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  • lostinthis2

    Help explaining MS Fatigue and heat in a very new relationship

  • leesa
    Wow sounds like me a few short months ago. I dont know why it happens but it does! I found out on my lunch break at work . It was hot but I went for a walk. When I got back to work and in the AC I became suddenly exghausted. I could not do even the simplest task like input information into my computer. I ALWAYS TAKE PRECAUTIONS NOW. I Will eventually get a cooling vest so I wont be afraid to go outside! Good luck to you
  • joynerthedad
    Help explaining MS Fatigue and heat in a very new relationship
    OK.  Try this:  Do you actually understand it?  I don't fully, but this is what I roll with:

    People with MS sometime receive signals slowly or it is delayed.
    Because our sense of heat may be delayed....our bodies are overheating and we do not realize it until it is too late.  Because we over heated, we become fatigued... the same way a car engine loses horse power if it over heats.

    Hope it helps.
  • MS Navigator Jess
    Hi lostinthis2,

    I'll provide some "official" information from our website about both symptoms.  You can also call us and we can mail information to you or answer questions by phone (1 800 344 4867).

    Fatigue: 

    Several different kinds of fatigue occur in MS. For example, people who have bladder dysfunction (producing night-time awakenings) or nocturnal muscle spasms, may be sleep deprived and suffer from fatigue as a result. People who are depressed may also suffer fatigue. And anyone who needs to expend considerable effort just to accomplish daily tasks (e.g., dressing, brushing teeth, bathing, preparing meals) may suffer from additional fatigue as a result.

    In addition to these sources of fatigue, there is another kind of fatigue—referred to as lassitude—that is unique to people with MS. Researchers are beginning to outline the characteristics of this so-called "MS fatigue" that make it different from fatigue experienced by persons without MS.

    Generally occurs on a daily basis
    May occur early in the morning, even after a restful night’s sleep
    Tends to worsen as the day progresses
    Tends to be aggravated by heat and humidity
    Comes on easily and suddenly
    Is generally more severe than normal fatigue
    Is more likely to interfere with daily responsibilities
    MS-related fatigue does not appear to be directly correlated with either depression or the degree of physical impairment.


    Cause of Fatigue in MS Remains Unknown
    The cause of MS fatigue is currently unknown. Ongoing studies are seeking to find an objective test that can be used as a marker for fatigue and for precise ways to measure it. Some people with MS say that family members, friends, co-workers, or employers sometimes misinterpret their fatigue and think the person is depressed or just not trying hard enough.

    Heat Sensitivity:

    Many people with MS experience a temporary worsening of their symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths. For example, some people notice that their vision becomes blurred when they get overheated—a phenomenon known as Uhthoff's sign. These temporary changes can result from even a very slight elevation in core body temperature (one-quarter to one-half of a degree) because an elevated temperature further impairs the ability of a demyelinated nerve to conduct electrical impulses.

    The ‘Hot Bath’ Test Used for Years to Diagnose MS
    For many years, the “Hot Bath” test was used to diagnose MS. A person suspected of having MS was immersed in a hot tub of water, and the appearance of neurologic symptoms or their worsening was taken as evidence that the person had MS.

    Heat-Related Symptoms are Temporary
    It is important to remember that heat generally produces only temporary worsening of symptoms and does not cause more disease activity (demyelination or damage to the nerves themselves). The symptoms are generally rapidly reversed when the source of increased temperature is removed. People with MS who are planning to move to a very warm climate should try to visit first; plans may have to be changed if the weather seriously worsens MS symptoms.

    Strategies for Easing the Effects of Heat
    Stay in an air-conditioned environment during periods of extreme heat and humidity. [If an air conditioner is needed to help minimize the symptoms of MS, the cost of this equipment may be tax deductible if the physician has written a prescription for it.]
    Use cooling products (vests, neck wraps, bandanas, etc.) during exercise or outdoor activity, or pre- and post-cool.
    Wear lightweight, loose, “breathe-able” clothing.
    Icy drinks such as “slurpees” or popsicles can provide temporary relief.
    Use an oscillating fan during indoor exercise.
    Exercise in a cool pool (<85 degrees).

    Hope this helps!

    Jess
  • BronxDudette
    Explaining it how, scientifically? or what the symptoms are? I can only tell you that, for me I have good days and bad. On good days I don't even think about my MS, But then there are some days when I combat crushing fatigue. I am very sleepy and have no energy. Therefore my communication skills are kinda slower. It takes me longer to articulate and my legs feel weak, like as if they are just gonna give out. Those days I try to take it easy as best as I can. Maybe I will stay home. Hope that helps. Let me know if you have any other questions.
    Best,
    Charise

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