I have PLMD, periodic limb movement disorder, brought on by my MS. I'm in a wheelchair. Before and after a bowel movement and at night when I try to sleep, my legs periodicaly shoot out. Obviously I can't sleep and it is often painful as my leg muscles get extremely tight. I tend to believe that it is caused by my bowels pressing against the area where my spinal cord has been de-mylinated. I'm finally am getting some relief by taking Requip (ropinirole).
Does anyone else have this problem? What are you taking for relief.
Thanks for posting! I moved your question to the Treating MS discussion board; I thought your question might get more responses from others who have found ways to manage their own PLMD over here.
I've also searched our database, and we don't appear to have any information specific to PLMD in MS. I'm glad that you've found a treatment that helps, and hope you'll keep working with your healthcare providers to make sure that they're exhausting all of the treatment options available to help minimize this symptom.
I know it sounds strange but the nurse that gives exercite to a friend of mine that also have MS told her (and could not give any explication to it) that one thing that works when we have our limbs salting is to put a soap in our bed and that symtom is calmed. I tried it and it worked with me!