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  • kimberlysj
    I too had a huge headache after my spinal tap. It lasted for days. The neurologist who did the procedure had said his patients never get a headache. Well that so wasn't true.!!!!
  • pmsart
    I'm 63 now but was diagnosed at age 42 but I'm sure I had symptoms years earlier with inner ear infections (virtago or dizziness). I've had ms for 20 yrs now and doing okay. I have more pain now than I did years ago. I quit using my chair and use my walker even tho I'm slow. I'm retired and painting. taking a spanish class, etc. Just stay involved. Enjoy those grandchildren. Just keep on keeping on.  Be grateful to GOD for all that you DO have. 

    Hey, did you  notice it's almost a political advantage to have MS or have family with MS?
    Ann Romney never dramatized her's though. But did you notice how Michelle Obama talked about how pitiful her Dad or Grandad was and how he had to lift one leg and then the other to get in and out was it a car?" She was practicallyl crying.  Give me a break, I don't want pity, do you?  I'm just me - I'm not my ms.
    I'm glad though that MS is getting noticed and maybe that will turn into more awareness with hopefully more donations for more research.
  • Chickadee
    I was 50 when I got my diagnosis, but had had it seven years before that. By the time I got the diagnosis I was relieved to hear that the problem had a name. The problems started in my feet with numbness and tingling. It moved up my legs, and affected my balance. I went from walking fine, to using a cane, to using a walker, and am now full time in a wheelchair. I tell many people," I have MS, but MS does not have me!" every day when we get out of bed, we get to choose how were going to be. I choose joy, happiness, fun, laughter, and love.
  • sukhtobu

    You are a real hero.. I m confused and unsure.. seems like lifeplans are all gone... my daughter asked me "what are you looking forward to? a new life partner? A vacation?" I could not reply...

  • sjnorris89
    I love that quote.!! I have MS but MS doesnt have me.. After reading this im tearing up.  This made my day. thank you 
  • Hank
    I  was diagnosed at 54, which was 20 years ago.  Have primary progressive MS, which is a real creeper.
  • mrsg2013
    I was just diagnosed last week at the age of 36..... Something like 20 lesions on the MRI after totally blind in left eye with optic neuritis.  Total shocker.  Still kinda glad to know why I had bizzaro health issues( mis-diagnosed) now explained.  Haven't started any meds but had steroids introvenously for three days.  Still have pain but better.  Curious about the future, but have made plans for re-prioritizing my life and changing from my high stress job to less stressful one and exercise for the first time in my choice left but to laugh and make fun of my scrambled brains and fuzzy vision qs I wink at the world.....
  • Kiki04

    I was 35, my daughter was diagnosed at 15. The age spread in this post just proves it can hit at any age.

  • bigboysmom
    I was just dx this year at the age of 29. I have most likely have had it for at least 10 years. I was told i was hysteral at best. that the issue I had at 18 was a condition women in their twenty migh have if it didn't go away by thirty to come back. There was nothing wrong with your eyes, have a nice day. You eat to many apples and so on.

    Only reason I was dx was I had a seizure and found decent doctors who acutally cared and still do. I too am releaved!!!

    (sorry eye sight is off)
  • koucla1

    I was 21 when is was dx. there were no MRIs and very little info . That was in 1975 and I had been having a rough go of it for two years prior.  The prognoises was that I would most probably continue to worsen and walking again was a dream. I'm super glad they were wrong,,yes I have MS and Yes I am back on my feet . and now we even have meds...progress looks better every day...

