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  • jeanaj6306
    I was just diagnosed on Tuesday I am scared and do not know what my future looks like now?  
  • merryb53
    I was exactly in your place in 2009 but a little older than you.  I believe that we are tough and that's why it took an exasparation to try to hold us down.  I can tell you that I journaled when symptoms started and still have that page.  Things are so much different now. And things are different as they learn more about MS.  The most valuable advice was a gentleman friend said "Oh I have a friend with MS, you'd never know it, it barely affects her at all".  I thought he was cracked.  My own story is diagnosed 4-5-09, took a new job in the region and started 5-6-09,  I was walking with a walker, dropped it to a cane on the interview and threw the cane down within the month.  I didn't tell a sole for a year. I have done the Pittsburgh walk every year.

    Read, read, read all you can. Knowledge is power! You will think of it every day of your life from here out.  I can sometimes forget, but why would I? It is part of me now and I am a superstar!  I have a wonder woman cape under my clothing, people cannot see that either, if you catch my drift.  We do live withh a hidden disease.  Right now you need time to process.  I have an extra cape if you want to borrow one!  

    Welcome!
    Mary
  • jeanaj6306
    Thank you so much
    That is so  funny  I was wonder woman for Halloween this year. I just want to stop crying every time some talks to me and get back to the rockstar I know I can be. I raised two amazing boys by myself I know it in me to handle this I just have to get in the right mindset. Thank you!!
    you have given me a great deal of hope.
  • TheFLogJournal
    Good response! The Lord is on our side and doesn’t want us ill, but rather we are all super heroes. He stepped into my life at the right time to show me food is my medicine instead of drugs. Check out my book The FLog Journal on how God interceded. God bless and I pray that God keeps stepping in and we all keep wearing our capes!  - Angela Landeros 
  • Chrissyny
    How funny that wonder woman thing😉😉😉😉😉😉😉😉😉😉
     you said that you raised two boys, now you have to take care of yourself. Take a deep breath you will you need to do for yourself, read, learn, share, also don’t forget love yourself.
    😉❤️✌🏼😉❤️✌🏼😉❤️✌🏼
     Also the MS Society has tremendous connections, phone numbers and resources. You might want to check them out call them up and see if they can send you information.   Plus you’re on this website, you’re looking in the right direction
    keep smiling even if it’s a forced smile 😬😬
    ✌🏼❤️😊✌🏼❤️😊✌🏼❤️😊✌🏼❤️😊✌🏼❤️😊✌🏼❤️😊
  • golgotha
    Hi, and sorry to welcome you to our exclusive club here.

    I think everyone goes through feeling overwhelmed and the various stages of grief when they're first diagnosed -- I know I did (several times!:).

    If you don't know what your future looks like, how are we to know? :) Seriously, MS is a very individualistic disease. At this point, your life has a new focus on being healthy and happy -- but I think that should be the focus for everyone.

    You didn't mention symptoms and issues that caused you to be diagnosed, but those vary and can come and go -- again, it's an individual thing.

    merryb53 mentioned knowledge is power and reading a lot, and I agree. After you finish crying, it's time to learn about this disease.

    In addition to reading, I'll suggest watching some videos. This doctor (an MS specialist neurologist in Ohio) has a bunch of great advice about various drugs and MS in general -- highly recommended.

    He's got a video specifically for newly diagnosed patients that you're sure to find interesting and reassuring. And there are a wealth of other tips and information that you're likely to be interested in.

    Your profile mentioned starting Ocrevus; that's good you're getting on a DMT and seem to have a handle on this. I haven't had any reactions or issues since I've been on that (coming up on a year for me).

