Search Discussions

Main Content

  • spiritwalker
    I do have most of the same issues. I really do understand where you are coming from.
    My family have all given up on me They won't even talk to me or have anything to do with me. I am so happy that we have found this site because we need all the support we can get.
      Ihave found that the right diet for me really helps a lot.
  • kibbles67
    I actually have a lot of these symptoms was dx with MS in January it actually was a relief to me to have an answer to all my issues. I had gone through 5 surgeries in a 2yr period of time and was wondering why I was not recovery properly. I had a partial left knee replacement then 8 months later a total right knee replacement it took me 6 months to rehab both times just to get back to work and not be able to handle the physical demands of the jobs the fatigue was just to great, along with the pain of weakened muscles and nerves from them being cut from surgery it was awful.
  • queenie1976
    Hi.  I had most of these symptoms plus a few more.  I was diagnosed with RRMS a month ago just before my 40th birthday.  Your post was a little unclear, when you say the numerous Dr's are saying it "sounds about the same", are they referring to Multiple Sclerosis?  I myself was relieved to finally have a diagnosis.  At least there are medications that can hopefully slow the disease down.
  • bills
    I turned 65 last December.  I was in the process of diagnosis at the time and had MS confirmed this week (5/6/13) after spinal tap results.  Thinking back, I had some minor symptoms for 10 years, but would have never thought MS.

  • Bobo
    In 1992, I was dx with optic neuritis, but was told i was one of the lucky ones with only optic neuritis, not MS by a neurologist. Symptoms typical of MS had occurred from mid-20s onward. In Dec. 1999, at age 52 I was told by ophthomologist that I had MS and what med was I using. Hah, nada! He sent me to different neurologist who confirmed MS after MRI, spots were there all along. 

