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  • biologybunny
    Hi, I am 25 with lupus and am currently being tested for ms. Does anyone have these symptoms: numbness in the face and lips as well as the arms, hands, legs and feet, numbness patches in the head, numbness down the cheek bone, tongue goes numb, word salad, extreme pain in the trigeminal nerve, brain fog, burning and electric shocking pain in neck, shoudlers and down the arms,weakness in the arms, heavy legs,  severe muscle rigidity in the neck and shoulders, constant migraine with no break, electric surges on the skull and sharp pain in the ears, pressure in the left side of the head and pressure in the ear, dizziness, fatigue, weight loss, leaking bladder (but this fluctuates and comes and goes). Has anyone had any of these symptoms? Trigeminal neruaglia? Have you found anything to help? Do you have any advice? I am on gabapentin which unfortunatley is no longer working because the pain has become so severe in my face. Any help - advice would be greatly appreciated as I have been struggling with this since february of 2017 when I woke up with no vision and a massive migraine. I have had a CT scan with and without contrast and there was no evidence of stroke or brain tumor. I have also been ordered to have a new brain mri with and without contrast as well as the cervical spine with and without contrast to look for MS. Does anyone else have head pain that never breaks? Also what is the standard protocol for diagnosis, testing and treatment?
  • MS_Navigators

    To definitively diagnose MS, a neurologist will do an MRI and sometimes a lumbar puncture is performed if there is any question.

    I suggest you read over our page about other conditions to rule out: Other Conditions to Rule Out

    If you have any questions, please call 1-800-344-4867 to speak to an MS Navigator Monday through Friday, 7am-5pm MT.

    Good luck!

    MS Navigator Abigail
  • dddizzy
    Have not been diagnosed yet, but I believe I have Trigeminal Neruaglia where it has lasted for a good month.
    Have you tried an anti inflammatory meds?  Benadryl? I have also taken medicine for herpes when I get this and it seems to help as well.. (Sorry brain can't think of the name of the medicine)   Different things work on different people.
    Hope the attack goes away soon and you get some relief as I know how painful it is.