reaction is very important to get feedback before you next shot. I am unsure why this new reaction would start after so long without this, hopefully your doctor can provide some clarification on why this might happen. I'm glad you reached out as others on this forum can give you insight if they have experienced this.
MS Navigator Ashley
I've been on Copaxone for almost a year and just started having severe flu-like reactions. It starts with joint aches, then chills that progress to uncontrollable shivering and 102-103 fever. It's terrible! Has happened 3 times in past 2 weeks. My neurologist suggested it could be a bad batch of medicine. So I called the pharmacy, told them what's happening and they are overnighting me new meds. I'm scared it will happen again...I never had more than some mild flushing, mild chest pain, anxiety for 10-15min before and of course the local site reactions, all totally tolerable. This flu-like reaction is absolutely miserable, and a deal breaker for this drug if it becomes "normal".
Hi Woodsy715! I was on Copaxone for nearly three years and I had several bad reactions to it. I can't tell you what causes it, but I always called my doctor about it. I know every doctor is different but we both knew that those types of reactions were possible so he would always advise me to continue to take the medication. I had really bad skin reactions several times and he would advise that I avoid that area. I'm not a doctor, but based on my experience and what you've described, I don't think you have anything to worry about and can continue the medication. Even if you do have to switch, there are so many options and I'm sure your doctor will work very hard to find what's right for you. Good luck!