    I was relieved to have a dx, after beginning to think symptoms were all made up in my head. Noooo- I actually had something wrong in my head! Avonex has been my weekly companion since then and I'm doing relatively well at 65. 
  • BarbM
    I was 34 when diagnosed although I had symptoms for a couple of years before that.  I had no other new symptoms after my diagnosis and didn't take any of the disease modifying meds for the next five years. I moved and started a new job before having my next flare up. Thankfully I found an excellent Neurologist who helped me understand the importance of being on a drug modifying regime. I have since had a number of flare ups andd gone from Avonex to Rebif and recently to Gylenia. I was able to work for 11 years after bing diagnosed and am now on full time disability. I am thankful I was able to continue working as long as I did and also thankful I have found doctors who are able to guide me through this complicated disease. 
  • Jeff_H_
    I was dx 6/2008 at the age of 47. However now that I know what MS is, I can trace my symptoms back to when I was 39! The doctors always treated the symptoms, like fitting me for hearing aids instead of looking for what caused the lose! I finally asked to be referred to an ENT doc to determine if my inner ear was causing my vertigo...he ordered the MRI and then all he said was "you need to see a neurologist"... I didn't even know what "demilenation" was and it took many more tests before I knew for sure it was MS. I too was relieved
  • Jeff_H_
    I was 39 when I began having symptoms in 2000, but I was 47 before I was officially dx in 2008...Doctors always treated the symptoms without looking for the cause. I've been on COPAXONE since 2008...talking with my Neuro about trying something else... **anyone out there who has tried Low Dose Naltrexone (LDN)?
  • Jbrataz
    I was diagnosed 5 years ago on Valentines Day- of all days-  I was 38 at the time-  They determined by the leasions and history- that it began- I contracted it- it developed- whatever term you want to use- back in 1988 when I was pregnant with my first son.  My husband and I at the time just thought I pulled a muscle in ballet again- LOL  I can actually pin point every leasion to what I thought was a pulled muscle or over exertion in sports.  My father had ALS- so watching the progression- I should have ? my syptoms more-  but I was, and still am very active- so didn't really think anything of it-  My diagnosis came after having fallen and shaqttering my right hand.  during the 9 month fight w/ Workers Comp-  they had me do a cervical MRI to see if I had broken anything further up-  They found the intial leasions on the C Spine then and sent me for brain MRI and spinal tap-  I started on copaxone and have it been on it ever since-  that relapse is the worst I have had, and none that I have really been aware of since- although I am developing more leasions each year- so the progression is happening-
  • Garth
    Hi OffBalance.  I have been diagnosed since 2002 when I was 16. I am 25 now and still living a somewhat normal life, and the MS hasent really started affecting me badly until lately. I have more flare-ups and symptoms than I ever had before.  Now the diese is starting to scare me more and more everyday.  I have done a lot of reading and studying about the diese now having it for almost 10 years.  These days I cant rely on anyone but myself for my diese progression and where it takes me.  This makes me really scared somethimes.  But a great attitude towards MS is all we need to stay stong and have a great future. 
  • tman15
    I was 27 when I was diagnosed with MS. I’m 100% positive that my symptoms started around the time I turned 18. I was on Copaxone, but switched to Tysabri when symptoms continued to worsen. My grandmother just passed due to parkinson-plus syndrome, and my mother has a worsening problem with rheumatoid arthritis. My father’s side well, is just as bad if not worse. My family doesn’t have the best genetics, but what we lack in health we make up for in heart and love for each other. As a family we will get through this we always do. I’m glad to share my story and look forward to reading a connecting with more people. 
  • mrosesledz
    I've had symptoms since the age of 14 but was not diagnosed until I was 18! I am now 26 and I have been living as close to normal as possible. I have been on Rebif, Copaxone, and am now on Tysabri. I have also switched to a Mediterranean diet (basically vegetarian but I eat fish occaionally) but I tried a plant based/vegan diet for about 7months. I feel great now but I switched about a year ago when I woke up and couldn't walk! I walk fine now but it was the worst flare up I've ever had and definitely scared me more than I had been before about this awful disease.
  • wendycurry
    tentatively diagnosed at 25, after second optic neuritis.  That as 1991.   But told to wait to try test for official diagnosis when the symptoms progressed, as preexisting conditions can effect what insurance might support.  25 years of random symptoms, it progressed to the level where i couldn't just 'live with it".  MRI was last week.  Confirmed.. I knew it all along, but it's nice to have the confirmation
  • SueG
    Hi OffBalance, I was/am 47 and dx'd - also with psoriasis/excema and my mom has leukopenia and other auto immune issues as well.  interesting to read the ages - thanks for posting
  • Amber9
    Hi offbalance! I was 19 years old when I was diagnosed with optic neuritis which immediately made them start looking into possible MS. I was officially clinically diagnosed in August of 2009 at the age of 25. I was put on Avonex and did well with that for a while, I recently have been experiencing more and more symptoms of MS and I am having to really learn my limits... Which is very hard for me. I am learning slowly but surely.
  • scorpio19th
    I was diagnosed at age 53 but, with hindsight I know that I had symptoms like blurry vision and vasovagal fainting as far back as 12 years old.
  • randys438
    I was diagnonsed in July of 2008 at 45.  I had my first symptoms about a year before, numb hands.  At that time they thought I had Carpal tunnel.  I was tested and told that Carpal tunnel was negative.  No one else in my family has had MS, but my mother had Lupus. 
  • Gean_C
    Hey Offbalance, I turned 65 today and I have be dxd for about 13 years now.  It only took them 5 years to diagnose me so I feel pretty lucky. 

    Being older you never know if it is just old age symptoms or something not so serious like MS.  Exercise, diet, and the right attitude is the best help for MS other than the meds.  I have been on Avonex for 12 years and am going to be joining the Tysabri drip club in June.  Tysabri is another med.

    I am suggesting two groups to everyone:  Laughing With MS   and   NEVER GIVE UP!  I hope we can get a ton of people there....not just one person that weighs a ton.

    Anyway there are lots of groups to join and you will get support from every one of them..  You will never find a better group of people than at MS Connections.  God Luck
  • Michraf
     I was diagnosed 9 yrs ago when was 33. I had a feeling it was MS. My mom has MS which made me familar with it. So far, probably because of the meds available now and everyone reacting differently to the disease I am doing well. My first nuero was horrible. I only saw himonce and then switched. The ride into NYC isn't fun, but the nuero and pratice is great!
  • Michraf
    Ok, I know iam late to reply here. Iwas diagnosed in 2003. I was 36. Now 44. My mom has MS too. She is not in great shape, but she is here.  So far so good for me.