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  • cpgogo
    I was diagnosed at 21. I was in my junior year of college. It just so happens that when I was in high school, my mom was diagnosed with MS. So we are a mother/daughter duo w/ MS. We both have relapsing remitting. I am now 41. I have been on Tysabri for 3 and a half years which has kept me stable. Also, my husband has MS. We met at a MS Support Group meeting. We celebrated our 10 year anniversary this past June. MS does NOT have us! Yes, we may have struggles but together we overcome!!
  • sara1213

    Hi, 

    that is very interesting. I was diagnosed my last year of high school, age 18, and my mom also was diagnosed when I was in high school.

  • tracy-short
    In November 1998, I was 31, newly engaged, was moving into my new condo, and had just been sworn in as a member of the State Bar of Texas when I went legally blind in both eyes. Enlarged Blind Spot they called it. My MRI and Neuro exam were both perfect so the Dr.s thought something was wrong with my retinas. By Christmas I could see to drive but not to read. In January 1999, I went to work for a former boss at his accounting firm to help out through Tax Season. On April 15 while rushing to make copies of returns yet to be mailed I dropped a paper on the floor behind the copier. When I bent over it was a pain like a high voltage electric shock, so sharp and sudden I almost couldn't stand back up. The pain was in my boob so I thought it might be breast cancer. Then the pain moved to under my arm so I thought I had lymphoma, then the pain moved to my ribs and I thought this can't be either of those. I had to tell my boss that I was still at a walk in clinic on my lunch break. I had to tell him why I was at the Dr and he said leave and I will make you an appointment with my best friend (who happened to be a neurosurgeon). The MRI of my brain, thoracic spine, and lumbar spine all had lesions.  I felt like I had been hit in the face with a 2 by 4.
  • Kacy
    I'm 29 years old and was diagnosed about a month ago. Last December the entire right side of my face started twitching uncontrollably. I soon realized the twitch was constant and wasn't even stopping when I was asleep. I went to my general doctor, tried a few things that didn't work, got an MRI, got recommended to a neurologist a week later, he suspected MS because of the apparent lesions, but was curious about my symptom. Out of the 1,000 MS patients he's had in his practicing years, he's never met one who presented with a twitchy face...ha ha ha. Hey, when I show up, I show up in style.

    Anyway, waited 6 months, got another MRI, had one more pesky little lesion, and now we have our diagnosis. My face stopped twitching about 4 months ago, and so far I haven't had any new symptoms. I'm set to start the Laquinomod (sp?) trial mid-September if I qualify.

    I feel pretty lucky thus far, quick medical responses, pretty light symptom, quick diagnosis, potential pill on the treatment front. Also the hospital pipes my iPod music into the MRI for me. I think that's standard, but I've never had an MRI before this past year so to me that's pretty awesome.
  • hmickgarcia

    Hi Kacy,

    First of all, I ALMOST named my daughter exactly the same thing.  I have 14 year old twin girls, Katy and Ally, but I wanted Katy and Kacy.  I was outvoted dangit.

    Second, my most recent MS flare sounds similar to yours! (Just so you don't feel alone).  I was diagnosed in August/September of this year after an incident in July... first my lips started tingling and twicthing, then my eye, then my ear drum... the muscles on that side of my face started twisting upward, making it look like half my face was smiling.  It was very weird looking. :)  The good news was MS to me because I figured I had a brain tumor pressing on my facial nerve. 

    Anyway, nice to know someone has been through the same. :)

  • gj44
    Hi, I just turned 68 & was recently diagnosed although I've had symptoms for at leat 10 yrs.  Was told I had neuropathy & spinal problems.  Numerous MRIs & my current neurologist said he couldn't believe no one indicated MS before.  So I understand how you feel when you say you're relieved.
  • wooty

    Thank you, gi44.

    I'm 66 and waiting for my MRI results.  I've been having balance problems for years and, apparently, have cerebellar symtpoms that my GP told me are most likely "a stroke, a tumor, or MS".  

    Yikes.  Frankly, that made MS look pretty good to me :-)

    May I ask if you had any eye symptoms?  I do not, just balance/gait problems, some tingling, and some fatigue.  As it relates to fatigue, I'm not sleepy during the day, but I usually have to lie down for a couple of hours every day.

    I'm still struggling to believe I could get MS at my age (note: I do not have a diagnosis yet) but it's very helpful to read about the experience of others my age.

    Thank you.  

     

  • rockstreesminerals
    I was diagnosed at age 37, my first symptom started in 1998, my left leg went numb and I thought it was damage from years and years of sports. That lasted about 1 yr. Then the following year it went numb again. I went to a Dr. and they said it was nothing and I went on with my life. in 2011 I woke up with no vision in my right eye. I went to our local Walmart optical Dr. and he said I had optic neuritis and got me an appt. with a Neuro Opthamologist. The Neuro said we'll do a Mri and see whats going on.. I had several lesions and he said next we will do a mri of the spine and a lumbar puncture. At that point I asked what was going on to have a LP and thats the first time anyone ever suggested that it might be MS... LP came back with 9 Olig. bandings and my mri of spine showed lesions and a syrnix on my spine. Which was syringomyelia a different disabling condition. Anyway after a few evoke potentials they said it was RRMS and SM. I have now been on Avonex for 6 months and have had solumedrol infusions to help with vision.  Nothing can be done about the syrnix because of where it is.

