Search Discussions

Main Content

  • nicolemc52717
    It started a couple of weeks ago having severe heel pain. I was limping around a lot, walking more slowly than I usually do. I thought I may have injured myself during kickboxing, but it was in both feet. Two weeks later I wake up and it's gone. For the past week I feel like I have to pee all the time and I've been getting up in the middle of the night needing to use the bathroom. I use to not be this way. I've been seeing bright squiggles in my vision, some are light gray and dark gray also. I've also experienced a split second shock sensation in my neck when I turn my head a weird way, it's painful enough to take my breath away. 

    I see my neruo in a couple of weeks and I plan on discussing all of this with her. Which looking back I experienced numbness in my left arm and hand that lasted a couple of weeks. I just brushed it off as carpal tunnel. Is it possible these are all symptoms? I know MS is hard to diagnose, but not knowing what's going on with your body is becoming really frustrating.

    Thanks in Advance!!!!
  • AnyBeth
    Possibly...
    MS can cause any symptoms related to the brain, spinal cord, and optic nerve. Certainly it can cause pain, numbness, vision changes, and bladder issues. But try not to get stuck on a potential diagnosis. It could be MS, but maybe it could be something else.

    Strikes me that that's a lot of different things to be inital symptoms of MS. Maybe there were weird but brief nerve issues in your past that you didn't give a second thought. Or even lasting differences you thought of as just you. (My knees bounce when I sit with pressure on the balls of my feet -- few years ago, learned it indicates a nerve problem.) Or maybe what you have going on is something else entirely. Heck, even if you have MS, that doesn't mean everything is MS. You could have carpal tunnel AND something else. Try not to get caught up in looking for an answer that puts everything together. There may not be one and that's ok.

    Bring up your concerns to the neurologist. Maybe make yourself a list of symptoms, including when they started and when they stopped (if applicable). It could be useful. I hope you get answers, whatever they may be.
  • gabrielle519
    Hello Nicole,

    I had very basic symptoms which made it easy to diagnose. I have heard people going for years without a diagnosis. All your symptoms could be caused by so many things which is why MS is so hard to diagnose. I don't want to minimize your symptoms either because they are very real. It's wonderful your seeing your neuro.

    It can be frustrating but you have to keep pushing your neuro for answers if he won't give them to you find a new one. Good luck.  Gabrielle

     
  • anywhereoutofthisworld
    I understand how frusterating this can be. I'd suggest you definately write down every symptom you're experiencing and bring it with you at your neuro appointment. My diagnosis came rather quickly following two MRIs (brain & c-spine), a series of blood work to rule out Lymes disease for example and lastly, a spinal tap. I had symptoms of MS for quite some time prior to diagnosis, but I don't like doctors or hospitals so I'd find ways in my mind to justify my symptoms as minor stuff. I did see my primary care physician fairly regularly to keep an eye on my high blood pressure but that was it. In fact I rarely called out of work sick and would go to work with bronchitis for example (as long as I was on antibiotics). I'd also get bronchitis once a year and I also suffered 2 asthma attacks when I was in my teens, both sent me to the hospital. After one of the attacks I even passed out in the x-ray room. Here's my MS dx back story - I was diagnosed with Multiple sclerosis in late July of 2017 after a brain MRI came back showing lots of MS lesions and a spinal tap came back positive for high amounts of elevated protein 'o' bands. Due to the amount of lesions & 'o' bands, my neurologist believes I'd actually had MS for quite some time. Here is a tip sheet for guidelines to MS diagnosis: Click to See Link For Guidelines. Next I am posting for you a list of common MS symptoms that helped me verify shortly before my diagnosis that I was pretty sure I had MS.

    Speech and voice disorders
    ----------------------------------------
    Up to 40% of people with MS experience problems with their voice or speech.
    One possible problem is dysarthria, a motor speech problem that manifests as slurring, poor articulation of words, and speaking too loudly or too softly. Another possibility is dysphonia, a change in voice quality, such as sounding hoarse or nasal.
     
    Fatigue
    ----------------------------------------
    Some 80% of people with MS will experience fatigue at one point or another, but fatigue can have many causes. Some people experience “MS lassitude,” a very severe fatigue that occurs daily that tends to get worse as the day wears on.
     
