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Daily Life

Vacation and traveling anxiety*

 My wife has MS and heat is a main trigger for her. We have a trip to visit my family in Orlando at the end of the month. Any attempt to assure my wife that she will be able to keep cool and still have a good time seems to fall on deaf ears.  My sister had the AC at her house serviced recently to make sure it… Read More

Teen with MS, education *

Hi, My teen daughter has ms, and I was wondering if anyone else may have had a problem with their child doing great in school all year long, almost an honor student in every class and then when it came time for final exams, failed them miserably, I am completely at a loss right now and hoping that someone may… Read More


I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More

Online College and Ms *

So I started working on online college, but I am not able to be able to take a full load of classes each quarter. I am only 19 now, but I am worried what if it takes longer than normal to be able to finish school. What if I am not able to graduate with a bachelors degree till 23 or even 24 years old. I am… Read More


   This current attack is not responding to steroids or neuropthy meds. I've been using a walker but can't go far or carry anything. I find out about a wheel chair, hopefully, next week. If I'm only approved for a heavy one it won't help. I don't know how to do things with a wheelchair but I can go further and… Read More

Hair loss and MS??or the drugs??

Hi all I was just diagnosed in July and am on copaxone.  Has anyone experienced hair loss from copaxone or just from MS in general?  It looked like I had a hand mitt of hair in the shower, which is way beyond my normal hair shedding!! Thanks in advance Amy Read More

Memory. :(

I'm having serious issues with my memory. It's starting drive me crazy and I'm becoming extrememly depressed with no one to talk to. I'm tired with all of this. I'm actually looking out for help and counseling. I need someone who I can talk to about it. Partner and Family don't understand,  Read More

MS Navigators*

I have received two connections requests that appear to be suspect, please contact me so I may give you the info. Has any other woman recieved connection requests trying to connect through other means than her a ms connections, if yes please add your name as a reply, thanks. Read More


Hey there guys,My name is Robert Welsh. I’m 29 years old and currently being treated for my first big flare up of ms at swedish medical center in denver. I don’t have a 100 percent diagnosis as of yet but should shortly. My symptoms started in my hands with numbness in every digit and progressed to lhermittes… Read More

Dating or finding a spouse with MS *

I would very much like to remarry. I have been divorced for over 3 years, but with fatigue it is difficult to get out and actually be in places where my Knight in Shining Armor might be. I work a full time job and still have to do the day to day stuff that has to be done to maintain my dwelling place and me. I… Read More


 Hi fellow MS family and friends! I have been battling MS for 10 years now and in the beginning, when I was on Copaxone, I was able to work out for 45 minutes every day… Now that I am on Tysabri for the last eight years I no longer have the stamina to work out  and I have gained a fear of over doing it. My… Read More

From bad to worse feeling*

Ok so been put through nothing but b.s. from my so called family to my so called friend's. All they have done is mess with my head. They even had my abusive x stop by. I hate every single one of them. They've been stalking me talking trash about me and just doing everything in there power to try and get me to… Read More

Caffeine *

I have been living with MS now for almost 20 yrs. I love my coffee in the morning. I was told when I was first diagnosed that coffee would help with the fatigue. I am trying to be more aware of what I put in my body. I have been told now that I should not drink coffee. What do you think? Read More


I’m not sure if this falls under daily life or not.  My mother has MS. 20 years now. In February she had a urinaly infection and the doctor she saw never looked at the result and a week later ended up in the ER. She has since gotten much much worse. She is to the point of needing assisted living and I’m not… Read More

Summer Heat *

I have attempted to make this post a couple of times. But hopefully I got it this time. I am terrified of summer heat, I tend to have additonal MS symtoms in the summer time and I have constantly been told to stay cool, but i feel like a captive in my own home. I still work but feel so weak during this time of… Read More


There is a very good and simple to understand web site - Everyday - type in multiple sclerosis and you will find many articles about MS (ie: how to find a good MS neurologist, questions to ask, etc).  Of course they also have information about other diseases and medical conditions. Read More

New workers. Working out!!*

Finally I have not one but two worker's. That way I know that I'm taken care of right. I have to thank God for it. I know that my family isn't happy because they've been trying to destroy my life. They've harassed me and neglected me then tried to convince me that if I went in for my back surgery I'd be… Read More