MS Connection

Hello everyone,I'm a student at the University of Florida conducting research on the treatment of neurological diseases. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5 minutes to complete and can be previewed… Read More

I came across this article online, which can be found by Clicking Here. I pasted the info below. I believe I have had most of these symptoms myself in one way or another so I was curious who else has had these same symptoms occur in some form. I was only diagnosed in August of 2017 but many of my Ms symptoms I… Read More

I spent 9 patrols on the SSBN617 FBM submarine. I'm wondering how many if any other fellow Submariners have been diagnosed with MS. Since lack of vitamin D has been linked in some way to MS. I'm not sure if anyone has ever researched this. Since we spent a lot of hours out of sunlight our vit. D levels were… Read More

Can someone simplify the criteria in laymans terms please? Read More

So I was diagnosed with MS in january 2016, then when all my lesions went away i was diagnosed with ADEM in July 2018. After a recent relapse I was then diganosed with MOG, which is a really rare and new dease that doctors are just now figuring more about. I guess though this emotional roller coaster, I was… Read More

I every once in a while get twitching in my left eye as I did this evening. I've noticed it even more since being diagnosed with Ms in late July of last year. Today I came across an article about a man who's left eye twitching helped lead to his Ms diagnosis. I think the article is interesting and wanted to… Read More

Hello Everyone,My name is Tyler Johnson and I work for a market research company in Denver, Colorado. We offer a wide variety of marketing research, including medical studies. Our company was approached by a client that wants to preform research to assist individuals diagnosed with MS. The project was… Read More

Hi guys, Just joined! My hubbie was disgnosed 2 yrs ago, he's on Glatop + gluten free diet. Not sure which one works better, but he's doing great so far. Apart from some fattigue, moods or being tired, I don't see much of a difference. He can still move as before, still swimming, hiking, doing all activities… Read More

Leeds researchers seek adult volunteers with chronic physical health conditions for online study about medication use. Please share! https://tinyurl.com/y9rhy97d Leeds researchers seek young people with chronic physical health conditions for online study about medication use. Please share! Ages 13-15 years… Read More

anyone familiar with this? so many contradicting foods recommended in the dietary plan...is it very outdated or just ignored? interesting...will someone who is interested in studies and scientific words skim through and share your opinion? Thank you VITAMINS AGAINST MULTIPLE SCLEROSIS Nearly every person with… Read More

“Physiological and psychological responses during treadmill cardiopulmonary exercise tests in ambulatory persons with multiple sclerosis”This reaserch study includes completing a cardiopulmoary exercise test. A cardiopulmonary exercise test is a bout of high-intesnity exercise completed on a treadmill to a… Read More

So I recently found out that I have a severe skin condition called HS. My immune system is attacking my skin. My healthcare option is Humera.... This can cause my MS to worsen. However, nothing is TRUELY known how this drug affects someone with MS and his/her medication. Is there anyone out there who has… Read More

I read a new study today that says eating fish and taking fish oil may reduce the risk, progression and symptons of MS. (https://www.medicalnewstoday.com/articles/321075.php)"Omega-3 PUFAs have been shown to be neuroprotective during aging and suppress MS-related inflammation through multiple mechanisms in cell… Read More

I recently read an article, which you can also read here: Click For Article , that claims people with multiple sclerosis (MS) feel more than twice as much withheld anger as the general population, but expressed anger levels are similar. Researchers were surprised by the results from the 195 MS patients. They… Read More

To vaccinate or not to vaccinate? I recently read an article on this very topic in regards to MS and was wondering what the views were of the members of this site or if they even ever thought of it. To review the entire article: Click for article. Here's another link to firther information on vaccines and MS… Read More

Read an interesting article on donation of organs and *brain tissue (*for MS research) for MS patients after they have passed on. It also touches on blood donation as well. To read the article in full, Click here. Just wanted to hear others thoughts on all of this whatever they be.Hopelessness has surprised me… Read More

I recently read this article on types of MS pain that exist within the MS spectrum. To read the article, Click here. I am trying to educate myself on the types of pain I tend to feel at various times, as I am still learning about MS having just been officially diagnosed in late July 2017. This article clarifies… Read More

I recently came across an interesting article where a daughter compared her MS experience to that of her mothers (the daughter is an MS nurse and her & her mother both have MS). I think the article is interesting as she discusses how in the past MS was treated and how it is being treated now and how very… Read More

Have been doing some reading lately on the effects of some MS medications that can in fact lead to hair thinning/ breakage. I was doing the research as while I still have a full head of hair, I do notice it is thinner & more prone to breakage since starting Tecfidera. If Tecfidera is working (haven't had a… Read More

Autonomous vehicles (or driverless cars)  are being developed to transport people safely without any need for those people to drive. These driverless vehicles will still need some input from the people using them - perhaps about the destination - and could also retain some control features. The Intelligent… Read More