Good Morning Lostintherock,
I am writing to share with you that I also have had a brain mri, been a few years now, and nothing showed up at the time. I have heard that it can take a while, espesially if this was early on in your case history. However, I did not have a spine MRI. They also did not use any contrast in my MRI and I am now wondering if that could make a difference on the results they see. You? Di d you have any contrast prior the MRI to help everything stand out?
So, I know how frustrated and possibly in a little fear you may be in. I am confused and a bit frustrated. Confused because what else can mine be at this point? I have had all the test to rule everything and his brother out of the picture. I have numerous over numerous of the symptoms. Pain and Fatigue and of course Cognitive issues HAVE to be my main scares and daily living handicaps. I have a wonderful PM Doc who does his best to keep that under control. My Cognitive impairments only seem to get worse over time and this is the most dissapointing symptom to me since I have children at home. I have trouble remembering anything short term. I have to keep a daily log to refer to. It saddens me. I feel awful when my family will be discussing an event or occassion and I am clueless, as if I did not participate at all. They say "come on mom", you have to remember this?
OF course they are teens, they would never understand all the way. If I do not understand, may I even dare ask how they could begin? I get it now. This is my life. I am coming to terms with that, however, I would very much like to have a name to whats going on, although I do feel I know very well what may be wrong with me at this point. But without a diagnoses, there is no treatment to stop the progression, right?
I am sorry to bombard you with all this stuff. I feel as if you may relate only in too many ways, unfortunately for both of us since we are still seeking understanding from others and of course from ourselves as well. We are only human. We trust these Doctors that keep us in Limbo. I tell you what, I am reaching out in hopes to learn from others. Maybe you have some advice for me or maybe direction. I don't know which way the compass wants me to go next. I am tired of just heading off blindly, paying my money, the little that I do get from SSDI, to many Doctors in the past to only tell me they can only treat the symptoms at this point. So, needlessly to say, I take a script for about every symptom I may have, give or take a few of course due to the ones not discussed since I have given up searching.
It would be nice to talk to someone who may have something to share. Your in my area so you experience the hardship of finding a good Neuro and maybe having to travel to see one, right? I experience that. I just do not know who to trust with this. This is important.
Thanks for reading. I know I am ranting. Please, rant back. I would love to hear your story and your complaints. This does not come without both and so much more.