Search Discussions

Main Content

Daily Life

echobird
Well!! Had a great visit with girlfriend!

Ok so I just got home last night and yes I'm really hurting. I hid the pain so good around my girlfriend and forced myself to stay up and out of bed the whole time I was there at her place.   But the bad was I kept having issues with being able to be up beyond being in my wheelchair. And making it from the… Read More

francy95
Invisible symptoms and loneliness *

Hi everyone! i was just looking for a place where to share my feelings and here I am.   I’ve been feeling so lonely lately. I feel so tired and so numb, my mood changes continuously and the worst part is that when I try to talk about it with my family, they think I’m just trying to find excuses for my… Read More

gray22wolf

Hello! I wanted to reach out and see if anyone had an experience that is somewhat similar to mine.  I am a designer who sometimes does work on assistive technology.  Over the years I have developed cardiovascular problems :(  I like being able to monitor my own condition so I know when I need to go to the… Read More

echobird

Ok just as stated. To much b.s. from everyone playing games. Now I did talk to my brother about some of it. He still claims that they haven't been playing these games. My one caregiver I let go came over on Saturday with his timesheet for me to sign and show me the receipts for his car being worked on.  I was… Read More

amer626
Feeling left behind*

Hi my name's Amer and I've been feeling pretty bummed out for the most part of 2019, because during my final year of high school I started to fail some of my classes, no matter how many times I studied. I felt so stupid and blamed myself, until one night I woke up and couldn't see from my left eye. After a… Read More

echobird
So right back to where I was before. *

Still having issues with my family trying to drive me insane with their game's. They've been trying to drive me crazy with their stalking then trying to get me to the point of messing up. Sister hit me up for meds nephew threatening to beat up other caregiver witch I had let go. He was calling off a lot for… Read More

triara

I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More

nicola_student
mobility scooter design*

I am a design student working on a design project for a mobility scooter. I am wanting to create a design hat can actually be helpful  improve the experience of using mobility devices. I understand that there is an incredibly wide range of mobility difficulties but I am wondering if people think there would… Read More

BeckyE
Copaxone and concentration

Does anybody know if taking copaxone will help me get back the ability to concentrate effectively. I know it reduces the relapse rate but I'm not sure about helping the concentration thing. I forgot to ask the neuro last time I was there. Read More

ibkc66

Hi everyone- I'm Dorothy and I have relapsing/remitting MS. In the fall of 2010 I suffered three attacks of severe optic neuritis which permanently damaged my vision, plus I have extreme fatigue which makes much physical activity difficult. One of my favorite hobbies is the massively multiplayer online… Read More

DaringDeb
Lighteadedness, not dizzy

Hello all, I am newly diagnosed a month and a half ago.  My doctor has prescribed me medication to manage my symptoms and I have started on Copaxone.  A continual problem for me has been lightheadedness.  I have been to the doctor many times over the past couple of years, because of that.  When I last went a… Read More

cherylej
College, Work, Money!*

My daughter is newly diagnosed with MS.  She is a College Student and works to partially support herself.  She was a caregiver so now she is not working; she needs the caregiver some days!  She is trying to go back to school.  Trying desperately not to take away her independents but don't want to spend all… Read More

jazminb
MS In College

Hi, I was diagnosed with MS 6 months ago, during spring semester finals during my sophomore year. I am now a junior at a very prestigious/rigorous university.  I am having a very hard time living with this disease in general but particularly being away from home. I'm not a fan of needles so it's already tough… Read More

ErinNicole

There is a stigma associated with “handicapped” I mean seriously... who wants to be labeled “handicapped” 😬 I don’t. But yesterday as I left my house in the triple digit heat to pick my oldest up early for an appointment, I realized there was no way I would make it from the regular parking into the school… Read More

Hollywood
need money and my insanity*

Well I still work under restrictions. I hurt really bad from working 3 to 4 days a week for 3 to 5 hrs a day. I feel better when not working but I need to be busy I have bills to pay yet and need the money. My children want me to get disability but so far have been reluctant I'm afraid I'll just give up… Read More

joannmaxwell
Balance*

What comes to mind when I say that word? Does it remind you of a balanced meal? One that has whole grains, lean meat, fruits and vegetables. Or does it remind you that you need to have your tires balanced on your car? How about doing flips on a 4 inch beam of wood? Or maybe it's a workout, combining both… Read More