    RRMS
    SM
    ON
  • Crouton
    I was diagnosed yesterday.  Needless to say, I am currently scared and confused.  Trying to figure it all out.

    I am 28, female.  It started about a month ago.  My feet went tingly, then it went up.  I could feel it in my side, one arm, and the pinky and ring finger on both hands.  First I went to urgent care,  I was told to get insoles and take a couple days off from work.  Still persisted, got myself a doctor.  She did blood tests and told me to go see a neurologist.   Blood tests negative, waiting till I can see the neurologist...my feet came back online, and for the most part so did my legs.  I had a day of close to normal, then my fingers started to hurt and then it spread to annoying most of my other fingers.  Now they feel extremely stiff and tingly, but i can still move them.  Its weird because Im not really feeling them.  My arms are both numbish now, starting to feel heavy...and then the MS hug is there.  Along weith feeling missing in my upper back.

    The lesions are currently in my brain and spinal column near the neck.  On monday I start steroids.  I go in 3 days in a row for 2 hours.  He may also do the spinal tap for good measure.  After this is over, we will be discussing medicine etc, but we arent there yet.

    No one in my family has ever had MS.  I had a great aunt who had ALS, which I found out from my dad after my appointment yesterday.  I guess I should be greatful that I dont have a brain tumor or ALS, but its still frightening and a lot to take in.
  • aredmosquito
    I was, well, AM, 25. I was diagnosed a little over two weeks ago. Starting last year, I was having odd symptoms . . . trouble writing for about a week, then an episode of Bell's palsy, a year of nothing . . . then in February I started getting migraines out of nowhere. They were accompanied by severe vertigo, nausea, and intense vomiting. On 3/14 I woke up and was walking like I was drunk! I went to the doctor for my appointment and he sent me to the ER - spent six days in the hospital and came out pumped full of steroids and diagnosed with RRMS.
  • evestarr1
    Hi! You're one of the few people that have posted the same symptoms that I get during an intense attack: the "migraines out of nowhere... Severe vertigo, nausea and intense vomiting". There are others who present this way, but this is less common and threw my rheumatologist for a loop. Keep sharing, you never know when a post will be a huge help to someone else!
  • rockingjack
    I was diagnosed at 60, also after 15 years of many different issues. Some I didnot seek help for  because I thought it was accident related. But when the floor became a magnet to my head , I got serious and pushed myself. Got aMRI had leisons, but DR's then said I was too old for MS after appx 4 years I found a MS specialist and I am now being treated. DR said I was too old for MS. Anyone else hear that?
  • Bigkahuna
    54 now just had a nuro tell me I am too for ms must be mini strokes ????
  • Rutht

    I was looking for people diagnosed at my age.  62, diagnosed last week.  For 3 years tryinig to figure out: numb feet & lower leg, and major itching and balance issues at times.  Not until I went blind in one eye, was it diagnosed (3+ weeks later).  What a shock - all of the symptoms seemed like nothing, until the eye - I've probably had RRMS for much longer, but still walk fine, so I've been very fortunate, Weighing options for treatment: CAM/conventional.

  • gonetothedogs
    I was told too old for treatment.
     
  • baydenoc
    I am now 70. I’ve had problems since age 22 when I started having seizures. I had an EEG and no Epilepsy. Started falling when pregnant at 31. Vision problems in my 30s. Went to an Optometrist and he diagnosed my problem as weak eyes and had me do eye exercises.  My internist said my back spasms and stomach spasms were because I was depressed and gave me muscle relaxers. Long story short I am now in a w/c after multiple falls.  No  diagnosis except Upper Motor Neuron problem.
  • tmiranda
    I just found out 2 months ago I have MS and like you I felt releaved I havent got depressed or upset yet but, I am sure soon it will all really hit me, I am also on Copaxone and it has helped but not doing good with the shots. I also had lots of bowel problems and bladder problems where the doctors just keep telling you more fiber and I just could never go, but just glad to know why everything has been shutting down. Just trying to stay positive, and enjoy my kids, and family. Being older and diagnosed later just was these doctors all the systems always lead to other things before they suggest MS, so people are wondering for years whats really wrong with them.
  • Carla_Jayne
    I was diagnosed 3 months ago at age 56. I had symptoms for just 3 months prior to the diagnosis. I had always been pretty healthy, so I was shocked ... I am learning everything I need to know, and trying to prepare for an uncertain future.

    I think that a positive attitude helps immensely as does diet, exercise, and for me, the addition of acupuncture, chiropractic care, and a caring counselor to help me get through the hills and valleys.

    I live with a very understanding, loving and caring man who is helping me all along the way. So I am very lucky. My grown children are frightened, but I send them bits of information to read and digest when they are ready.

    Good luck on your path my friend!
  • Jason1978
    I was 24 and working at nights at Wal-Mart. Woke up before my shift and my left side was totally numb. Thought I had a stroke, after 3 weeks and a BUT-LOAD of tests they said I had M.S.
  • NeilsD
    I was 48 when I was dxd.