Very sorry to hear of your ordeal, thank you for sharing your story on here. I luckily was diagnosed quickly. I had my first really noticeable relapse in Mid may of last year. I awoke with sudden bad speech slurring, also the right side of my face went stiff and I couldn't smile. The stiffness in my face seemed to fade and go away in two weeks or so but the speech slurring dragged on for like a month. I don't like going to the doctor but I had an appointment in early June anyways for a blood pressure check so when I went in for that I told my regular doctor all about my speech issues and he said well I'm gonna order you a brain MRI. I explained how my mom (a retired nurse) worried I'd had a stroke. My mom pushed me to move the appointment up but stubborn as I am, I just went in early June as it was scheduled. So the MRI of my brain was ordered and I also was told to make an appointment with a neurologist. I started to suspect MS after reading about it during the time I was having the speech slurring episode in mid May. I wasn't sure what it was but MS seemed to fit. Then I get to the neurologist and he immediatly ordered blood work after quite a few MS type lesions were revealed to him in my brain MRI results. The bloodwork ruled out Lymes for example. Next he ordered me a C-Spine MRI. The cervical spine MRI results showed no lesions but through those results I eventually discovered I have cervical spinal stenosis (which was confirmed in mid August of last year when I saw a neurosurgeon who also wrote me a script for physical therapy). Next the neurologist ordered me to have a spinal tap which I had on July 18th of last year. By July 25th of last year following results of the spinal tap (which revealed lots of MS related protein 'o' bands), I received my offical MS diagnosis. I went to that appointment and I was 99.9% sure it was gonna be the one I would be diagnosed but nothing can prepare you for that moment. I remember calling my mom from the neuro's office in tears. My mom was a bit surprised you can say about the news, I was not as I already knew in my gut, I had it before he told me. Apparently I'd had MS for quite some time he suspects do to the sheer amount lesions and 'o' bands. I really hope you do get the diagnosis if you do indeed have MS, I couldn't imagine if I was in your shoes and knew I had it but was told I didn't. It's beyond frusterating, I have read of others who were in your boat. I now take Tecfidera for my MS twice a day, it was the first medication my neuro recommended. I also see a mental health therapist for depression/ anxiety/ ADHD and was told I may be bipolar. I also see a psychiatric nurse practiction & he prescribed me with Lexapro which has helped me some with depression & anxiety issues. Anyways I truly wish you all the best in your diagnosis journey, for some it can be quite a long one unfortunetly but don't give up hope, stay strong. I would recommend if this next visit is as frusterating for you as the last one, maybe seeing if you can get an appointment with an Ms specialist neurologist.
I'll end this with a list of signs and symptoms of MS which can include:
Muscle weakness, stiffness or cramps
Tingling, numbness or pain in your body
Tremor (shaking) in your arms or legs
Loss of balance
Problems walking or moving your arms or legs
Fatigue (feeling tired all the time)
Bladder or bowel problems
Thinking and memory problems
Feel free to reach out & connect with me directly on here if you'd like. This site is a great community where you will never feel alone. That's so important with this Ms thing.
The secret of life, though, is to fall seven times and to get up eight times.
― Paulo Coelho (from his novel: The Alchemist)