The 40mg 3x a week. I'm curious if anyone has any advice about copax. What was your experience?
For me Copaxone was a waste of time; I was on it for over a year. Opinionated views from a patient below, so keep that in mind:
From a scientific/medical standpoint, Copaxone is a poor DMT. It's an older DMT so it has a long and pretty safe track record of side effects -- so that's great! I had the range of common, non-serious side effects: swelling and lumps under injection sites, etc. But those side effects are more in the "annoying" strain rather than the "life threatening" side effect strain like some DMTs have.
Copaxone is also dirt cheap for a DMT, so for-profit insurance corporations love
But me as a patient is interested in effective medicine for suppressing the immune system and a low side effect risk.
On the effective medicine Copaxone falls short -- way short compared to newer (and more effective) DMTs like Ocrevus. Something like 30% of Copaxone patients show no benefit. But when combined with the discredited escalation theory
that for-profit health insurance corporations are in love with because it generates higher profits for their wealthy shareholders, it's still used.
FWIW, this PDF file
from the Swedish Neuroscience Institute in Seattle is a nice summary of DMTs. That file breaks the DMTs down into 3 categories: pills, injections, and infusions. There is more info here on the main MS Society web page
Anybody know where else we can get help with the cost?
Sorry, I get my medical care from the VA paid for by American taxpayers. The VA is great
in some ways, horrible
in others. I know little about the nightmare of the private, for-profit health insurance corporations that most MSers have to deal with.
But I do know that since Big Pharma are making obscene amounts of money from DMT drugs, most of the companies producing these drugs have similar charity functions to "help" with the cost. So they price-gouge, and then get to play good samaritan by giving back some of their booty as PR/charity -- an amazing system that partially explains why US health care is by far
the most expensive in the world.