I am still undiagnosed but I have increasingly severe symptoms, nearly all of which aren't visible to other people. Over the past few months, I've received unsupportive or unhelpful comments from some people who I have talked to about my condition. I've had people tell me all I need to do is reduce my stress, or meditate. My husband told me that the symptoms are all in my head, although I think that's more him being in denial (hoping I'm fine) instead of him really thinking I am making myself sick. How do you handle comments like these?
How do you know that? Where did you read that? Is that something you have printed that I can read. I am really interested in that info where did you get it?
Yes, you are correct it is all in my head, that is where ms attacks.
Why do you think I am making myself sick?
Going for therapy may be a good way to get some support from him.
We pretty much all cringe at those comments or the so called "advise" that we get from people. I have come to the conclusion that the people are indeed ignorant, they really have no idea what they are talking about. But... they also have no idea how these type of comments make us feel. I think if they knew, they probably wouldn't say it, because deep down they are just wanting to releive us of some suffering.
So, there are two choices to make here:
1. You could inform them of how these type of comments make you feel.
2. You could ignore what is being said, and find some comfort in knowing they do want to help you, even if what they are saying is very unhelpful.
I do both options depending on my mood lol. I really strive to get myself to do number 2 though.
I just don't talk about it anymore. People cannot understand but its human nature to validate our symptoms with excuses. MS is not only invisible to others, its also taboo unless you don't mind the ridiculous things people say. That's why this support site is so valuabl . Only understanding people here. :-)