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  • DontTellTheBoss
    Hi all,

    Thank you very much in advance for any response you can provide. I'm just at a loss for answers from my neurologist and long-time opthamologist.

    Is this familiar to anyone?

    My blurry vision comes and goes for days or weeks at a time. My eyeball pain comes and goes. I was just tested visually on the little checkerboard NMO machine and lab-work for the NMO titer, negative (YAY!) I am just over 40 years old so maybe my blurry vision is actually time for glasses...? My opthamologist says I have 20/20 vision though. Some things in my right eye look hazy, listless in color, dull, and blurry. Feels like I might be straining. Left eye is okay. Okay, not perfect, but not as bothersome. Neuro says eyes are fine. The blurry vision isn't like letters are blurry, it's more that certain things are blurry. Like I'm really pushing my eyeball to see things. Or that there are flashes of white light inside my eyeball. Lots of cloudy floaters. There is no way to make my eye focus. Colors are distorted (I thought a pair of slacks were gray - turned out to be purple! LOL)

    Then as fast as the day the symptoms are here, I could wake up in a week and !!bammo!! the symptoms are gone.

    Anyway, does anyone else have strange vision issues that come and go?
  • Nana_or
    Hi Don't Tell the Boss, I can relate to your visual experience. I have experienced come and go symptoms for years. A couple of months ago, my "fusy" vision became markedly worse and I walked like a drunk. Mt opthomologist ordered an OCT ( a relatively new test that takes pictures of the optic nerve). The pictures showed optic neritis in the right eye and old mylination in the left. You may want to see a optic neurologist or retina specialist. Stay strong.
  • jkn55
    Hi I can here what your saying I found out in late novber 2011 that i to have m.s.  My vison was the thing that started on me . The first time i was driving home from san diego  at about 11 pm when all of a suden my eyes started seeing double ! It only lasted  about 10 n seconds but it scared me so i got it ck  It happen again about 30 days later this time at night again it lasted 10 min   went to the doctor EYE Doctor  they kept looking from tthe outside in three doctors , sad to say this but the thrid time i said to then HEY the seeing that you all can't find the problem   looking in  hears a thought How bout look from inside out  I had mri they foud six lison iyt the frout and one big one on the left rear of my brain, didn't no what to think  when told Honestly I really don't even no no what i think about it , About a month later I went totally num from the center of my chest down i has put in  the hosp when every thing was comfremed  Had a lison in my neck to   ,, l, im on copaxon now  it helps a bit but i still get hurt. john
  • maria1
    Me too, colorblind in one eye, eye drops help with the floaters, wait till
    یویوت
    till you spendhours looking for something andit is where it is supposed to
    be. i can't decide if it is the eyes or the mind, or both. I work around it
    asbest as I can, read whenI can see, listen when I can not. The up down
    sideways eye exercises help too. You are just swimming in a bowl of jelly
    with your eyes open, fun isn't it! It willl pass sometimes, the pain too,
    how about lid twitching, got that too? havefun, it is all that is
    worthwhile.



  • kc41101
    Hi There,

                 I went about two years ago to have my eyes checked and the eye doc thought I was lying about the blurred double vision I was having, even now when I take my glasses off I still see things the same (I think I only wear them for a small sense of security). In the past year I've gotten the pins/needles feeling at times and now my left eye wanders when I'm tired which is all the time. Focusing totally drains me.  Early mornings for about 2-3 hours I can focus enough to drive and then after that forget about it.
  • Mokeep
    Thank you all for posting to this problem.

     Ive had MS since 1997 and my eye muscle problems can really be a challenge.  The occasional eye pain and then INO exasserbations with double vision can seem like a Fellini movie! 

    My eyes are 20/20 ... but fixation and tracking can sometimes be very difficult.

     I wish there was a better solution then grin and bear it.... I have been working on VOR exercises and eye muscle strenghing exercises and i think they may be working.  

    Who knows... everyday is different but at least i have some control in trying!  Has anybody got any good tips?
  • lisa76
    My ms started with going blind in my right eye after some persistent eye twitching. My nmo was negative too but I was diagnosed with optic neuritis. Later, much later and after countless doctors and tests, I was diagnosed with ms. I suggest seeing a neuro-opthamologist. My eye hurt too. Felt really sore. U might need a round of I.v. steroids also like I did to try to take down the swelling. Best wishes.
  • DontTellTheBoss
    Hi Maria,
    LOL - I just began taking Gabapentin and now I can't tell if it's my mind or my eyes...!! Yes, I do have lid twitching and rapid eye movement that I can't stop. Interesting. I never knew it was all related to MS. Thank you for your info. I appreciate it.
    Take care,
    Chez
  • Angela131
    My vision problems also come and go.  I have been to the neuro optho and had a VEP tes, but they have said my eyes are fine.  However, they don't feel fine.  Usually when my problems come on my vision gets blurry, worse in bright light, my floaters become more visible, my eyes hurt, but seeing color has not been a problem.  I just get what I would call lines or spiderwebs in my line of sight, kind of like a haze I suppose.  I wear glasses and once went and had my eyes rechecked because I thought I needed a new prescription.  Nope, they eye dr told me my prescription was the same but it appeared as though I was having trouble focusing. 
  • DontTellTheBoss
    Hi Angela,
    Thank you for replying. Spiderwebs is a great description. That is actually what it looks like and feels like sometimes when my eye is tired. I think I'll see if I can get to a neuro-opthomologist. Thanks!
  • DontTellTheBoss
    Hi Lisa,

