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  • ashschoen
    Today is the day...at least I hope.
     
    This is my first post to this site. More than anything, I am seeking to better understand what has been happening to me for many years. Things that never made sense, suddenly now becoming more clear. 
     
    Today is the day that I will get the results of my most recent T3 MRI. I believe I have MS - but will the evidence lead to that conclusion? Hopefully today is the day I find out.
     
    For the past 20 years, I've experienced unexplained incidents and symptoms. Things that never seemed to fit into any box...until now.
     
    Earlier this year, I was taken to the hospital twice with "stroke-like" symptoms. This included numbness and tingling, slurred speech, disorientation...and something new...dizziness.
     
    The first time, I was treated like the sterotypical "anxious" female and sent home. The second time, I was kept overnight left only with a new prescription and diagnosis of vascular issues and a TIA.
     
    The symptoms after this event were like none I've ever experienced. Numbness and tingling in mouth and limbs, dizziness (turned out to be nystygmus confirmed by VNG),  confusion and memory issues. I continued to press my neurologist for answers only to find that they were only interested in looking at my hypertensive history. 
     
    Never fully exploring the multiple lesions that were present on my MRI.Despite the results referencing the possibility of demyelinating disease. 
     
    If this were the only incident, I may have chalked it up to just another TIA. I say another because these incidents have been happening for years.
     
    I developed RLS in my teens, followed by strange symptoms (that I dont recall) which sent me to the ER in college (birth control was the issue, they said).
     
    After college, it was months of severe migraines originating from my neck...that suddenly disappeared for no apparent reason.
     
    My more recent "episodes" (2008, 2011, Current) always seem to begin the same way: Spike in blood pressure with stroke like symptoms, followed by a series of strange symptoms that cant be explained by hypertension (my nephrologist tried to unturn every stone until finally telling me it was a CNS issue...without a doubt).
     
    After the first episode I experienced ongoing numbness and tingling: after the second it was  back spasms, fatigue, and itchy palms. 
     
    And now, ongoing dizziness issues (VNG confirmed it was from damage of some sort), numbness and tingling, cold water feelings in head, pruney fingers, weakness and buring sensations, memory problems etc. 
     
    Ive visited with the best neurologists at Johns Hopkins to rule out Vascular issues. Check. Have ruled out all other possibilities. Its Migraine...or its MS.
     
    My current doc (who is an MS Specialist), as of my last visit, had MS on the back burner while we awaited availability of the T3 MRI. As a potential option he began treating a possible migraine issue with Amitriptyline.  It hasnt helped. 
     
    So, now today may be the day I get that diagnosis. Or not. In my heart of hearts, I believe there is something bigger here than migraine. 
     
     
  • maria1

    ash, There is a post called 'for the mind' which works for relieving migranes, type it in the search box. 

    Do you go to the beautyparlor? there is what is called, beauty parlor stroke syndrome, which mimics stroke /ms.

     

  • MS Navigator Jess

    Hi ashschoen,

    Welcome to MS Connection!

    Please let us know what you find out, we are here for you.

     

    Jess

  • ashschoen

    MSNavigator_Jess wrote:

    Hi ashschoen,

    Welcome to MS Connection!

    Please let us know what you find out, we are here for you.

     

    Jess


     

    Thanks Jess. The T3 MRI showed pretty clear signs of MS so were now moving on to the spinal MRI and Lumbar puncture. Im fortunate that my neurologist is considered an MS Specialist so he knows his stuff. He's pretty certain, at this point, that MS is going to be my final diagnosis. Tough news, but some relief in that I have an idea of whats happening to me.

  • raineydaze

    I really hope you can get a real answer. I am in the waiting stage, too. Please post and let me know.

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