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  • thefoxyroxy
    im new to this forumi REALLY NEED HELP . But not new to being sick. I had colorectal cancer fought for 5 years and my fair share of health issues. However recently all my issues are pointing towards MS- 
    Major spasms in rib cage like a Charlie horse even waking up at night with them
    Blurry vision
    Feet legs ankles hands arms fingers ache and feel swollen and stuck super stiff they also get pins and needles and feel very hot. 
    Extreme fatigue
    Overall weakness
    Sleepiness for 5 days straight
    Short memory
    Tripping and stairs are terribly hard
    Every joint hurts
     my questions are this-
    1- I recently had an mri without contrast of my lower back. Nothing was mentioned of lesions. Would they only be able to see them with contrast? 
    2- I had a brain mri scan one year ago with contrast and nothing was mentioned with lesions. Could lesions grown in a year?
    3- I just had a full body PET/CT scan with contrast to check and see if my cancer has spread. This also mentioned nothing about lesions.
    would these tests have shown ms? Or no? 
    Feel like a total freak asking for more testing but I’m not sure if the proper testing was done for MS. Can someone please help me understand?
     
  • livinglifejoy
    You can always specifically ask your doctor if MS is a possibility. Even see an MS specialist if you want. There are also other diseases that can have similar symptoms so if they haven't mentioned MS that could be why. I'm so sorry you're going through so much, and I hope you find some answers and help soon!
  • maria1
    Did you receive the reports for the mri's, what did they say? Have you been tested for Lymes Disease?
  • thefoxyroxy
    No I’ve never been tested for lymes. I’m getting a brain MRI on Tuesday. The ma clinic said they won’t see me unless the brain scan comes back with lesions? I’ve heard not all people with ms have brain lesions... hmm. It’s all so co fusing yo navigate. 
    The past three days I have simply not been able to climb stairs. Going down them isn’t near as hard but coming up I can hardly do it 
  • MS_Navigators
    Hi there. It could be helpful to look for a neurologist near your area who specializes in the diagnosis and treatment of MS.  We have a provider search on our website here if you'd like to use it: Find Doctors & Resources
  • anywhereoutofthisworld
    Thank you for sharing your concerns and sorry you're going through this. I suggest a few things, I would ask for another MRI of your brain with contrast. Secondly, I'd ask for bloodwork to rule out other Ms mimics such as Lymes disease. Lastly, if Ms is suspected at all, request a spinal tap.
  • Chrissyny
    ASK ASK ASK, ASK AGAIN. WRITE YOUR ANSWERS.👍👍👍👍
    i agree with the MS website answer, find NEUROLOGIST(s)👍👍👍
    Finding a good neurologists is key, and you’ll see most of your answers and concerns should be addressed.😉😉😉😉😉

    Also suggestion,get all blood work revelant to ms, if you haven’t read it, other diseases mimic MS. Rule them out.

    Also suggest bring ALL / EVERY cd, reports, xrays WITH YOU, don’t rely on  WAITING on the office(s) to get to it “right away” 😉


    ✌🏼❤️🌻😊✌🏼❤️😊😒🌻your heading in the right direction. Find out what’s going on and move forward.  You’ll get there.
    ✌🏼❤️😊✌🏼❤️😊
  • thefoxyroxy



    Thank you so much! I just got my CBC and blood work back and dr called and said it was fine. 🤔 does me show up on bloodwork? 
     Also I’m having a major spine surgery to fuse two disks on the 21st. Does anyone know if they can do a spinal tap during that process so I don’t have to be coherent god it? I’m so so tired of being hurt and going through pain after 5 years fighting cancer!

    Chrissyny wrote: ASK ASK ASK, ASK AGAIN. WRITE YOUR ANSWERS.👍👍👍👍
    i agree with the MS website answer, find NEUROLOGIST(s)👍👍👍
    Finding a good neurologists is key, and you’ll see most of your answers and concerns should be addressed.😉😉😉😉😉

    Also suggestion,get all blood work revelant to ms, if you haven’t read it, other diseases mimic MS. Rule them out.

    Also suggest bring ALL / EVERY cd, reports, xrays WITH YOU, don’t rely on  WAITING on the office(s) to get to it “right away” 😉


    ✌🏼❤️🌻😊✌🏼❤️😊😒🌻your heading in the right direction. Find out what’s going on and move forward.  You’ll get there.
    ✌🏼❤️😊✌🏼❤️😊

     
  • golgotha
    The basic tool for determining MS is a brain (and possibly the top of the spinal column) MRI, often with contrast. That will show "lesions" (aka brain damage or scarring; MS literally means multiple scars). Another common procedure done is a spinal tap to check for things.

    MRIs can have various resolutions or qualities, and they're done by various cuts or slices which you can think of as a resolution idea. Here is a video on MRI basics relating to MS.

    As others have said, ask your doctor (preferably neurologist) specifically about MS, and also the MRI scanner strength and the slice thickness (see the video above for an explanation of those terms) of the MRI you had done.

    But there are other diseases that can cause MS-type symptoms. Hopefully you have one of those, which may be what the doctors are working to eliminate.
  • thefoxyroxy
    Thank you for this detailed information.
     I’m getting a t3 mri with contrast of my brain Tuesday. 
    On the 21st I’m having a lumbar fusion of dusk L5L6-S1. Does anyone have any idea if a spinal tap could be done during this time while I am under anesthesia! 
  • itax2020
    Hello ;
    I simply went initially to the neurologist for “off gait” . I’m 25 years old. I just found it odd I couldn’t walk up stairs with out nearly falling back and over the past year lost most of my sight in my left eye. My MD  referred me to a neurologist for the off balance issues . My MRI w and w/o contrast  immediately light up with lessions . As the Neurologist was going over this 2  page mri scan of my brain I had the hugest lump in my  throat, tears in my eyes . I held it together . I was then  referred to a neurologist that specializes in MS . These have to be the best DRS :) . There’re so  understanding compassionate thorough . And aren’t afraid to repeat test after test . I’ve recently started an  injection  to help with my daily  symptoms . I’m very thank ful for this drug. I wish you the best and to my understanding lessons can pop up when ever if you have MS. Good luck 
  • echobird
    Did they mention Dawson fingers? That's a form of leasons also when you get the spinal tap they will be looking for O band's. Or at least as I can recall. I didn't know what Dawson fingers were but had them show up years ago before my dx. I had this one doctor that was considered a cracker Jack or just a lousy Dr. But he had a brain scan come back with that and told me it was nothing to worry about 12 years later and worse problems before the dx. Wish you the best.