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  • WritingSpider
    UPDATE: Thank you all for your helpful answers an understanding. I am in another relapse it seems with simliar issues again and these messages really make me feel less alone. Thanks and God bless you all!
     
    I have been dealing with dizziness since my post partum flare up. It's been about 7 months since that really bad flare. 
     
     
    It got really bad last night and I was falling into walls. It was really scary! I asked my doctor's nurse if this was common in MS and she said it's a fine line because it can be inner ear problems or stroke. 
     
    The way she talked this was not common but I read in many re*****ble places dizziness and vertigo is extremely common in MS. Does anyone else deal with this? Should I let this nurse scare me?
  • maria1
    Hey Kid, It could also be allergies, or drug side effects. Consider getting eye drops that have allergy stuff in them to see if it is allergies. Or check the side effects of all your prescriptions. I had similar problems, collapsing and breaking both my ankles at the same time, turned out it was a hypertension effect of two of the prescriptions. Changed med and am fine.

    Do you get dizzy when you get up from a chair? that is what happened to me. Are you getting enough oxygen? Is your nose stuffed?

    If you like being scared, let her.

    Remember find the fastest easiest way to get the job done. Start eliminating with the simplest proofs, that is, allergies, drug hypertension. Is your back out? If the bones are not aligned that could be it too. Did you fall or did you sleep crooked?


    There is maybe, a simple solution, look for that first. google dizzy and see what they say and beign the elimination.

    Breast feeding? maybe not enough fluids.

    Getting up every two hours? maybe tired.

    Maybe you are not dizzy, maybe the world is. lol   rsvp




  • ccteddybear2014
    well I only get dizzy when I stand up too fast or lay down too fast I dont know why I get dizzy though but it's a pain in my booty when I get dizzy because it just annoys me
  • nursep
    I think the nurse just wants to make sure you take it seriously and have it checked out. So how are you now?
  • maria1
    Another way I get dizzy is when my neck is out of alignment, herniated discs in my neck oftentimes shift out of place, perhaps because the muscles go into spasm. Then i must rest a lot and wait for it to stretch back into place.
  • dwndvdsn

    maria1 wrote: Another way I get dizzy is when my neck is out of alignment, herniated discs in my neck oftentimes shift out of place, perhaps because the muscles go into spasm. Then i must rest a lot and wait for it to stretch back into place.

      I have the disc and back problems too. Was told to move slightly slower getting up and such. But always tell the Dr.

  • maria1
    Hey spider, have you gotten any relief//
  • tiffany49
    I was also going through dizzy spells really bad but I thought it was the seizure med that I was taking that cause me to be dizzy, but flare are just happening twice a day instead all through out the day.
  • thespi
    I have been dizzy for afew years now. My doctor cannot find a remedy. I tried a dozen different pills to no avail.  The dizziness is pretty constant. Everything spins around me.
    I have not heard of any one else having as severe vertigo.  
  • mary-ann

    I too went thru a spell of dizzines.  It was hard to explain how I felt,  I finally said you know how you get after a doctor checks your lungs by telling you to take a deep breath and you get that dizziness.  Thats the way I felt 24-7. The doctor told me I had no adrenlin in my system.  I don't know what meds they gave me,  but afterwards I was ok again.

  • partexpat

    Newbie to this site. However my SEVERE vertigo was the initial ms symptom.   I've used less drousy over the counter meds every day for years.  I just find ways to do the best I can, be aware of my limitations... I've been told 10% or less of us have severe vertigo as initial major. It is very real. We all have challenges, good luck!

  • KLW
    It has been three years since your post.  Did you ever recover from your dizziness and if so, what fixed it and how long did it take?  I have been dealing with constant dizziness for 8 months.  Steroids hasn't worked, meds and anti-dizzy meds have no effect.  I am losing hope. 
  • fourpaws4me
    I suffer with periodic dizzy spells and it is indeed very scary and they make life miserable.
    I was hospitalized a couple of years ago because the dizziness became so bad that I and my doctor felt that I might have had a stroke.
    After having CT scan, and no bleeding was found, we all came to the conclusion that it most likely had to do with this ugly disease, MS.
    If I were you, I would at least check with a DOCTOR, the emergencey room of your hospital...and not a nurse.

  • Ldg1230

    I have dizziness and vertigo.  My dr has prescribed me meds for my dizziness. 

    My MS is yucky.  It caused double vision, and sometimes when my eyes get tired, and I take off my glasses, I can't see but a bunch of blur, and well, I don't get as dizzy. 

    I hope this helps, some, but the dizzy meds helps within minutes,

    Lisa

  • schwartc

    What meds did they give you?  I haven't had relief from meds in the past.  I'm so tired of the dizziness, it really makes life difficult.  Thanks

  • dwndvdsn

    My neurologist said it was common. But that it would be wise to rule out the inner ear problem. Having those issues now. Waiting for my insurance to approve a test my ENT wanted. I know it is he'll to live with that issue trust me.  This was one issues I had which sent me to the Dr. When I was first diagnosed. Don't freak out yet. You need to advocate for yourself and unless you have heard that there is a major issue to deal with from the specialist you should not panic. I have learned that with my relapsing remitting M.S. the. Issues you deal with can rise and fall like the tides. Maybe it could only mean a tweak in your treatment you never know. I have had this same issue totally go away for a while. I do hope this helps some and I do understand the fustration and helplessness you feel. I hope this helps. :)

  • agate

    I think that the nurse was just spelling out the other possibilities, or some of them. 

     

    There's dizziness, and there's vertigo--two different sensations. I've had both of them, and vertigo can be truly incapacitating and even dangerous. Maybe the nurse was trying to spare you some bad experiences by making sure you get this checked.

    I don't mean to scare you even more but when I was 20, which was 19 years before MS was suspected and diagnosed for me, I had an episode of severe vertigo. I had no idea what was wrong but I couldn't lift my head even a fraction of an inch from the pillow without everything spinning around. I made a trip to the bathroom and on the way back I blacked out and fell face forward, destroying 6 front teeth.

    This may or may not have been a first sign of MS. It might also have been an ear infection. It did go away in a couple of days, I'm thankful to say. But about 12 years later it came back though not as severely, and since then I've had occasional twinges of it, nothing like that first time.

    Meclizine helps sometimes.

  • Ldg1230

    I have severe dizziness and vertigo.  I told my neuro and she gave me dizzy meds for it.   Yes, it is common.  I keep a MS journal in which I write in it daily-and then when I go see the neuro I bring that with me.   If I have a "normal" day i draw a happy face, but if I expereince any sypmptoms I write the sypmptoms that I experience, and then if I exp them again, I write the date that I first exp the symptom.  It helps me, 

    I hope you get to feeling better,

    Lisa 

  • Ldg1230

    I have severe dizziness and vertigo.  I told my neuro and she gave me dizzy meds for it.   Yes, it is common.  I keep a MS journal in which I write in it daily-and then when I go see the neuro I bring that with me.   If I have a "normal" day i draw a happy face, but if I expereince any sypmptoms I write the sypmptoms that I experience, and then if I exp them again, I write the date that I first exp the symptom.  It helps me, 

    I hope you get to feeling better,

    Lisa 

  • Ldg1230

    I have severe dizziness and vertigo.  I told my neuro and she gave me dizzy meds for it.   Yes, it is common.  I keep a MS journal in which I write in it daily-and then when I go see the neuro I bring that with me.   If I have a "normal" day i draw a happy face, but if I expereince any sypmptoms I write the sypmptoms that I experience, and then if I exp them again, I write the date that I first exp the symptom.  It helps me, 

    I hope you get to feeling better,

    Lisa 

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