Search Discussions

Main Content

  • ssms23
    Hello, im Serah and i could potentially have MS. I have been to the doctors and have testing here this month and the next. I want honest answers please: 
    How would you describe MS, symptoms, effects, andything. 
    I have severe back pain...as it started and in my late teens ive had numbness/pins and needles in my fingers,toes and hands. Now it is to the point where i have;
    Fatigue, muscle spasms, muscle weakness, pins and needles, numbness, and so much more from the ground up. Is this something as MS? I have MRI of my whole body (seemed to look ok) and all my doctors have for me is that i have a Inflammatory/Autoimmune disorder.... 
    Just would like some help and I appreciate your comments
    thank you and have a good night
  • jermained1
    Did they do a spinal tap? That’s what they had to do with me.
  • ssms23
    Hello, no not yet that could be the next step in my “treatment” the doctors where i live are not accustomed to MS or potentially MS cases so i would have to be transferred to a different facility to do so
  • jermained1
    Yea I went to a hospital that was a school. Only thing I hate my doctor had a student try it 2 time and always missed. 
  • MS_Navigators

    Hi Serah,
     

    Here is information about MS symptoms:
    Symptoms

    Here is dignosis information:
    Diagnosing MS

    Jess, MS Navigator

  • grimey1
    These all are MS symptoms like you know confirmation was not needed now is it? You need proof drs are always sceptical of the disease Have you personally looked at a MRI Drs at practice god bless them I think most important is getting to a Nuero. that knows whats up very hard with our Healthcare BS but fight iG you do have MS getting on medicatio early important I had syptoms whole life even optic Nuratis at 24 but not diag. till 34 could have save alot of progression if fought sooner! Never QUIT NO MS 4 YOU IF SO ROUND 1 FIGHT
  • anywhereoutofthisworld
    I understand how frusterating this can be. I'd suggest you definately write down every symptom you're experiencing and bring it with you at your next neuro appointment. My diagnosis came rather quickly following two MRIs (brain & c-spine), a series of blood work to rule out Lymes disease for example and lastly, a spinal tap. I had symptoms of MS for quite some time prior to diagnosis, but I don't like doctors or hospitals so I'd find ways in my mind to justify my symptoms as minor stuff. I did see my primary care physician fairly regularly to keep an eye on my high blood pressure but that was it. In fact I rarely called out of work sick and would go to work with bronchitis for example (as long as I was on antibiotics). I'd also get bronchitis once a year and I also suffered 2 asthma attacks when I was in my teens, both sent me to the hospital. After one of the attacks I even passed out in the x-ray room. Here's my MS dx back story - I was diagnosed with Multiple sclerosis in late July of 2017 after a brain MRI came back showing lots of MS lesions and a spinal tap came back positive for high amounts of elevated protein 'o' bands. The symptoms that led me to seek out answers originally were me awakening in mid May of last year with a definate speech slur issue & tightness in my lower right jaw. Due to the amount of lesions shown in my brain MRI results & 'o' bands discovered via my spinal tap, my neurologist believes I'd actually had MS for quite some time. Here is a tip sheet for guidelines to MS diagnosis: Click to See Link For Guidelines. Next I am posting for you a list of common MS symptoms that helped me verify shortly before my diagnosis that I was pretty sure I had MS.

    Speech and voice disorders
    ----------------------------------------
    Up to 40% of people with MS experience problems with their voice or speech.
    One possible problem is dysarthria, a motor speech problem that manifests as slurring, poor articulation of words, and speaking too loudly or too softly. Another possibility is dysphonia, a change in voice quality, such as sounding hoarse or nasal.
     
    Fatigue
    ----------------------------------------
    Some 80% of people with MS will experience fatigue at one point or another, but fatigue can have many causes. Some people experience “MS lassitude,” a very severe fatigue that occurs daily that tends to get worse as the day wears on.
     
    Numbness
    ---------------------------
    (or a lack of sensation in various parts of the body) is often one of the first symptoms to bring a person with MS to the doctor. Numbness can occur in the face, the body, or the arms and legs, and can interfere with walking, holding on to objects, and even chewing, if the numbness affects the face.
    Sometimes the feeling—or lack thereof—progresses over hours or days, but it usually subsides on its own.
     
