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Possible / New Diagnosis

i'm asking for help or advice*

Now that MS has been brought to my attention I've had weird issues all of my life. When I was young probably 1st or 2nd grade I was having these debilitating migraines. My mother took me to an eye Dr. I was given glasses and migraines went away. Was told then I had astigmatism in both eyes and that I was near… Read More

What are my odds?*

Hello everyone.  I'm scared to death, but I'm hoping for some straight answers here.  I'll try to be consice so this doesn't get boring.  I've had so many injuries, it's also kind of confusing so I am going to present the info according to my symptoms instead of in story form. Hands - my right hand has been… Read More

Waiting for neurologist *

Hi.  I'm new here. I have been told I may have ms.  I'm  torn about how I feel about the possibility.  On one hand I'm scared, but on the other I'm kinda hopeful that I will finally have an answer about what is wrong with me.  I had half convinced myself I'm just crazy. It didn't make sense that I could be in… Read More

Symptoms but no diagnosis, question*

I'm feeling so frustrated with this. I have constant numbness in my right 3 middle toes for at least 3 years and decreased sensitivity in hands and lips for a year.  Lumbar puncture is normal and MRI has shown 1 lesion for the past 2 years since I started seeing a neurologist. I've been told he ruled everything… Read More


Hello, new to this forum, 21 average weight. I started having issues this past August (2018) it started with stabbing pain in my right side by my hip and was sent to the emergency room for possible appendicitis, it ended up being clear of that. Within a few weeks I started having panic attacks which I had never… Read More

Searching for an answer...*

hello, im so distraught, I don’t know where else to turn where people will listen to me!  I’m 39 and I have 3 babies under 6 years old and I’m petrified at the thought of not being there for my kids... my symptons started in January for the most part.  I presented with numbness in the face, lower leg, foot… Read More


Needless to say, it's being called atypical MS which doesn't help. I have been through hours of MRIs, blood tests, a lumbar puncture (doctor wants another one). And things just keep progressing  little more each day. Totally wrecked my life as well. Clinging on to my job but the fog and memory issues are… Read More

Worried about ms testing *

hello . I am a 41 yr old female . With a history of anxiety disorder but otherwise have always been healthy . Past 3 years after I have my son in 2016 gained weight and am now 60 pounds overweight . So in past 3 years have had a few ailments I contributed to age , weight or anxiety .. like : back pain and or… Read More

Searching for answers *

Hello I've been experiencing many signs of MS. My hospital stay was not a good one, the doctors were very rude. However my results from my lumbar puncture came back to show my demylenating protein was 3.2 and I had a higher than normal IgG levels. The 3.2 was high for that lab, and also found signs of neural… Read More

Wondering how nervous I should be...*

Hi everyone, I'm new here. I've been having strange symptoms, and I'm not one to go to the doctor unless I really need to, but I finally broke down and went last week. My left eye has been twitching for 35 days. Numbness/decreased sensation/occasional burning pain in some of my toes. The numbness is slight but… Read More

Need Patience *

Have not been part of a forum in 10 years, but I need to put these thoughts somewhere. Thank you for having a section for those of us waiting to be diagnosed. Besides hearing if this sounds like it could be MS, I hope this will help me keep track of symptoms as time goes on. It's a lot, and I don't expect… Read More

Time to move on?*

About 2 years ago I began experiencing what I later learned to be Lhermitte's phenomenon. My PCP referred me to MRI which was notable for abnormalities on the cervical spine and an essentially normal brain (aside from a few spots that could represent migraines?) I was then referred to a neurologist (and his… Read More


Hello, All! I was recently diagnosed with MS after two pretty bad flares that were about 3 1/2 years apart.  I just met with my new specialist yesterday & will soon be starting on Plegridy.  I was hoping to learn from others that are currently taking (or have taken) this medication.  Any advice or things I… Read More

28 and don’t know what to do *

hi there, was recently diagnosed with MS. I was experiencing some textbook symptoms and after an mri, the doctor told me it was MS, then they just sent me home with a steroid.  I am only 28 (with a newborn baby.) I see a neurologist tomorrow. But what I am looking for, and hoping I can get is some help in the… Read More


I went to my primary doctor a couple of years ago because I was having issues with my balance (if I lose my balance I have no chance of correcting myself so I fall), intermittent double vision, dizziness, horrible muscle cramps (where it feels like my bones are breaking) and memory/word finding issues.  She did… Read More

Just need some thoughts*

Hi everyone, so I'll jump right into it. The past two years I've has a host of issues. Stomach issues, reactive Hypoglycemia, left sided weakness, heat intolerance, heart palpitations, headaches, vision changes, maybe once a month for a few days ill get extreme vertigo, if I'm on an uneven surface I get like a… Read More