Have any of you heard of the new fda warning about risk of gilenya causing severe disability after stopping the medication? This makes choosing a treatment so much more difficult considering all the terrible side effects that all these DMDs have.
I need to find a new treatment and my new neurologist recommended gilenya. After researching it there's no way I'm taking it. I was on Avonex for the first three years and wanted something different because I was tired of the shots and how they made me lose a day every week. I didn't have any progression during that time and I was also eating really well - lots of veggies, gluten/dairy free. I've had two rituxan infusions. A new lesion appeared sometime at the end of Avonex or during the rituxan. I wish now I had just stayed on the Avonex. I feel the worst I ever had since diagnosis, which is still really minor from many of the posts here. Good luck.
Here is an article from our website about this topic that you may find helpful: FDA Issues Warning
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Yes, I have heard about Gilenya making you revert back to your old symptoms of MS if you stop it. We just started Ocrevus. Less risk/side affects.
how has ocrevus been since you started?