    Vision problems
    ---------------------------------
    Like numbness, vision problems are one of the most common early symptoms prompting a person to visit the doctor. The problem can manifest as double vision, eye pain, blurred vision, or a scotoma (it looks like a hole in your vision).
     
     
    Bladder Dysfunction
    -------------------------------
    Bladder problems in people with MS can manifest in two, seemingly opposite ways. Some people have difficulty emptying their bladder. That means urine stays too long in the bladder, leading to infection, discomfort, and a distended bladder. Others can't keep the urine in, resulting in leakage and urgent frequent bathroom trips.
     
    Constipation/ IBS
    --------------------------------
    The most common bowel problem related to MS is constipation or also irritable bowel syndrome.
     
    Dizziness and Vertigo
    --------------------------
    The good news is that the symptoms of dizziness and vertigo often do go away and, for others, common drugs used to treat dizziness and vertigo in otherwise healthy people can be effective.
     
    Sexual Dysfunction
    ----------------------------
    There are three types of sexual problems related to MS, and the first is direct neurological damage to the nervous system. For women, that means loss of sensation, loss of vaginal lubrication, and an inability to achieve orgasm. For men, it can mean sensory changes as well as difficulty getting and maintaining an erection and difficulty reaching orgasm.
    In addition, people with MS might feel reticent about sex because they’re tired or are worried about bladder control. Some MS medications can also affect sexual function.
     
    Depression
    --------------------------
    Not surprisingly, depression is common among people with MS. Changes in the immune system can contribute to depression, as can biochemical changes in the brain.
     
    Cognitive Dysfunction
    --------------------------------------
    Cognitive dysfunction affects upwards of 60% of people with MS. The good news is that only specific areas are affected. This could be recent or “working” memory or the speed at which a person is able to process information. Or a person may have trouble focusing or multi-tasking. Once these problems start, they often don’t go away, but they do progress slowly.
     
    Anxiety
    --------------------------------
    This is the poor second cousin to depression. That’s because depression gets all the attention, though anxiety can be equally debilitating. Not only are there organic changes in the brain that result in anxiety, but the ongoing, uncertain nature of MS can be nerve-wracking.
    MS can also involve mood swings and irritability, although the irritability may be a consequence of depression.
     
    Emotional changes
    -------------------------------
    About 10% of people with MS may experience “pseudobulbar affect” (PBA), a neurologic change that usually occurs in tandem with cognitive changes. Here, the expression of a mood or feeling is disconnected from how a person’s actually feeling so a person may have uncontrolled bouts of crying when they’re not actually sad or they may laugh hysterically at inappropriate times.
     
    Pain
    ----------------------------------------
    The pain is often the direct result of nerves damaged by the disease. If this is the case, the person may feel severe burning sensations in their legs, feet or hands, or might imagine a knife is stabbing the side of his or her face because the nerves on that side are inflamed.
     
    Spasticity
    ---------------------
    Spasticity can involve both stiffness as well as involuntary muscle contractions. As a symptom of MS, it’s most common in the legs and may manifest as a mild feeling of tightness in the muscles or as more severe pain.
     
    Balance/ Coordination Problems
    --------------------------------
    People may report they feel suddenly weak in one limb or they may find objects slipping easily out of their hands. If there’s damage to the cerebellum, the part of the brain that controls balance, people might also be unsteady on their feet and prone to falling.
     
    Tingling
    --------------------------
    Tingling is related to numbness and may feel like your arm, fingers, or toes are falling asleep, yet never quite waking up. Like other MS symptoms, this is a result of damaged nerves sending mixed signals to the different parts of the body. People may also experience something called the “MS hug.” It feels like somebody is grabbing them very tightly around the midsection, but it’s not muscular.

    I truly hope you find the answers you're seeking. This is a trying  time and it can be difficult not knowing what's going on and quite stressful. The members of this site are always here for you and you can count on that.

    Remember that life's big changes rarely give advance warning. - H. Jackson Brown, Jr.