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  • Bethjo
    Hi, I was diagnosed with MS in 2007 at the age of 13 recently I have had one of the worst relapses in about 8 years and it has caused an enormous amount of pain in legs mostly but also in my arms and hands. I think it's neuropathic pain which I know is really hard to treat, but has anyone else been through this kind of pain? If so have you found any way of dealing with it? 
  • RQManchester
    I haven't been through that kind of pain.  But my post comes in the way of advice, which you may not want.  You are very young.  You have your whole life ahead of you.  Think you should be on a disease modifying medication.  They have some very good ones now!  I have been on one for 16 years, and I think it has saved me!
  • j5796
    If you don’t mind me asking which medicine are you on?
  • annettereed66
    I also had major pain in my arms,neck,shoulders,back and legs recently. I got trigger point shots at pain management and they worked for mt upper body pains but not so much for my lower half. My legs got to hurting sooo badly i read up on it and called my Dr and told her i was worried i might have a blood clot. She told me to go to the ER, they did a ultrasound and found a blood clot. So if your legs keep hurtin badly or if you get any swelling then you should request to have them checked for a blood clot, you gotta be proactive with your ms cause the drs dont always catch these things like mine didnt, i had just seen her 3 days before and she never even suggested that i could have a blood clot with all my symptoms.
  • MS_Navigators
    Dear Bethjo,

    This is Steve with the National MS Society. 

    I'm so sorry to hear you are dealing with so much pain!  Here is a link which will take you to information from our site about managing MS related pain. I hope you are able to get some relief soon!

    https://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Pain

    Take care,

    Steve