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There will be tears. *

Sometimes I feel like I just want to scream, even if I don’t know what it is that I would be yelling. I have had MS for 16 years, and I am only 36. I wonder how I have survived this long, I wonder if I can survive even longer. I know that there are millions of people who have it worse than me, I know that there… Read More

Taking Care of Myself*

I have been diagnosed with RRMS about 18 months ago. I do monthly infusions and I also do iv vitamins weekly. I tend to take care of myself. I am very prideful and don’t ever ask for help. I don’t even ask my husband. I take myself to the dr, I take myself for tests and treatments. My question is how do you let… Read More


Do you sometimes feel like your brains are scattered all over the place and it is impossible to center yourself, or you cant figure out how to evaluate your symptoms. Do you want to find the right vocabulary to describe what is going on with you. Are you looking to decide if your symptoms are worth contacting… Read More


I have permanent handicap plates. I'm 29 and I look totally normal. I'm still hurting from the last person that called me out in front of everyone at the post office.. I'm not a confrontational person.. but I WANT to say something to the people that call me out and embarrass me & hurt my feelings. What have ya… Read More


I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More


 Hi fellow MS family and friends! I have been battling MS for 10 years now and in the beginning, when I was on Copaxone, I was able to work out for 45 minutes every day… Now that I am on Tysabri for the last eight years I no longer have the stamina to work out  and I have gained a fear of over doing it. My… Read More

Is there an App that can help?

My memory is probably my worst symptom.  Having so many App choices, is there one that MS folks have found especially helpful in remininding them of either important meetings, to-do lists, dealing with their MS, etc? Thanks. Read More

Being stalked*

Hi everyone I have been dealing with a lot of BS from my family or some people that they have hired to keep watching me. It's been so long since they started this and I'm at my wit's end with the way they have been talking trash about me and just plain driving me nuts I have called the cops before but I don't… Read More

Serious personality change *

Feeling like my mood has changed to were. I don’t care about others feelings anymore. To where I don’t have morals anymore. I feel like I don’t care if I hurt someone’s feelings or say something to them without thinking about if I should say it. I’m only worry about myself and no one else  Read More

MS difficulties*

   A day in the life of Larry A. , I was diagnosed with Primary Progressive Multiple Sclerosis in 2016 my reaction was not well I have become distant to everyone and everything at the time I thought how was this going to affect me my family. At the time I was unsure and did I really think of others? I began… Read More

Fear of Losing Mobility*

Good morning, I woke up in the middle of the night, again, so I decided to start this string in order to get some fedback from people that struggled with the same isse as me. Fear of losing my mobility! I have been living with MS for almost 16 years.  Like most of you, I deal with numerous crazy  symptoms… Read More

Owe to this life a poem*

Owe to this life of spasms and pain how deliteful it is to be dispiteful  And when we thought it all was done MS tricked me and decided to have some more fun And after that fact we try to just go on and relax  But then my brain starts to act insane  All we ever ask for is to end the pain and someday and… Read More

Dating with MS guy*

Hi, I've been dating a guy for a year now, I knew about his MS from begining but I didn't realize how serious it is until I saw the recent sympthoms that for some reason has been getting worse. I love and care about this guy so much and deeply, I mean he is who I was looking for in my entire life . One part of… Read More


Here I am again talking about life. This MS diagnosis (2015) has been hard for me to accept and because of it, I am still feeling like a a person who will never find someone to love me. Read More

Not seeing a better improvement*

Well I just received my last ivig infusion on Friday and I'm still not feeling much better my back hurts like hell and my legs hurt and keep wanting to give out on me. And I'm not even sure that I'm not going to get any better. I find myself in dispare and grefe striken to no end. Is this the way I'm going to… Read More