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  • rej-a-doodle

    I have been living with symptoms for almost a year.  They are getting worse, it is a bit scary but also frustrating.  Clear MRI with Neurologist, she refuses to even consider MS.  She keeps telling me its stress and I need to see a counsellor and relax.  It is angering.  
    I would like to push for a Neurologist who specializes in MS.  She keeps discrediting me.  
    Is anyone out there who has a clear MRI, and is living with MS?  She just won’t believe me!  

  • Chrissyny
    ✌️😳 Me, personally, I would suggest looking for second opinion-new neurologist, ‘mention that you need to rule out MS’ then take it from there.
    i feel your frustration but I also would hate to think that this UNCERTAINTY is tensing you, stressing you out and no one deserves to be in limbo, ESPECIALLY if yo do have ms.
    Again, I’m speaking about me-I mentally go thru possible scenarios 
      - find new doctor 
      -rule out MS
     -if it is MS, lets start moving on with that
    -Otherwise, see  what they say or recommend. Possibly additional blood test for other things to look for with some of your symptomsπŸ˜‰πŸ€·πŸ½‍♀️

     πŸŒ»πŸŒ»πŸŒ»πŸ˜ŠπŸ˜ŠπŸ˜Šyou’re doing all the legwork, hang in there.
    ✌🏼❀️😊 It might be frustrating but the result will be worth it. ✌🏼❀️😊✌🏼❀️😊You know you can get through this, take a deep breath and then let’s move forward.  
    Your worth getting the right diagnosis. Don’t fight it because it can be draining for anyone.
     unfortunately, sometimes we all have run into incompetent ,unsympathetic “people“. Ignore it and look for the right people you want to deal with. 
    Hang in there,  you’re not aloneπŸ˜‰
     
    ✌🏼❀️😊✌🏼❀️😊✌🏼❀️😊✌🏼❀️😊✌🏼❀️😊
    🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻🌻.   ❀️
  • Chrissyny
     Forgot to mention, your picture with your character make up, is FABULOUS 😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁😁❀️✌️😊✌️❀️😊
  • MS_Navigators

    Hi there!

    I'd also support seeking another opinion to be sure- call us if we can help locate a referral for you!  1 800 344 4867

  • anywhereoutofthisworld
    Agreed, you need to schedule an appoiment with an MS specialist. Also I suggest requesting  brain MRI with contrast. Lastly, also get bloodwork to rule out Lymes disease if you haven't had that yet.
  • golgotha
    Clear MRI with Neurologist,


    Multiple sclerosis means multiple scarring. The MRI is used to see that scarring (lesions) in the brain. I see others have given advice for second opinions, so I'll focus on MRIs.

    There are some technical details of MRIs. For example, different MRIs have different "resolutions" or picture qualities. The MRI is done in "slices" and that matters. This playlist of MRI-related videos is worth watching and will likely give you lots of information about the MRI process and how important that is for a diagnostic tool.
  • maria1
    golgotha,very good point, not all mri machines are equal. Some institutions bought their machines when they first came out a very long time ago, so the picture is mediocre at best, adn the technican/doctor reading the film is not always top of the class. If you get into one of those claustrophobic tube mri machines it is probably old. The open machines are newer and take clearer pictures. Once I had an mri in a van, like a moving truck outside a hospital, never got to see the film but it probably looked like a photo negative, giggle. 
  • maria1
    Remember to ask for copies of your tests and the written reports, they are yours, you are paying for them. so you can look at them on your computer, not that you will necessarily understand them but it is fun to look at. The written report you can go on line and learn the meaning of all the words you have never seen before - that is fun too, you can make believe you understand, and ask questions when you see the neuro.
     
  • momwifebadass
    Agree with other posters - get a second opinion, get a spinal tap (sorry - worst!).
    Also agree about keeping copies of your own records. This was invaluable to me in my early diagnosis. Having everything on hand made turnaround times much faster.
    Good luck to you -