Search Discussions

Main Content


Research survey on MS*

I am a medical education researcher and am fielding a survey to individuals with multiple sclerosis (MS) to understand their specific challenges as well as informational and educational needs. The purpose of the research is to develop a report/publication to inform supporters of patient education of the real… Read More


Hi MS Warriors! I am trying to learn more about the needs of MS patients to develop new services for delivering your specialty medications. If you are willing to help out with this project, I am conducting a 20-minute survey and offering a $15 Amazon gift certificate for qualified US participants. The survey is… Read More


The Marginalization, Mental Health, and Empowerment Team at Teachers College, Columbia University is looking for individuals who would like to participate in a research study exploring the life experiences of individuals with Multiple Sclerosis. This survey should only take about 15-20 minutes. After reading… Read More

Lorenzos oil*

This movie is excellent   Starring Nick Nolte and Susan Sarandon. It's about two parents dealing with the disease of their child.  If you want to see the movie stop reading now. I'll proceed to spoil it now...  The decease was a demyalination similar to MS although much more violent. But the parents found an… Read More

Just sharing in case this helps anyone *

My dad unfortunately passed from a heart attack about a month ago at the age of 71.   He had battled MS for the past 15 years of his life.  He had such a great attitude.  I miss him dearly.  Dad had secondary progressive MS. The reason for this post is that approximately 4 months ago, Dad had a UTI and when… Read More

MS Treatment Satisfaction Research

Hello everyone,I'm a student at the University of Florida conducting research on the treatment of neurological diseases. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5 minutes to complete and can be previewed… Read More

The Unusual Seven*

I came across this article online, which can be found by Clicking Here. I pasted the info below. I believe I have had most of these symptoms myself in one way or another so I was curious who else has had these same symptoms occur in some form. I was only diagnosed in August of 2017 but many of my Ms symptoms I… Read More

Submariners with MS *

I spent 9 patrols on the SSBN617 FBM submarine. I'm wondering how many if any other fellow Submariners have been diagnosed with MS. Since lack of vitamin D has been linked in some way to MS. I'm not sure if anyone has ever researched this. Since we spent a lot of hours out of sunlight our vit. D levels were… Read More

anti-MOG *

So I was diagnosed with MS in january 2016, then when all my lesions went away i was diagnosed with ADEM in July 2018. After a recent relapse I was then diganosed with MOG, which is a really rare and new dease that doctors are just now figuring more about. I guess though this emotional roller coaster, I was… Read More

Facial myokymia & Ms*

I every once in a while get twitching in my left eye as I did this evening. I've noticed it even more since being diagnosed with Ms in late July of last year. Today I came across an article about a man who's left eye twitching helped lead to his Ms diagnosis. I think the article is interesting and wanted to… Read More


Hello Everyone,My name is Tyler Johnson and I work for a market research company in Denver, Colorado. We offer a wide variety of marketing research, including medical studies. Our company was approached by a client that wants to preform research to assist individuals diagnosed with MS. The project was… Read More


Hi guys, Just joined! My hubbie was disgnosed 2 yrs ago, he's on Glatop + gluten free diet. Not sure which one works better, but he's doing great so far. Apart from some fattigue, moods or being tired, I don't see much of a difference. He can still move as before, still swimming, hiking, doing all activities… Read More


anyone familiar with this? so many contradicting foods recommended in the dietary it very outdated or just ignored? interesting...will someone who is interested in studies and scientific words skim through and share your opinion? Thank you VITAMINS AGAINST MULTIPLE SCLEROSIS Nearly every person with… Read More