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Symptoms of MS

Room feels like spinning *

 Ok I have a new one besides my falling a lot now it feels like the room is spinning and getting dizzy from it. If I try to move my head from one side to the other it gets worse been getting weaker and falling asleep allot more or sleeping more. Been eating plenty and drinking water and orange juice along with… Read More

Lhermitte’s sign *

Lhermitte’s sign and also constant pin and needles but it’s not as intense as pins and needles . thought I had a UTI because I could go to the toilet and was getting zapped down low not a UTI but wasn’t going toilet properlly. Then i figured it was every time I put my head down I was zapping. Zapping getting… Read More

facial tingling?

Hi everyone, new to this lovely group. I haven't been diagnosed with MS but all my symptoms seem to fitted almost to a T. I've seen two rheumatologists so far and they ignore everything I say and chop things up to different things. My primary doctor knows something is up but is just as frustrated as me. She is… Read More


I am a 39 yr. old female, fighting MS since Feb. 1996.  In Jan. 2005 I participated in an experimental treatment fo MS called "High-Dose Chemo".  I was in Hahnemann Hospital, Drexel Medical Center, for a month.  They gave me Cyclophosphamide to destroy my existing Immune system, then boosted my body to… Read More

What is this excruciating back pain?*

I have back pain on a regular basis, but sometime I get this excruciating back discomfort that is really hard for me to explain. The best way I know how to describe it is as an instense cramping and burning feeling that makes me want to curl up and cry. This can happen in any part of my back. Is this nerve… Read More

Ridiculous itching!*

Anyone else experience this? It was one of my first symptoms, but subsided over time but the past few days it has become worse than ever! I am taking the Vistaril my MD prescribed but I feel like it just makes me groggy & does little for the itching. Any suggestions? I feel like I'm going to scar myself!  Read More

Trigeminal Neuralgia*

So I’m new to this club and was diagnosed randomly but have been living with it for some time, per my neurologist.  I was in a car wreck and a week later had face pain I attributed to the car wreck.  I went to the doctor and he diagnosed the TN and told me I needed to follow up with an MRI and a neurologist… Read More

Having a tuff time!*

Getting jolts of electricity or something going on with my left side! And back spasms right now. I think I'm in a flair up for sure this time. I can't open my left hand now. I have to go for now. The spasms won't stop right now. Read More


Anyone experiencing severe vertigo? This morning I woke up and everything in my room looked as if it was spinning around from left to right. Read More

Breast pain?*

Ok...I have a really crazy question. I started having severe numbness, a couple dizzy spells, and headaches in December. After all the tests, I was diagnosed with MS. I've had no muscles problems, but also started having severe breast pain on one side, back in December. My mammo's, ultra sounds, and even… Read More

ms symptom

for the last 5 months i have been suffering with a diagnosis of intermittent "inflamed muscles" in my neck, trap and between my shoulder blades.  it is extremely painful and i use inflammation gel, pain patch and ice for relief.  Going to a physical therapist for massage and excercises does help but when i stop… Read More

New to this *

Hello All! Last June I began having itching and a tingling feeling of my tongue, my PCP noted low vitamin b12 so we assumed all symptoms related to that. In late October I had The nagging feeling that there was something stuck in my shoe at work but nothing was ever there. That feeling progressed to a tingling… Read More

So...That Hug *

Can u describe it? For me, I dont know if its the hug. I dont know if its THE ms hug. Ill describe it.  My muscles through out kinda contract. Its not painful, just uncomfortable. It comes in waves. They contract for a few se onds, relax for a few seconds. Repeatedly. If I take baclofen, it takes 20+ minutes… Read More

Double Vision*

Hello! New to this, looking for answers/ people that have been through this horrible time ofsoubke vision. I had optic neuritis in April of 2018 which lead to my diagnosis. Now I have double vision. Saw my neurologist, did 3 days of IV Solumedrol....and it has not gotten any better! I don’t believe when I had… Read More

New experience today. *

I had a skin crawling sensation arms and legs this morning for a long time. I haven't been subject to that yet I've had horrible pain that's made even breathing difficult but not the tickling like bugs are crawling on me. I held my breath when I saw that this is a symptom of MS cause it's definitely 'livable'. … Read More

How to cope?*

I'm new here and I'm not really sure if this is where I should put this. I was diagnosed on Monday and I am stilly really confused/angry/upset. I'm a college student and I am having issues with my cognition. I need some coping help and I'm not sure if I should call my neurologist or not. This is a new symptom… Read More