    Numbness
    ---------------------------
    (or a lack of sensation in various parts of the body) is often one of the first symptoms to bring a person with MS to the doctor. Numbness can occur in the face, the body, or the arms and legs, and can interfere with walking, holding on to objects, and even chewing, if the numbness affects the face.
    Sometimes the feeling—or lack thereof—progresses over hours or days, but it usually subsides on its own.
     
    Vision problems
    ---------------------------------
    Like numbness, vision problems are one of the most common early symptoms prompting a person to visit the doctor. The problem can manifest as double vision, eye pain, blurred vision, or a scotoma (it looks like a hole in your vision).
     
     
    Bladder Dysfunction
    -------------------------------
    Bladder problems in people with MS can manifest in two, seemingly opposite ways. Some people have difficulty emptying their bladder. That means urine stays too long in the bladder, leading to infection, discomfort, and a distended bladder. Others can't keep the urine in, resulting in leakage and urgent frequent bathroom trips.
     
    Constipation/ IBS
    --------------------------------
    The most common bowel problem related to MS is constipation or also irritable bowel syndrome.
     
    Dizziness and Vertigo
    --------------------------
    The good news is that the symptoms of dizziness and vertigo often do go away and, for others, common drugs used to treat dizziness and vertigo in otherwise healthy people can be effective.
     
    Sexual Dysfunction
    ----------------------------
    There are three types of sexual problems related to MS, and the first is direct neurological damage to the nervous system. For women, that means loss of sensation, loss of vaginal lubrication, and an inability to achieve orgasm. For men, it can mean sensory changes as well as difficulty getting and maintaining an erection and difficulty reaching orgasm.
    In addition, people with MS might feel reticent about sex because they’re tired or are worried about bladder control. Some MS medications can also affect sexual function.
     
    Depression
    --------------------------
    Not surprisingly, depression is common among people with MS. Changes in the immune system can contribute to depression, as can biochemical changes in the brain.
     
    Cognitive Dysfunction
    --------------------------------------
    Cognitive dysfunction affects upwards of 60% of people with MS. The good news is that only specific areas are affected. This could be recent or “working” memory or the speed at which a person is able to process information. Or a person may have trouble focusing or multi-tasking. Once these problems start, they often don’t go away, but they do progress slowly.
     
    Anxiety
    --------------------------------
    This is the poor second cousin to depression. That’s because depression gets all the attention, though anxiety can be equally debilitating. Not only are there organic changes in the brain that result in anxiety, but the ongoing, uncertain nature of MS can be nerve-wracking.
    MS can also involve mood swings and irritability, although the irritability may be a consequence of depression.
     
    Emotional changes
    -------------------------------
    About 10% of people with MS may experience “pseudobulbar affect” (PBA), a neurologic change that usually occurs in tandem with cognitive changes. Here, the expression of a mood or feeling is disconnected from how a person’s actually feeling so a person may have uncontrolled bouts of crying when they’re not actually sad or they may laugh hysterically at inappropriate times.
     
    Pain
    ----------------------------------------
    The pain is often the direct result of nerves damaged by the disease. If this is the case, the person may feel severe burning sensations in their legs, feet or hands, or might imagine a knife is stabbing the side of his or her face because the nerves on that side are inflamed.
     
    Spasticity
    ---------------------
    Spasticity can involve both stiffness as well as involuntary muscle contractions. As a symptom of MS, it’s most common in the legs and may manifest as a mild feeling of tightness in the muscles or as more severe pain.
     
    Balance/ Coordination Problems
    --------------------------------
    People may report they feel suddenly weak in one limb or they may find objects slipping easily out of their hands. If there’s damage to the cerebellum, the part of the brain that controls balance, people might also be unsteady on their feet and prone to falling.
     
    Tingling
    --------------------------
    Tingling is related to numbness and may feel like your arm, fingers, or toes are falling asleep, yet never quite waking up. Like other MS symptoms, this is a result of damaged nerves sending mixed signals to the different parts of the body. People may also experience something called the “MS hug.” It feels like somebody is grabbing them very tightly around the midsection, but it’s not muscular.

    I truly hope you find the answers you're seeking. This is a trying  time and it can be difficult not knowing what's going on and quite stressful. The members of this site are always here for you and you can count on that.
    Hope is the only bee that makes honey without flowers. -
    Robert Green Ingersoll