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Julie-R

Folks, I've seen a fair number of discussions where folks puzzle whether they should drive or not.  I have the opposite problem.  My MS is long-term, stable R/R.  I'm mobile, but not super-coordinated in the AM;  I can drive fine in the PM's (while in remission.)  So for decades, I've worked a PM job that… Read More

echobird
Having a few too many bad days*

I wish it was easier to get through!!! I'm feeling swollen up again and been in more pain than usual...  I went down to get my ivig treatment and the Dr first said that they were going to do it at home but then said that I had to switch back to straight Medicare so the office is over an hour away and I missed… Read More

Wendell_
Hello from San Diego, CA

Hi everyone, I just wanted to introduce myself. I am newly diagnosed (as of July '18) and hoping to connect with others who have been fighting this diasease. It has been a very humbling experience to go from being on the go all the time, hanging out with friends, and starting a career to not knowing what the… Read More

golgotha
Dreams...*

Warning: I swear I'm not too much of a crunchy, granola, hippie type -- really, I've got a background in computer science -- but this is a topic that may paint me as some sort of new age type. Before you read this post you have to listen to this song to put yourself into the right frame of mind. (And maybe I… Read More

jmmmiller58
Fear of Losing Mobility*

Good morning, I woke up in the middle of the night, again, so I decided to start this string in order to get some fedback from people that struggled with the same isse as me. Fear of losing my mobility! I have been living with MS for almost 16 years.  Like most of you, I deal with numerous crazy  symptoms… Read More

wendycc
wheelchair research*

Good evening. My husband is mobile but is clearly transitioning to needing a chair for walking long distances- like when we are out with the kids in the city, traveling, and street festivals. His problems are spasticity and balance.   He's 43, and for about 2 years, we've rented scooters or chairs- in places… Read More

leah-ot
Thinking of getting pregnant

I am new to this forum and was hoping to learn about others' experiences with family planning.  I was recently switched from Aubagio to Copaxone for this reason. I am reading a lot online and through the MS navigator about the topic of pregnancy. I was just wondering if anyone can share their experiences with… Read More

hive_of_5
Taking Care of Myself*

I have been diagnosed with RRMS about 18 months ago. I do monthly infusions and I also do iv vitamins weekly. I tend to take care of myself. I am very prideful and don’t ever ask for help. I don’t even ask my husband. I take myself to the dr, I take myself for tests and treatments. My question is how do you let… Read More

khmanno
Knee Compression Supports

Has anyone has experience using knee compression sleeves/supports to add stability to everyday walking...? I have tried them and they seem to add a bit of support...Just wanted to hear others using them.... Kent Read More

echobird

Ok so I was feeling pretty bad the other day from facel muscle drupping to left sided weakness the Dr ordered some steroids. Guess what start to feel better and I went and overdid did it my usual. I have my ups and downs but the roids really make things tough. But this time I'm getting head aches blored vision… Read More

maria1
Do you talk to your brain?*

There is the part of my brain that tells me how I feel emotionally about something. good, bad, happy, sad etc. Sometimes my brain has been tricked into thinking emotionally a certain way, by parental controls, dont touch the stove you will get burnt, dont go in the street a car will hit you. But most of the… Read More

bubbadog66
Don't know what i don't know*

The old saying, "I didn't know what i didn't know." has been a hard pill to swallow while navigating my one unpredictable moments at a time during this first year of being newly diagnosed. All my previous 50 some odd years of life experience has surely not prepared me for this. I've read and heard about how… Read More

amamzoningms
There will be tears. *

Sometimes I feel like I just want to scream, even if I don’t know what it is that I would be yelling. I have had MS for 16 years, and I am only 36. I wonder how I have survived this long, I wonder if I can survive even longer. I know that there are millions of people who have it worse than me, I know that there… Read More

maria1
??????*

Do you sometimes feel like your brains are scattered all over the place and it is impossible to center yourself, or you cant figure out how to evaluate your symptoms. Do you want to find the right vocabulary to describe what is going on with you. Are you looking to decide if your symptoms are worth contacting… Read More

nikimcarter

I have permanent handicap plates. I'm 29 and I look totally normal. I'm still hurting from the last person that called me out in front of everyone at the post office.. I'm not a confrontational person.. but I WANT to say something to the people that call me out and embarrass me & hurt my feelings. What have ya… Read More

triara

I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More

calili09
Exercise*

 Hi fellow MS family and friends! I have been battling MS for 10 years now and in the beginning, when I was on Copaxone, I was able to work out for 45 minutes every day… Now that I am on Tysabri for the last eight years I no longer have the stamina to work out  and I have gained a fear of over doing it. My… Read More