MS Connection

Hi all I'm still stuck in a nursing home. They're aware of what's been happening to me at home in regards to my nephew and then the rest of the family gang stalking me to neglecting me as well as the neglect and bullying and being taken advantage of. See before it was just little ol me. Then my friend Peter… Read More

To be honest, I just pray to God that I wish that I didn't have MS. It's just something that I have to deal with on a daily basis. I have to have an aide, my nurse aide is cool. I hate that I've had to fire four aides. Not trying to be depressing but if you want to be my aide, come to work. My back does bother… Read More

Hey there guys,My name is Robert Welsh. I’m 29 years old and currently being treated for my first big flare up of ms at swedish medical center in denver. I don’t have a 100 percent diagnosis as of yet but should shortly. My symptoms started in my hands with numbness in every digit and progressed to lhermittes… Read More

Having ms is a chore Sometimes knowing that others have ms makes others feel better Sometimes knowing that others have ms makes others feel worse When I read that others feel better when they hear that someone is suffering or coping with the same symptoms a confusion arises Are they feeling better because… Read More

Ok I've been having these really bad headaches for a few months now and getting more spastic and stress has been getting to me. I mentioned to my nephew last Thursday about taking me to the hospital and then I even made sure to ask his friend about dog sitting and my nephews attitude is always the same. Your… Read More

I am looking for a contractor to install a walk-in bathtub in my (rental) apartment.  I have permission from my landlord.  I'm having trouble finding a contractoe that I trust to do this work.  Has anyone done this?  Are you eilling to share your experiences? I had one installed in the house I shared with my… Read More

Has your doctor recommended you take alpha lipoic acid? Are you familiar with its benefits and uses? Read More

Hello. I didn’t know who else to tell this because I feel like no one understands really of being their future unknown. I am to graduate with my Bachelors in Psychology and want to apply for Masters in Social Work, with hopes of becoming a Licensed Clinical Social Worker. But I am terrified. I am scared of… Read More

Potassium is one of many substances called 'electrolytes' that help carry electrical signals between cells. Too little potassium in the cells can cause muscle weaknessThe weakness usuallty starts in the legsand then spreads to the middle of the body and the arms. It can also damage muscles. It can effect the… Read More

Hello, I was diagnosed on 11/9/17.  hadn't been feeling well for month or now that I think about it more like years.  I thought I was going crazy. My legs were always hurting and they felt heavy. I was so tired all the time. I would describe it as I feel as if some one just unplugged me and I have no more… Read More

Folks, I've seen a fair number of discussions where folks puzzle whether they should drive or not.  I have the opposite problem.  My MS is long-term, stable R/R.  I'm mobile, but not super-coordinated in the AM;  I can drive fine in the PM's (while in remission.)  So for decades, I've worked a PM job that… Read More

I wish it was easier to get through!!! I'm feeling swollen up again and been in more pain than usual...  I went down to get my ivig treatment and the Dr first said that they were going to do it at home but then said that I had to switch back to straight Medicare so the office is over an hour away and I missed… Read More

MS = Multiple Sclerosis or My Savior I choose the latter. Loving yourself as God loves us-unconditionally-is what helps us not to blame or shame ourselves for the diagnosis of what the flesh says, "It's all my fault...if only...why, why,why?" and so on. I believe the acronym "MS" can become, to those of us… Read More

Hi everyone, I just wanted to introduce myself. I am newly diagnosed (as of July '18) and hoping to connect with others who have been fighting this diasease. It has been a very humbling experience to go from being on the go all the time, hanging out with friends, and starting a career to not knowing what the… Read More

Warning: I swear I'm not too much of a crunchy, granola, hippie type -- really, I've got a background in computer science -- but this is a topic that may paint me as some sort of new age type. Before you read this post you have to listen to this song to put yourself into the right frame of mind. (And maybe I… Read More

Good evening. My husband is mobile but is clearly transitioning to needing a chair for walking long distances- like when we are out with the kids in the city, traveling, and street festivals. His problems are spasticity and balance.   He's 43, and for about 2 years, we've rented scooters or chairs- in places… Read More

I am new to this forum and was hoping to learn about others' experiences with family planning.  I was recently switched from Aubagio to Copaxone for this reason. I am reading a lot online and through the MS navigator about the topic of pregnancy. I was just wondering if anyone can share their experiences with… Read More

I have been diagnosed with RRMS about 18 months ago. I do monthly infusions and I also do iv vitamins weekly. I tend to take care of myself. I am very prideful and don’t ever ask for help. I don’t even ask my husband. I take myself to the dr, I take myself for tests and treatments. My question is how do you let… Read More

How many of you experienced this intimacy issue from your significant other (wife/husband) and what did you do about it?   Read More

Has anyone has experience using knee compression sleeves/supports to add stability to everyday walking...? I have tried them and they seem to add a bit of support...Just wanted to hear others using them.... Kent Read More