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  • burbnblondie

    Hi my name is Taryn. About 3 mths or so ago I started experiencing symptoms such as numbness On certain parts of my body the very first spot was on the outside of both big toes I first noticed that in July after giving birth to my son. I Never gave it much thought. in sept I had an iud incerted. Around the end of oct beg of nov I started noticing more limbs that had a numb feeling my thighs parts of my arm n mouth following that I developed what seemed to be a horrible burning sensation in my muscles. It's my hands wrist through my elbows my neck n shoulders followed by bad headaches, slurred speech, problems thinking, and memory loss. At tht time I went to a nurologist he tested me for RA, lupus MS  and some other immune disorders. All test came back neg except for I tested positive for hashimotes diseases. My levels came back n the 5000 range I was told to go see an endrocronologist where he explained that I did indeed have hashimotes diseases but that it was not the cause of my symptoms but to go back to him again. I was instructed to take out my iud for he thought that it may be the cause of the symptoms. I do that and symptoms seemed to have decrease a lot for abt a mth or so until 2 weeks ago and now the symptoms are back just as bad as before. I often wake up w server pain running through my knees. On Monday I had my primary doc re test me for RA and lupus through blood work. ANA results came back n the low range .02 so that was neg and so was the RA. I was told to make an appt w the RA doc for this Monday. I am not sure what this is that Is causing me these symptoms but after research I seem to fit the category of MS. It is very frustrating living with this discomfort day to day bc I have 2 children under the age of 2 that need my attention constantly, but it's getting difficult to even hold them for too long.
    if you have any advice it would be greatly appreciated thanks 
    Taryn 

  • MS_Navigator_Robin
    Hi Taryn,

    I'm so sorry to hear that you're having such a difficult time right now.  It sounds like your doctors are still trying to help you figure out what's causing your symptoms - have you shared your concerns about the possibility that this is MS in spite of what the earlier tests showed?

    It's certainly possible to have MS and for it not to be seen on MRI at first - according to our website, although MRI is a very useful diagnostic tool, a normal MRI of the brain does not rule out the possibility of MS. About 5% of people who are confirmed to have MS do not initially have brain lesions on MRI. However, the longer a person goes without brain or spinal cord lesions on MRI, the more important it becomes to look for other possible diagnoses.

    Please keep working with your doctors, and let us know if you have any additional questions about MS, diagnosis, or managing the symptomsthat are interfering with your day to day life.

    Take good care of yourself,
    Robin