I am newly diagnosed and not doing well need encouragement, prayers, very tired. Any suggetions or words for me and my family.
Welcome mopar, there is plenty of information here for you to read. It will give you insight to the issues we face and the solutions we have found. ms is a challenge to our creativity, we get to figure out what works best for our individual situations, like how to put together a car with all the parts but you have never seen a car and dont know what it looks like. Some days are better than others but that is true for everyone. Education is the best weapon to erase any fears, looking at ms as a new job is a good idea, you gotta learn the ropes. We encourage talking about it with us and others, the more you hear yourself the more you understand what is going on. Finding the right /best words to describe the situation is the way to solving the problem. Be kind to yourself dont make your journey and worse than it need be.
mopar7872 - Hi, welcome to the group. It is very hard in the beginning, so many emotions that you will go through. Plus, there are a milllion questions that you will have and we can provide the answers. I remember when I was first diagnosed after going many decades of being misdiagnosed, I read everything I could that had to do with MS. You really need to know and understand what MS is. We're always here and we provide encouragement and prayers to everyone. You are not alone! When you want to rant or become depressed, we will be here for you.
I am recently diagnosed as well so I know what you are going through! Research as much as possible and whatever you do stay encouraged!!!
You’ve entered a Stephen King novel
There’s very little anybody can say
This is Steve with the National MS Society.
I'm glad you found this page. I wanted to provide the following link which will take you to a section of our website specifically for someone with a new diagnosis.
Take care and please do not hesitate to contact us at this site, or by calling 1-800-344-4867. We'd be happy to help in any way we can.
This website is a great start - lots of great information and resources can be found here, as well as a lot of support from people going through the same thing. MS for Dummies is a book that helped me a lot - it broke down all of the information into easy to understand terms. Regardless of your education level, your head is probably not able to process a lot of complicated info right now due to the amount of info swimming around in your head and this book made it easier for me when I was feeling that way right after being diagnosed. It was a good resource for my family as well. It takes a few months for your mind and thoughts to calm down a little, but you will get there. The best advice I can offer is to find a doctor you like and one that you can communicate well with - that will so important! Also, write down your questions as they come up (or have a family member do it for you) so you don't forget what you want to ask the doctor. Hang in there!
Hi mopar I'm a ford f150 guy myself😁😁. Ok I'm hoping you'll start to get a chuckle at least a little bit. I actually don't like the newer cars with all these electronic thingys. I have an old courier ***** in my front yard even. But back to what's at hand. Is the fatigue new or since your diagnosis or has it been all along. Sometimes when we first get the diagnosis we might start to get depressed and cause us to feel that way. But then anger will set in. Or maybe it's reversed but it's like the 5 stages of grieving. And then there's days still that I can get around semi ok then there's days that I have to just lay here in bed. I get weak tired chronic pain and spasms if I'm up on my feet to long. Now not two of us are completely alike as two all that we go through. But with faith you can try to look through the other side and believe in yourself. I really don't know what all to say. I really wish you the best of luck. And my prayers are with you.
my advice is to just take it one step at a time. Its normal to be freaked out over adiagnose of MS. Do research and make sure all decisions are based on fact and not fear. When I was first diagnosed in 2011 it rattled me to my core. But I took some time to process the situation and then moved forward. Life dosen't end because of MS, it just gets interesting and challenging but you will learn how to take it in stride and keep moving forward.
I hope this helps and will be looking for a post from you saying that you are doing better soon.