    Thank you for replying. I appreciate any advice, experience, input from other people with the same issues. I've never heard of a neuro-opthamologist and will definitely look into seeing one. My eye has episodes of twitching and rapid eye movement when it is open. Thanks again.
    Take care,
    Chez
  • DontTellTheBoss
    Hi I can here what your saying I found out in late novber 2011 that i to have m.s.  My vison was the thing that started on me . The first time i was driving home from san diego  at about 11 pm when all of a suden my eyes started seeing double ! It only lasted  about 10 n seconds but it scared me so i got it ck  It happen again about 30 days later this time at night again it lasted 10 min   went to the doctor EYE Doctor  they kept looking from tthe outside in three doctors , sad to say this but the thrid time i said to then HEY the seeing that you all can't find the problem   looking in  hears a thought How bout look from inside out  I had mri they foud six lison iyt the frout and one big one on the left rear of my brain, didn't no what to think  when told Honestly I really don't even no no what i think about it , About a month later I went totally num from the center of my chest down i has put in  the hosp when every thing was comfremed  Had a lison in my neck to   ,, l, im on copaxon now  it helps a bit but i still get hurt. john
    Hi John,
    Wow, I'm sorry to hear that, but happy to hear you actually had a pretty rapid diagnosos. I hope you are able to figure our a medicine that works for you and maybe the Copaxon will eventually kick in and work for you. Take care.
    ~ Chez
  • DontTellTheBoss
    Thank you all for posting to this problem.

     Ive had MS since 1997 and my eye muscle problems can really be a challenge.  The occasional eye pain and then INO exasserbations with double vision can seem like a Fellini movie! 

    My eyes are 20/20 ... but fixation and tracking can sometimes be very difficult.

     I wish there was a better solution then grin and bear it.... I have been working on VOR exercises and eye muscle strenghing exercises and i think they may be working.  

    Who knows... everyday is different but at least i have some control in trying!  Has anybody got any good tips?
    Yikes. So the opthamologist IS right. We do have 20/20 vision and don't need glasses. I'm going to one of the top guys in my town and honestly, he is so kind and keeps insisting, "Chezzie, you have 20/20 and there is nothing I can do for you."

    Mokeep, I'm sorry to hear you are having vision problems as well, but I'm actually a little relieved to hear that others have 20/20 and the nagging blur, tracking issues, and muscle strain are actually a real problem that other people also endure. (Only because I wondered if I was going a little mad.) 

  • Mokeep
    Yikes. So the opthamologist IS right. We do have 20/20 vision and don't need glasses. I'm going to one of the top guys in my town and honestly, he is so kind and keeps insisting, "Chezzie, you have 20/20 and there is nothing I can do for you."

    Mokeep, I'm sorry to hear you are having vision problems as well, but I'm actually a little relieved to hear that others have 20/20 and the nagging blur, tracking issues, and muscle strain are actually a real problem that other people also endure. (Only because I wondered if I was going a little mad.) 

    Yaaaa ... It is hard to explain to perspective (eyesight) sometimes.  Especially to doctors who are  well intentioned, well trained technically but sometimes less  prepared to communicate complex situations in a clear way.  

     We all see this movie a little differently!  ... I am happy to hear we share same part of the theater    
  • Mokeep
    Sounds about right.  One of the more annoying parts of this MS experiece.... Last week i sold my car and couldnt be happier.... driving for me was getting stressful.  I live in an urban area so the car was more of a headache anyway.  Its been 15 years now with MS (I am 39) and these adjusments are interesting to say the least.  My Nonna gave up her car  last year and she is 91.  ????    It sounds like you know how to use your "work arounds" and are making your way.  

     The one thing i can say is that doctors are like mechanics.  Broken engines are hard to fix sometimes.  Doctors have dedicatied themselves to education, yet with MS, they have limited solutions.  They seem sometimes  have ego issues when they cant solve the problem;  must be  frustrating. ....... You are not a liar .

    The thing that helped me a lot is when i decied to break my personal MS health plan into a pie chart.  I was surprised to see how much energy i was putting into the advice of my doctors.  Dont get me wrong is VERY important but equally as important as Nutrition,  Exercise , Mental,  Spiritual, Social and MS Education.    

    Steady on KC.... 


  • DontTellTheBoss
    I did the same thing for awhile with the glasses - wore them as a sense of security. Now I wear them only at night when driving. (IF I ever drive after dark. LOL) But they don't really work. They never did. I spent a few hundred dollars on them just to make myself feel better I guess.
    The things we do...

  • DontTellTheBoss
    Mokeep, I couldn't agree more with your statements. Especially, equally important are Nutrition,  Exercise , Mental,  Spiritual, Social and MS Education.  All of those are so very influential in the treatment of/keeping symptoms and exacerabations at bay. You are dead-on with that. I literally just wrote about those topics on my website. I could ramble on about each one of those topics, but I won't. But really balancing each aspect is critical, not just following the words and advice of the doctors since each person experiences different symptoms and symptoms differently.
  • kc41101
    Hi Mokeep, I never thought thought of breaking things down like that- financially yes but I am definately going to work on the more life aspects. I really like the idea thank you.
  • DontTellTheBoss
    P.S. That "winky" face I posted looks very, very distorted. LOL
    Let's try this instead
  • kc41101
    The winky when you squint is definately cute lol.

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