MS Connection

Good evening. My husband is mobile but is clearly transitioning to needing a chair for walking long distances- like when we are out with the kids in the city, traveling, and street festivals. His problems are spasticity and balance.   He's 43, and for about 2 years, we've rented scooters or chairs- in places… Read More

I am new to this forum and was hoping to learn about others' experiences with family planning.  I was recently switched from Aubagio to Copaxone for this reason. I am reading a lot online and through the MS navigator about the topic of pregnancy. I was just wondering if anyone can share their experiences with… Read More

I have been diagnosed with RRMS about 18 months ago. I do monthly infusions and I also do iv vitamins weekly. I tend to take care of myself. I am very prideful and don’t ever ask for help. I don’t even ask my husband. I take myself to the dr, I take myself for tests and treatments. My question is how do you let… Read More

How many of you experienced this intimacy issue from your significant other (wife/husband) and what did you do about it?   Read More

Has anyone has experience using knee compression sleeves/supports to add stability to everyday walking...? I have tried them and they seem to add a bit of support...Just wanted to hear others using them.... Kent Read More

Ok so I was feeling pretty bad the other day from facel muscle drupping to left sided weakness the Dr ordered some steroids. Guess what start to feel better and I went and overdid did it my usual. I have my ups and downs but the roids really make things tough. But this time I'm getting head aches blored vision… Read More

There is the part of my brain that tells me how I feel emotionally about something. good, bad, happy, sad etc. Sometimes my brain has been tricked into thinking emotionally a certain way, by parental controls, dont touch the stove you will get burnt, dont go in the street a car will hit you. But most of the… Read More

The old saying, "I didn't know what i didn't know." has been a hard pill to swallow while navigating my one unpredictable moments at a time during this first year of being newly diagnosed. All my previous 50 some odd years of life experience has surely not prepared me for this. I've read and heard about how… Read More

Sometimes I feel like I just want to scream, even if I don’t know what it is that I would be yelling. I have had MS for 16 years, and I am only 36. I wonder how I have survived this long, I wonder if I can survive even longer. I know that there are millions of people who have it worse than me, I know that there… Read More

I have learned to cope in many ways with the cognitive deficits but it gets expensive when I lose things or leave them behind on trips.  I try to be nice to myself but it is so frustrating sometimes.  I just tell people it's BRAIN DAMAGE...I have the pictures... Read More

Do you sometimes feel like your brains are scattered all over the place and it is impossible to center yourself, or you cant figure out how to evaluate your symptoms. Do you want to find the right vocabulary to describe what is going on with you. Are you looking to decide if your symptoms are worth contacting… Read More

I have permanent handicap plates. I'm 29 and I look totally normal. I'm still hurting from the last person that called me out in front of everyone at the post office.. I'm not a confrontational person.. but I WANT to say something to the people that call me out and embarrass me & hurt my feelings. What have ya… Read More

I have a mom, a nurse no less, who just doesn''t "get" that cognitive impairment is real.  Whether its not being able to focus and cook with noise and other people around or difficulty in dealing with too much stimuli.  It's a "mental block" or being silly.  After having her falsetto-mimic my request for being… Read More

 Hi fellow MS family and friends! I have been battling MS for 10 years now and in the beginning, when I was on Copaxone, I was able to work out for 45 minutes every day… Now that I am on Tysabri for the last eight years I no longer have the stamina to work out  and I have gained a fear of over doing it. My… Read More

My memory is probably my worst symptom.  Having so many App choices, is there one that MS folks have found especially helpful in remininding them of either important meetings, to-do lists, dealing with their MS, etc? Thanks. Read More

There is this loop that keeps happening to me, no matter what I do it does not ever change. Sometimes after dinner I have desert , a cookie, a piece of cake, maybe a piece of chocolate, it seems a perfect compliment to the meal, then I am up all night until six a.m. Then at six a.m. I remember that i should… Read More

Does anyone know if there is an organization in Minnesota that helps with funding to for disabled people getting service dogs.  I understand that the dogs are quite costly to train. I am also planning to acquire an accessible vehicle, againt quite costly.  I know that there are grants available to vets for this… Read More

Hi everyone I have been dealing with a lot of BS from my family or some people that they have hired to keep watching me. It's been so long since they started this and I'm at my wit's end with the way they have been talking trash about me and just plain driving me nuts I have called the cops before but I don't… Read More

Do you feel like you are more observent because of your ms. Because you are paying attention more to your body and people around you. Read More

I was hit by a car as a pedestrian and taken to the emergency room. I have done everything for the pain except surgery as I have had a tumafractive lesion so the risk is high. The insurance company is claiming my pain is from MS and not the act of being physically hit by a car. So now I find myself in a… Read More