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Symptoms of MS

How to cope?*

I'm new here and I'm not really sure if this is where I should put this. I was diagnosed on Monday and I am stilly really confused/angry/upset. I'm a college student and I am having issues with my cognition. I need some coping help and I'm not sure if I should call my neurologist or not. This is a new symptom… Read More


good evening, . looking for people who have had similar. At nigh awakened by total body shivers. These are more than tremors, i cant move for a few minutes. I just lay there shaking and my jaw is spastic to the point of pain and chipped teeth. When i can get up walking around starts to settle the shakes down… Read More

Tumefactive MS*

ive been in the hospital the last few days getting plasmaphoresis for possible tumefactive MS diagnosis. I’ve met two more neurologists while being at the hospital who recommend a brain biopsy for diagnosis between that or tumor. Needless to say I’m terrified! Anyone else been through this? Or had a brain… Read More

Some New Things*

Lately it has been my legs and a bit of my arms. My knees, not under the knee caps, but around the knee caps, I can feel the achiness and tiredness.I had to start wearing a knee brace. My thighs are still achy and tired as well. I tried to go for a bike ride, I know its been a while, but I barely made it 1/2 mi… Read More

Having trouble with standing or walking*

Ok I'm going through this again and I don't know if I'm in a flare up or what to think because I can think pretty clearly and I usually get a bit Lonny when I have a flare up. But I have gotten worse and I don't understand how I can get back to my norm so to speak. I have to use a scooter or walker with a seat… Read More

Tingling on right side of lip and cheek *

Hey all! I don’t have a diagnosis of MS but I’m working on trying to find out what’s going on with me. I have so many symptoms of MS but last year was diagnosed with an undifferentiated connective tissue disease. Now I’m not sure if that is what’s going on or not. For the last two weeks I’ve had numbness in my… Read More


Anyone else get it? Pretty bad right now my skin feels hot or stings as well. I'm having issues on the top of my head down to my back and then my mouth around the eyebrows and brige of my nose and around my chin and sides of my mustache. Read More

MS or Anxiety?*

I’ve had anxiety/depression the majority of my life, almost 30. After having joint/muscle pain from an undiagnosed/unknown illness I’ve been panicking that I have MS. The main concern I’ve had is continuous restless leg syndrome in both legs, I’ve been a little unsteady on my feet (haven’t fallen), easy to… Read More

New symptom...maybe?*

So I’ve had this weird sensation the last 2 weeks or so. It started with a pain in my right neck/shoulder. It was an aching pain, which is not out of the ordinary. I had just ended pt for my neck a few weeks ago so I figured it was my muscles revolting from not being worked on during that time. What’s abnormal… Read More

The brain FOG am I going crazy? *

spent half the day searching for brain fog to realize this was a topic 2 yrs ago. Am I going crazy here? I’m reading so many posts about brain fog and it’s pretty scary. I’m LEGIT scared out of my mind. 😭 What use to come so natural to me is so lost. The feeling of losing reasoning skills, comprehension, lack… Read More

Could any of these be MS symptoms? *

I was recently diagnosed with Clinically Isolated Syndrome, and will be starting Copaxone soon to try to prevent progression. It's been a whirlwind of a few months with all of this and processing it all especially since for the most part I "feel fine." As I started thinking though, I wondered if any of the… Read More

Loss of appetite?*

Hello! I was diagnosed with MS in March of 2018. Since then I have been taking Rebif Rebidose as my treatment. Recently I've experienced a fairly extreme loss of appetite. I have to force myself to eat almost every meal because I know I need to. I am on no new medications, just the medications I have been… Read More


Okay I didn't think this would be the first discussion I would start since joining, but I'm a very honest person who has the compulsion to talk about those things others know are going on but are too shy or reserved or uncomfortable to talk about. So let's talk about the elephant in the room shall we?  Last… Read More

MS symptoms BUT only one brain lesion *

Hey everyone! I've been experiencing MS symptoms off and on for about 6 years.  I recently went to a neurologist and had an MRI on my brain. It came back showing I do have a lesion. The neurologist said it can't be MS unless there are 5 or more lesions.... is this correct??? I mentioned that my symptoms match… Read More


ah ha! I discovered something today. I get to this MS hug when things have escalated far. I’ve just remembered something when this happens. Does this happen to you.  May robe tie around my waiste comes flying off. Can’t stand that touching when this hugging sensation is happening.  Driving in my car today my… Read More

Am I still in relapse?????*

 I’m so sorry with the 1000 questions here but I need help! Last week found out I may never have recovered from my last relapse in April. Then again the past two weeks. I’m 6 days now after the steroids (infusion).   Symptoms are slowly disappearing until yesterday. One of my biggest issues I’ve noticed after… Read More