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  • crtcooper2014
    I was recently diagnosed with CIS but the doctor said this is usually the start of MS.  Everything I read says tha CIS mean that you've had only one flair up but my numbness is all the time just not the tingling and burning and neuralgia. What do I have to have to be considered having another flair. Numbness somewhere else??
     
  • kristynayers1205
    I was diagnosed with CIS back in March due to optic neuritis and needed iv steroids. I never felt good following that and kept feeling brain fog, generalized weakness and fatigue as well as leg spasms and body twitching. Fast forward to now, I insisted on another mri of my brain and have new lesions which was cause for a diagnoses of ms. You know your body and If you feel like you need to get a second opinion or follow up with the doctor, do it! I was diagnosed last week and now will start meds in the next few weeks. What helped for me was keeping notes on my phone of exactly how you feel everyday. Best of luck!! 
  • AnyBeth
    Symptoms from any given exacerbation ("flare") may resolve or stick around. It takes something new happening -- a new symptom or unexpected worsening -- to suggest continued disease activity such as an exacerbation. And one "flare" must be over (you not suddenly getting worse) before another can begin. Afaik, some of the finer points of requirements for an exacerbation have changed over the years. Best to ask your doctor about what a "flare" is, how to know if you're having one and what to do then.
  • MS_Navigators
    Hi, this explanation might help:

    "An exacerbation of MS (also known as a relapse, attack or flare-up) causes new symptoms or the worsening of old symptoms. It can be very mild, or severe enough to interfere with a person’s ability to function at home and at work. No two exacerbations are alike, and symptoms vary from person to person and from one exacerbation to another. For example, the exacerbation might be an episode of optic neuritis (caused by inflammation of the optic nerve that impairs vision), or problems with balance or severe fatigue. Some relapses produce only one symptom (related to inflammation in a single area of the central nervous system) while other relapses causes two or symptoms at the same time (related to inflammation in more than one area of the central nervous system).

    To be a true exacerbation, the attack must last at least 24 hours and be separated from the previous attack by at least 30 days. Most exacerbations last from a few days to several weeks or even months."

    https://www.nationalmssociety.org/Treating-MS/Managing-Relapses 
  • klg-123
    I was diagnosed with CIS in 2015 and I was put on medication right away. There was some discussion about whether I have CIS or MS because my neurologist said it is MS due to the amount of lesions on my brain (over 30) and my MS specialist said CIS due to only 1 exacerbation. Fast forward to last year - I had a couple of instances of a buzzing feeling in the tips of my fingers and one side of my face. It was so slight I didn't know if it was something or not, so I called my doctor and he sent me for new MRIs. There were no new lesions and it went away fairly quickly. Both doctors said the symptoms could be a flare or could be residual from old lesions. Both doctors are now classifying me as having MS even though I have no new or active lesion lesions since I have been on medication (I just got new MRI scans this past week). Its hard to know what qualifies as an exacerbation sometimes, espeically when the diagnosis is so new and you aren't sure or you have symptoms that never go away. My doctors said if I think I might be having a new symptom and it lasts at least 24 hours, call and come in right away, no matter how insignificant it may seem. I guess the main thing is get to know your body and find a doctor that responds to you, validates your feelings and what you are saying. The MS Society also posted some good info here for you to explain what an exacerbation is. Best wishes to you and best of luck on your journey!
  • JM718
    Heya, sounds like you've had a rough time! I hope things start improving soon. Hey I was wondering, where specifically would i find the information on defining an exacerbation that you have spoken about??
    regards
    jm718