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Possible / New Diagnosis

Evoked potentials

I recently had a full evoked potentials study (somatosensory, visual, auditory) and received the results this week. Unfortunately my neurologist is not available to explain the results, and the report is very confusing. The Impression said that they could not detect any subcortical signals in the somatosensory… Read More


So I've had neurological weirdness for years now. Lots of fatigue, weakness, double vision (but due to eye deviation), eyelid droop, blurry vision, I'd randomly lose vision in one eye (it would completely white out in that eye, could see nothing but solid white and my eye would feel strange), my balance is very… Read More

Symptoms of MS or not*

Hi everyone. I'm new to this page. I'm having symptoms of which I'm not sure if they are MS. for the last 14 months my doctor keeps saying fibromyalgia. In the last few weeks I have been getting numbness and tingling in face face, started in my cheek, now I get it on many places on my face. Cheek, corner of… Read More

Still in limbo*

So it's a month later and still no answers. I had my lumbar puncture on May 16 and had to wait two weeks for the results. They came back negative - no OCBs, normal protein levels, nothing to indicate MS. Still waiting for a callback from my neurologist on whether that means no MS, though from what she has said… Read More

What was your age when diagnosed?

At 65 I was diagnosed with MS.  After having the same vision issue 20 years after the first occurance I was sent for an MRI.  Hey, I thought it could be a brain tumor.  My physician sent me for an MRI on the recommendation of my opthamologist.  Came back to my physician and she told me that she felt I had MS… Read More

Ok docs, is it or isnt it?*

Hello....this is my first post so I hope I dont ramble, lol. For the past 3 yrs I have been having awful symptoms. Finally last year I was sent to a Neurologist for something else and had my first MRI which showed around 14 lesions on my brain....a few on the right, the rest on the left. For the last year I… Read More

T spine MRI maybe lesion?*

Hi, I have not not been diagnosed yet but have several symptoms and have periventricular and cortical lesions on the brain MRI. I am 36. I had a negative cervical MRI and a negative lumbar puncture so my neuro is just watching. They didn’t do a thoracic MRI but I have the MS hug symptoms terribly! So my pcp… Read More

What am I going to do?

I'm 33. I have just been released from the hospital with a diagnosis of MS. I can't feel the floor under my feet, which leads to balance issues, but then, I was clumsy to begin with. :)  I also can't feel my lady bits as well as I used to, making it harder to have a fulfilling sex life.  I'm telling the world… Read More

Still Nothing*

Hello, so first a little background. For almost two years now I've been dealing with pain. Starting at first in the joints of my knees and hips to now being spread throughout my body. When it first began I was told it was probably inflamation due to my Graves Disease and nothing else was done about it. At first… Read More

Diagnosed 5/19/17. Solumedrol?*

my symptoms started in January this year and the diagnosis was confirmed just over a week ago. I completed a five day course of high dose solumedrol iv yesterday. i can't tell that my symptoms have improved at all.  What does solumedrol do to the disease process?  In fact, I feel absolutely awful.  I have… Read More

Should I fire my neurologist?*

I posted this last week on my first thread but no one replied... I'm guessing that because the thread is old, no one or very few people checked it. I'm new to this site and not sure how this software handles subscriptions and notifications. Anyway, with apologies to anyone who already saw it and just didn't… Read More

Scared and Confused!!!*

Hi All, I am new to this site. I was diagnosed with Fibromyalgia about 5 years ago. Since that diagnosis, I have had episodes of what I now know is Trigeminal Neuralgia, the Llhermittes sign, intermittent paresthesia and weakness in my legs, arms and hands, and neck and shoulders. I just always told myself its… Read More


I wish I had gotten up to talk with you yesterday. I am sorry that I didn’t. I remember coming into an infusion suite where people are acting as if sitting around with an iv stuck in their arm was a normal thing and being so overwhelmed. I had my first episode in 1990 but was not diagnosed until I had a second… Read More

Spinal Tap*

Hello everyone, I have a long history with MS as my mom died from complications associated with her MS, my uncle is currently living with MS and their cousin also has MS. I have recently started exhibiting symptoms that may be MS and will be getting my first MRI on Wednesday. If they find concerning results, I… Read More

I just want to know what this is... *

I’m incredibly frustrated. I have severe cognitive issues, dizziness, vertigo, numbness / heaviness in limbs, muscle spasms, tremors, phantom pain, slurring words, stuttering, problems picking correct words, fatigue.. you name it. some of these for 2+ years, some for 3-6 months.  Ive has an MRI: clear. A… Read More

Looking for answers and support*

I'm a 62 year old female living in northern New England, a college professor and an avid day hiker. Last May I started noticing an odd feeling of weakness in my right leg when walking, though it didn't disable me in any way. I also noticed that my patellar reflex on that side was very brisk, and when pushing… Read More

Newly diagnosed frustrated with waiting*

It has has been a long six months with many symptoms that keep continuing.  Diagnosed last week with MS after brain MRI.  Now waiting for neurologist and MS clinic.  Cannot handle the waiting any longer and lack of information. Neurologist is away on holidays and will triage when returns in two weeks.  I have… Read More


After an attack in late November that made the whole right side of my body numb and a MRI showing mass swelling on the left side of my brain and some on the left,  5 day hospital stay soulmedral and prednisone taper, I was sent home with an MS diagnoses.  I went to a MS clinic got an LP and blood drawn, and… Read More