I have been dealing with MS like symptoms since 2008 but only recently saw a neurologist about it. The neurologist and my primary care doctor both think that I have probable MS. I had an MRI back in December which showed 10-12 lesions which may be from demylination but were not typical of how MS lesions look. So I thought that I didn't have it Oh and spine was clear.
My symptoms have been burning like fire pain mainly on left side of body and face, tremors, shooting pains, numbness and the worst.....fatigue.
So last Thursday, I was at work and out of nowhere was gripped with most awful vice like pain at the back of my head that traveled into my neck and shoulders and straight down my spine. I went to the ER ( I work at a hospital) and CT was clear. I could not move my head down without an electric shock feeling straight down my spine. I have never had a positive Lehrmittes sign before and that sensation has since gone away. Today, I got up this morning and my legs felt like heavy weights were attached and I could only shuffle my feet to walk.
My neuro has ordered a repeat MRI, 2 days IV solumedrol and a lumbar puncture. I'm really worried about how I'll feel with the steroids, and after the spinal tap.( tap scheduled for tomorrow.) I have a very demanding job and now I can hardly work. My neuro filled out FMLA paperwork for me but I still need to work as much as possible to pay the bills.
I just feel overwhelmed with it all and I can't understand why my symptoms are worsening. This barely being able to walk has me freaked out. It's like weakness but stiffness at the same time. I've never had trouble walking before and I hope it doesn't last because I really need to work on Monday.
Good luck and try to stay positive. My coping mechanisms have always been attitude. The more I stop thinking or give attention of my symptoms, the quicker they fade. Have they ruled out Trigemenal Neuralgia? I have had 2 episodes of TN in my lower face and I felt like I was being electrocuted. I've heard that some people get it in their neck with a slight head movement. All the best and stay positive!
Being diagnosed back in Dec and out of work since Sep i know that stress all too well. I keep hearing stress reduction is key. I attend therapy to work on those same CBT issues. It's tough in practice but living one day one moment at a time i hear is key.
I established relationships online with others who have ms.
Citing the serenity Prayer helps: God grant me the serenity to accept the things i cannot change, the courage to change the things i can, and the wisdom to know the difference. Some days i need to repeat it over and over to get through.
Best of luck to you.
Hey there, I'm sorry to read that you're dealing with this. I am glad that you're using FMLA leave, as this will make sure that your job is protected while you are out, but unpaid leave can be a challenge. Sending positive thoughts to you and hoping you'll feel well on Monday.
Please feel free to call the MS Navigators at the National MS Society if you have any questions about MS. We also have navigators who specialize in employment and benefits issues, so please give us a call if you would like to discuss work as well. 800 344 4867, option 1, Mon-Fri 7am-5pm MT.
We have information about MS (and possible MS) and employment issues on our website:
I'm glad you reached out for support and hope you'll be doing much better soon.
Thanks everyone! I am still having trouble walking today, not only is it embarrassing but it's also exhausting. Anyone have ideas on what I can do to help with that?
My wife was recently diagnosed and I can emphathize with your experience. We started following OMS very closely and believe it is helping. It's not a quick fix but it's only upside even if it turns out you don't have MS. The website is overcomingms.org. Consider googling it and getting familiar with the diease and what the options are. The book is also great. It has given us a lot of hope. It's hard in the middle of everything to take on more but we found it very helpful.