    This PDF file from the Swedish Neuroscience Institute in Seattle is a nice summary of DMTs. And this video from a presentation at the Rocky Mtn MS Center talks about Ocrevus. It has a nice table at about this point which summarizes some of the popular DMT options. And the doctor mentioned above also has a playlist of videos on Ocrevus. Those will likely make you feel reassured about your choice.
  • Jtrevino83
    HelloI am sorry to hear about your diagnosis, I am someone that has been fighting this desease for 16 years and just like anything it has its ups and downs but I know that the best thing to do in you plan of action is to get a doctor that you feel comfortable with and that specializes in Multiple Sclerosis. That's something a friend of mine told me when I was starting this journey and is something that has helped me so much, because my first neurologist was so dumb and so incentive that he didn't care really, and for this you really have to have someone that is in your corner fighting with you. Now another thing is to look in the bright side always. I remember when I was diagnosed there were only three treatments for MS and they were all injections, now people that are just diagnosed have the blessing to have a lot more tools under their belt and things are getting better and better everyday with medicine and science that are making it possible for all of us to live a full and happy life. I also would like to tell you about this YouTube channel of a great MS specilists that really makes videos with great information on all topics relating to MS his name is Aaron Boxter MD and if you search for him it will take you to his YouTube channel. I hope you have a great night and Godbless.
  • Jtrevino83
    HelloI am sorry to hear about your diagnosis, I am someone that has been fighting this desease for 16 years and just like anything it has its ups and downs but I know that the best thing to do in you plan of action is to get a doctor that you feel comfortable with and that specializes in Multiple Sclerosis. That's something a friend of mine told me when I was starting this journey and is something that has helped me so much, because my first neurologist was so dumb and so incentive that he didn't care really, and for this you really have to have someone that is in your corner fighting with you. Now another thing is to look in the bright side always. I remember when I was diagnosed there were only three treatments for MS and they were all injections, now people that are just diagnosed have the blessing to have a lot more tools under their belt and things are getting better and better everyday with medicine and science that are making it possible for all of us to live a full and happy life. I also would like to tell you about this YouTube channel of a great MS specilists that really makes videos with great information on all topics relating to MS his name is Aaron Boxter MD and if you search for him it will take you to his YouTube channel. I hope you have a great night and Godbless.
  • MS_Navigators
    Hello jeanaj6306,

    I am glad you reached out and that you are getting support from this group. We have a lot of information on our website for people who are recently dianosed that you may find helpful. Here are just a few links:

    National MS Society: Newly Diagnosed

    Knowledge is Power: This is a self-paced learning series for anyone facing a new diagnosis of MS, presented in a series of topics to help people adapt and live well with MS (includes personal stories and professional resources).

    Our MS Navigators are available from 7a.m. – 5p.m MT. Call 1-800-344-4867 or email ContactUsNMSS@nmss.org. We are here to support you.

    Best,
    Stephanie, MS Navigator 
  • momwifebadass
    I would just add... everything is OK.
    I was diagnosed and actually went out and bought a cane. My husband made fun of me =)
    Not because I needed it, but because that's what MS is, right?? No Way!!
    Everyone's MS is different.
    Read it again - EVERYONE"S MS IS DIFFERENT.
    and yours is just as unique as you are.
    Mine is random numbness, cant find the damn word, and Ocrevus. I'm GREAT.

    DONT READ everything... read enough to feel like you're knowledgeable, but know that the materials are for the RANGE of MS SYMPTOMS and people. You fall somewhere on the "MS Spectrum" ranging from highly functional (me), to severely impacted (NOT ME)... 

    EVERYTHING IS OK.
    Come back soon, and bring more questions... we're here for you!

    Good luck to you, and we love you!
     
  • Robot-Butterflies
    Hey!  I was just diagnosed on January 17, so I'm having similar doubts.  Whats gonna change?  Am I not going to be able to do all the things I want to do? What will I be able to do at all? I don't have the answers either, but we aren't out here alone.  I've just been taking it one day at a time right now.  What can I do today or even right now?  Its been helpful for me to just give myself permission to not be hard on myself right now.  I was feeling really guilty about not keeping up with everything I had on my plate before.  I give myself permission to take the time it takes to figure this out right now.  Its not an excuse, its what I have to do for me right now.  I don't know if this will help you at all, but that what I've been thinking.