  • natasha77
    I was just diagnosed last month. I am 28 and trying to still get a grip on what's going on.
  • Accidentalmtngirl
    I was diagnosed earlier this year at the age of 52. To the best of anyone's knowledge, I probably had my "first" flare at the age of 31 when I experienced several weeks of double vision and vertigo. After a clean neurological exam, I was referred to an ENT specialist who treated me for labrynthitis or middle ear issues. I could not drive for two months but eventually everything returned to normal and besides periodic dizzy spells which again were attributed to my ear, I was symptom free until March 2012. Like you, the MS diagnosis was the best of the three possible conditions that I was tested for! I'm still struggling with some apparently permanent nerve damage but all in all, I believe now that my past issues now have real meaning and I no longer think of myself as a weak person. In fact, I've done amazingly well considering what was glaring evidence on my recent MRI. The best part is that I can now give myself permission to take it easy from time to time!
  • Avatar
    24.  It sucked.  Still fighting 12 years later! 
  • seenjo11
    I was 45. Diagnosed 4.4.12. I was going for my first PT appt. for my sciatica and the therapist, after giving me the basic reflex and balance tests and watching me walk, told me I should see a neurologist. I did. And the MRI clinched it: MS & sciatica. Scrolling through one's own MRI film is an amazing thing I must say. Best wishes.
  • wjhalpin
    When my neurologist was confirming the diagnosis from the radiologist, she had me sit at her monitor as she scrolled through, pointing out all the white spots that are lesions and explaining why their location on the brain meant MS. It was a weird experience. She was nice but I just felt really weird looking at pictures of my brain with its issues.
  • cpgogo
    I was diagnosed at 21. I was in my junior year of college. It just so happens that when I was in high school, my mom was diagnosed with MS. So we are a mother/daughter duo w/ MS. We both have relapsing remitting. I am now 41. I have been on Tysabri for 3 and a half years which has kept me stable. Also, my husband has MS. We met at a MS Support Group meeting. We celebrated our 10 year anniversary this past June. MS does NOT have us! Yes, we may have struggles but together we overcome!!
  • sara1213


    that is very interesting. I was diagnosed my last year of high school, age 18, and my mom also was diagnosed when I was in high school.

  • tracy-short
    In November 1998, I was 31, newly engaged, was moving into my new condo, and had just been sworn in as a member of the State Bar of Texas when I went legally blind in both eyes. Enlarged Blind Spot they called it. My MRI and Neuro exam were both perfect so the Dr.s thought something was wrong with my retinas. By Christmas I could see to drive but not to read. In January 1999, I went to work for a former boss at his accounting firm to help out through Tax Season. On April 15 while rushing to make copies of returns yet to be mailed I dropped a paper on the floor behind the copier. When I bent over it was a pain like a high voltage electric shock, so sharp and sudden I almost couldn't stand back up. The pain was in my boob so I thought it might be breast cancer. Then the pain moved to under my arm so I thought I had lymphoma, then the pain moved to my ribs and I thought this can't be either of those. I had to tell my boss that I was still at a walk in clinic on my lunch break. I had to tell him why I was at the Dr and he said leave and I will make you an appointment with my best friend (who happened to be a neurosurgeon). The MRI of my brain, thoracic spine, and lumbar spine all had lesions.  I felt like I had been hit in the face with a 2 by 4.
  • Kacy
    I'm 29 years old and was diagnosed about a month ago. Last December the entire right side of my face started twitching uncontrollably. I soon realized the twitch was constant and wasn't even stopping when I was asleep. I went to my general doctor, tried a few things that didn't work, got an MRI, got recommended to a neurologist a week later, he suspected MS because of the apparent lesions, but was curious about my symptom. Out of the 1,000 MS patients he's had in his practicing years, he's never met one who presented with a twitchy face...ha ha ha. Hey, when I show up, I show up in style.

    Anyway, waited 6 months, got another MRI, had one more pesky little lesion, and now we have our diagnosis. My face stopped twitching about 4 months ago, and so far I haven't had any new symptoms. I'm set to start the Laquinomod (sp?) trial mid-September if I qualify.

    I feel pretty lucky thus far, quick medical responses, pretty light symptom, quick diagnosis, potential pill on the treatment front. Also the hospital pipes my iPod music into the MRI for me. I think that's standard, but I've never had an MRI before this past year so to me that's pretty awesome.
  • hmickgarcia

    Hi Kacy,

    First of all, I ALMOST named my daughter exactly the same thing.  I have 14 year old twin girls, Katy and Ally, but I wanted Katy and Kacy.  I was outvoted dangit.

    Second, my most recent MS flare sounds similar to yours! (Just so you don't feel alone).  I was diagnosed in August/September of this year after an incident in July... first my lips started tingling and twicthing, then my eye, then my ear drum... the muscles on that side of my face started twisting upward, making it look like half my face was smiling.  It was very weird looking. :)  The good news was MS to me because I figured I had a brain tumor pressing on my facial nerve. 

    Anyway, nice to know someone has been through the same. :)