MS Connection

I was hit by a car as a pedestrian and taken to the emergency room. I have done everything for the pain except surgery as I have had a tumafractive lesion so the risk is high. The insurance company is claiming my pain is from MS and not the act of being physically hit by a car. So now I find myself in a… Read More

Feeling like my mood has changed to were. I don’t care about others feelings anymore. To where I don’t have morals anymore. I feel like I don’t care if I hurt someone’s feelings or say something to them without thinking about if I should say it. I’m only worry about myself and no one else  Read More

Does anyone know if there is an organization in Minnesota that helps with funding to for disabled people getting service dogs.  I understand that the dogs are quite costly to train. I am also planning to acquire an accessible vehicle, againt quite costly.  I know that there are grants available to vets for this… Read More

I have permanent handicap plates. I'm 29 and I look totally normal. I'm still hurting from the last person that called me out in front of everyone at the post office.. I'm not a confrontational person.. but I WANT to say something to the people that call me out and embarrass me & hurt my feelings. What have ya… Read More

   A day in the life of Larry A. , I was diagnosed with Primary Progressive Multiple Sclerosis in 2016 my reaction was not well I have become distant to everyone and everything at the time I thought how was this going to affect me my family. At the time I was unsure and did I really think of others? I began… Read More

Good morning, I woke up in the middle of the night, again, so I decided to start this string in order to get some fedback from people that struggled with the same isse as me. Fear of losing my mobility! I have been living with MS for almost 16 years.  Like most of you, I deal with numerous crazy  symptoms… Read More

Owe to this life of spasms and pain how deliteful it is to be dispiteful  And when we thought it all was done MS tricked me and decided to have some more fun And after that fact we try to just go on and relax  But then my brain starts to act insane  All we ever ask for is to end the pain and someday and… Read More

Hi, I've been dating a guy for a year now, I knew about his MS from begining but I didn't realize how serious it is until I saw the recent sympthoms that for some reason has been getting worse. I love and care about this guy so much and deeply, I mean he is who I was looking for in my entire life . One part of… Read More

Here I am again talking about life. This MS diagnosis (2015) has been hard for me to accept and because of it, I am still feeling like a a person who will never find someone to love me. Read More

Well I just received my last ivig infusion on Friday and I'm still not feeling much better my back hurts like hell and my legs hurt and keep wanting to give out on me. And I'm not even sure that I'm not going to get any better. I find myself in dispare and grefe striken to no end. Is this the way I'm going to… Read More

Looking for support and to share experiences with those diagnosed with Multiple Sclerosis and JCV positive.  Feel free to check this new group, https://m.facebook.com/groups/456083131522725 I was diagnosed with MS in February of 2014.  Started Tysabri in May of 2014 and had 51 infusions until my first JCV… Read More

I have always gardened, read a lot, been a writer, and reached out to help others.  Now I am finding that if I don't want to give that up, I need to come up with some workarounds.  I do container gardening on a large scale.  I can sit to weed or plant things.  It is a lot easier this way.  Books are often too… Read More

We are thinking about moving to florida and need advice on how much the heat affects the ms Read More

Hi Everyone, I need some suggestions.  I need to make some modications to my house (porch lift, grab bars in the bathroom, etc,) to make it easier and safer for me to get around but my wife gets very angry at me when I talk with her about making changes to the house and she will not emotionally support me… Read More

Just looking for someone else who actually understands! Having a hard time dealing with this. I was diagnosed October 1, 2012 so yes I am very new to all this. Read More

Adderall any one?   So last doctors visit to my neurologist I was telling him how unfocused I was and how I was a little emotional from time to time. My Dr. put me on anti depressant pills. It's been three months and he told me to take them until next follow up , which is this next Monday to see it it would… Read More

Hi all- I am so very involved with my art. It has taken me a lifetime to get to this point.  I have finally retired and enjoy the company of a man that literally does everything for me.  At first I protested (a little) now I have learned to enjoy quiet time with my paints and radio playing. Believe me my art… Read More

Take a deep breath, hold it for three seconds, exhale slowly, take another deep breath hold it for three seconds exhale slowly. Now tense all the muscles in your body, hold for three seconds then release.  People live with ms without any medication, they pay attention to what is going on in their bodies and… Read More

 I am asked this by so many I figure why don't I just make a list and check it twise!!! So here it goes.    Fatigue--- Ah yes but only when I really want to do something.   Numbness--- yep mostly in my right leg and foot and it is most always there.    Walking(gait)--- Always my right leg &foot went… Read More

My sons and husband have been my daily assistants for awhile but our sons (23-16) are moving on with their lives. My husband works insane hours at a paper mill. I need help cooking and cleaning. I am in a motor chair 24/7 and under weight. On paper my husband makes too much for any aid but in reality with one… Read More