Thank you for being here. I am new in recently diagnosed. I am 52 and have never had an MS attack per se.
over the past year I've noticed foot drop, left side weakness and difficulty with losing words. I have had multiple MRIs, evoked potential tests in neurological work ups to come to the diagnosis.
my neurologist is trying to determine if I had symptoms in the past that were missed. He asked me to create a timeline of anything unusual that happened to me in my life neurologically.
I did have footdrop at age 19 while I was marching in the army. I've had periods of vertigo and dizziness which I attributed to allergies over the years. I have also had extreme fatigue and a very short episode of being unable to speak. Over 33 years of transient issues that were never examined.
Except for the vertigo and periods of extreme fatigue, none of these events lasted more than 24 hours. I was worked up for lupus and RA on multiple occasions but when they came up negative nothing was ever done to examine me further.
My question, now that I finally get to it, is whether this is a usual course for MS.
Sometimes we are lucky enough smart enough wise enough, to listen to our bodies when it needs rest. We do it instinctively, we look at what needs to be done and say, later, and we wonder why we sit and stare at nothing, visiting the far reaches of our universe. Those are the times when our muscles rest, our brain rests, and we renew. If we are wealthy enough we get others to do things for us, further giving us relief. This is the cycle the builds, longer collecting the nuances of ms to give us a big wallop. Years go by before another erruption, like mt st helens, sometimes just spitting ash, other times dripping molten lava. And when we are finally diagnosed it is another long time learning what we think is going on in our bodies, and learning to determine what is our minds playing tricks or something real. Welcome to our world.,
To get a diagnosis of MS you have to (medically) jump a lot of hoops and it sounds like your are well into the process of moving toward a diagnosis. I suppose the reason is that a lot of neurological problems create a similar lists of complaints. It is very good you found an MD who wants to investigate your medical history and help put the whole picture together.
Except for your "not able to speak" episode, your strory and timeline appear very similar to what I have experienced with MS. This even includes having transient issues over the course of thirty years.
Good luck to you. Let us know what you learn!
Hi Guidon, many individuals diagnosed can relate past medical issues to MS. Small things they ignored that did not lead them to seek medical treatment as they disappeared. What you describe sounds like a fairly mild course of MS up until now, but you are not the first individual to report this type of progression to an eventual diagnosis of MS. Please know the National MS Society has MS Navigators available to answer your questions, offer support, and connect you with information about MS and local programs and services. We also have a newly diagnosed packet that may be helpful to review. Please feel free to call us at 1-800-344-4867 7a-5p MST to speak with a Navigator.
MS Navigator Ashley
Thank you all.
Saw my MS neuro specialist. I will start Gilenya as soon as my labs are back. Excited, relieved, scared. All that fits me today.
Starting a a small weight training program to keep what muscles j have left!