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  • lauried
    I have been monitored for MS since 2005 when a few small lesions showed without very many symptoms. Diagnosis was confirmed last year at age 63.  I also have Rhuematoid/Osteoarthritis, Fibromyalgia, Parathesia, Dyesthesia, Barrett's Esophagus, GERD, and Colitis, all auto-immune related.
  • warriorpoet
    I was 27 years old when I was diagnosed but think I have had it sice I was 20.I'm 45 now and my health has never been better and improving daily,Thank God!Alot of lifstyle changes made the difference.I'm winning my battle with ms but I don't truly win until we all do!I think we have to be our own advocates and each others if and when we can.    William Milligan
  • ambrocious

    Just from curiousity, had any of your doctors had you try and type of special diets? My kids and I have some weird stuff too and we're on our way to allergists and dermatologists to investigate possible reactions from different types of foods.

    My friend's mom has several different odd autoimmune problems also, and she completely changed her diet and that has nearly killed her symptoms. She even only eats wheat that comes from somewhere in Europe because it's not refined the way that the US does. 

    My neurologist says there's no concrete evidence of diet having a major contribution in any of our autoimmune stuff, but I do fully believe that something we're eating is at least partly to blame. Who knows... pesticides, intolerance, allergy, etc.?

  • g_alder
    I’m glad you had a doctor who took you seriously. I had a neurologist who dx’d me as psychosomatic (Conversion Disorder) when my arms went numb for three days, despite lesions on my MRI.
  • al334135
    I ws just diagnosed in July 2019 with RRMS.  I had a feeling I had MS for at least the past two years, my neurologist thinks I've had it since my teen years.  I have issues with balance (no vertigo) and difficulty walking long distances.  Every so often I misjudge and hit the doorframe a bit or have difficulty walking after sitting for a long time.  My neurologist prescribed Tecfidera, but I am still going through the approval process with insurance, so I have not started it yet.  Right now I don't feel MS impedes my life too much, but I do notice a difference and have to make small modifications.  My husband is very supportive.  I'm trying to educate myself and find others who have similar type/symptoms/medication experience.  
  • DKLH
    I was diagnosed in August 2011 at age 38 via my symptoms and an MRI.  However, my first episode was in 2005.  I do not take any medications. I am very particular about what I eat and the vitamins I take. I have to say after the MRI I also had a very SMALL feeling of relief that it was not a brain tumor.
  • sbeeson1972
    DKLH wrote: I was diagnosed in August 2011 at age 38 via my symptoms and an MRI.  However, my first episode was in 2005.  I do not take any medications. I am very particular about what I eat and the vitamins I take. I have to say after the MRI I also had a very SMALL feeling of relief that it was not a brain tumor.


  • omana
    Hello, what diet do you take? Specially what all do you avoid? Rachel
  • Dericis2tired
    Hi, I was diagnosed last year. March 10. I had just lost the first job I had, had in about a year and a half. I was fired because I fell asleep on the job. But I understand what you mean when you write that it was a relief. A lot of the things that I was scared about were from the MS. It wasn't  something more serious.  It was a big relief/death knell. I remember I cried for about two weeks after my diagnosis. I had a 3 year old daughter, and 2 year old son at the time. I thought I wouldn't be able to teach my son how to play sports. Apparently my psychological side effects are much worse than I ever realized. So now I can't see my kids. But I still have hope.
  • Kitten
    Dear Offbalance:
            I was diagnosed last year 4 days after my 29th birthday, and had started having symptoms roughly a year earlier when my legs went numb. It went back to normal after a week so I decided I was pushing my body to hard (doing the work of 2 at work + full school load) or hadn't spent enought time in the gym (because of school). But then the right side of my face went numb. That worried me more because it made me think of strokes so hospital I went.
             The ER Dr. said they were admitting me for further tests to rule out stroke abd possibly MS. When he said that I whispered to my BF that MS was what my mother has. The ER Dr picked up on that like a wolf on steak. SO the testing began and a few days later I recieved the offical Diganoses.
              I cried. I shrank into  myself. I threw myself at school harder. I pushed forward like I was going to out run it.
              I couldn't have MS. No. Not me.
              But then.....my left leg went numb.
              I was forced to look at how I was going about things and SLOW DOWN. By avoiding the subject I was making my health WORSE. So since last dec/jan I havn't had a relaspe, and now I am facing my 1 year anniversary of living with MS. Hoping to turn it into a joyus day instead of one of sorrow.
  • Excadet
    I was almost 31 when Dx, and realized that I had had symptoms going back to the age of 21. MY mom had MS, too! It really sucks. I'm sorry you've had to deal with this. The only other person in my extended family with any autoimmune issues was my mom's cousin, who had disabling rheumatoid arthritis. Now, my mom, me, my older sister and one of my younger sisters have all been Dx with MS. It makes me feel like some kind of freak at times. Just this week, my younger sister found out that she likely has RA, on top of MS. I am worried about my own daughters and I think we all worry about all the nieces and nephews. I hope you are doing well. Feel free to contact me if you ever need an empathetic ear. 
  • Excadet
    I was almost 31 when Dx, and realized that I had had symptoms going back to the age of 21. MY mom had MS, too! It really sucks. I'm sorry you've had to deal with this. The only other person in my extended family with any autoimmune issues was my mom's cousin, who had disabling rheumatoid arthritis. Now, my mom, me, my older sister and one of my younger sisters have all been Dx with MS. It makes me feel like some kind of freak at times. Just this week, my younger sister found out that she likely has RA, on top of MS. I am worried about my own daughters and I think we all worry about all the nieces and nephews. I hope you are doing well. Feel free to contact me if you ever need an empathetic ear. 
  • tesam47
    My mom also had MS and passed away a couple years ago from complications. I might add that she was extremely non-compliant with medical treatment because she kind of gave up after her and my dad got divorced. Im now in my late 20's and started having some symptoms. I have my first MRI next week and feel the same way you described in your post. Just wondering what lifestyle changes or treatments have helped you to be so successful in preventing a relapse?
     
  • zoey10
    Hello. I hope you are doing well and healthier every day.
    i an a facilitator and therapist and I have MS but I am well and better every dat so I want to help more people. If you would like my help please feel free to contact me. I can help you enjoy your life, take away pain, depression, anger and fear.
    God Blesses You
  • kara_w
    I was dx in 2010, when I was 34. But like some of the other posters, I know that I've had it for much longer. Knowing that ms is a genetic disease reinforces these thoughts. But nobody will know for sure until the researchers find out what triggers it.

    The doctors started testing me for Lupus before I was ten years old. I was always sick, and periodically I would have outbreaks of a skin disease called Anuloma Granulare and other sun sensitive rashes. The doctors couldn't figure out was wrong and called the rashes "hives." The Anulomas we attributed to an issue with my immune system, but that's all they could say about it. I started exhibiting classic symptoms in my twenties. When I suddenly lost control of my tongue and my ability speak in my early thirties, I was extremely lucky to be seen by a P.A. that recognized the symptoms right away and got me into an MRI machine. She had me in to see a brilliant neuro within the week. I count myself as extremely lucky.


  • alexan613

    MS is not a genetic disease. I have an identical twin who's been tested and also I've asked and researched. There is hardly even a slight percentage raised in someone who has a family member with MS. It is not considered genetic from what I know and I have had MS for 23 years.

  • A_J_
    Was 52, am 58 now, on SS disabbility, exercise everyday!
  • Constance56

    I , too, am 58, exercise daily, but I also changed the way I eat. I managed to get on SSDI this year. Everything I eat must be healthy (meaning an antioxidant, gluten-free, low to no dairy, low sugar and lots of green veggies) so that I can feel like I'm fighting back.

  • weirdeb
    I was diagnosed on 14 August 2014 at 59.  Drs thought I was just depressed! There were lots of strange symptoms that were hard to explain including falling while exercising. Have been on Gilenya (not working) so now about to start on Lemtrada.
    Is there anyone out there on Lemtrada?
    I continue to the gym & work with a personal trainer.
  • db5563
    Is disability only if you can not work at all? For instance I am an artist and do art shows throughout the year, selling art.